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24 feeling like 94~ no help or relief in site

sweetcherry1985ssweetcherry1985 Posts: 4
edited 06/11/2012 - 8:43 AM in New Member Introductions
Hello Everyone

I'm so glad I found this forum and there are lots of people out there like me. I am 24 and honestly feel like I'm 94. Here's my story:

In December or 2001 I was in my first car accident and suffered whiplash and bruised knee caps.

In January of 2002 I was rear-ended and suffered whiplash

March 2002- t-boned - whiplash, internal bleed

July 2002- rear ended on interstate - whiplash

October 2002- T-boned, totaled SUV - concussion, internal bleeding, ruptured discs T8-T10, started having migraines, whiplash

April 2007- side swiped- injured left shoulder

May 6th AND 8th, 2010- 2 different people decided not to look behind them and reversed into my car. 1st one was real bad, took out my whole drivers side, 2nd one no injuries.

I've been diagnosed with extensive nerve damage, unrepaired ruptured discs, my neck curves in the wrong direction and god knows what else. I have had numerous MRIs, EMGs, physical therapy, water therapy, CASH braces, massages, TENS, chiropractic treatments, etc etc etc...

Even with all of this I am still not in a state of "relief". Some months are better than others, but its getting worse. This back, neck and shoulder pain are unbearable. I have never thought of suicide until these past few months. I switched to a new PCP and have started seeing my PM doc again but they are at a loss. They won't send me to another neurosurgeon, the NS recommended an internal morphine pump and a spinal stimulator and I refused both because I was 16 and scared to death! I have begged for epidurals. Pain meds are NOT an option because my pain isn't that bad because I go to work and they will make me "loopy"(I go to work and no one talks to me anymore, I suffer the whole day and everyone feels sorry for me) I HATE IT! I want help of any kind. I don't know what to do anymore. I'm scared. I can't think straight. If I get a full hour of sleep its a blessing. I have switched PCPs and PM docs so many times I am labeled a "drug seeker and doctor hopper" Its so unfair. I would not switch my doctor if they actually listened to me and helped me even just a little bit. All they say is I'm young, it will go away.... not in 8 years it hasn't. I dropped out of high school because I could not sit in class and if I got up to stretch I was sent to detention. I am depressed. I am on Zoloft. I was recently diagnosed with tachycardia and premature ventricular contraction so I can not take ANY migraine medicine without risk of heart failure. Even my cardiologist said the heart problems were most likely due to my back and neck. What do I do? They know what the problems are but they refuse to help me! Tylenol might as well be a pez candy dispenser and I can't take celebrex or any NSAID because of my heart. Zanaflex and flexaril are a joke. The only thing I ever have any real relief on was Vioxx and that hasn't been an option in 5 years. I can't take it anymore. What do I have to do? I am not suicidal yet but I find myself thinking about it more and more. I couldn't do that to my family or dogs but I'm no use to them. I'm moody, I yell, I cry and they are all helpless because they can't help me anymore than they already have. I am single, I don't go out with friends because I can't. I don't drink because it causes more pain. I am on no drugs legal or illegal. I walk my 5 dogs daily. They are well trained and do not pull and walk at my space. I am 5'7, 145 lbs. I am mostly all lean muscle. My core couldn't get any stronger. Someone tell me there are more options. How do I get my doctors to listen? Thank you in advance~



  • I don't know if there is anything I can say that will help, but I felt someone needed to at least respond to your post. When life gets turned upside down, it can be a very lonely place. At least know that here at Spine Health you aren't alone and there are people who will listen.

    When I read about your 9 car accidents in 8 years, my first thought was "don't ever ride in a car with this person". Talk about bad luck! I don't think I've ever met a person who has had that many auto accidents in an entire lifetime.

    Why won't your PCP or PM doc give you a referral to a neurosurgeon especially if they are at a loss for how to treat you. Have they given you a specific reason as to why they won't? If you are in that much misery and have tried so many treatments and now are suffering cardiac issues due to non-treatment or correction of your problems, then heck I would think your cardiologist would give you a referral to see a neurosurgeon.

    The key is to not give up on getting yourself the proper treatment and care you need. Be your own advocate and make your medical team work for you.

    Welcome to Spine Health,

  • Welcome to Spine-Health.

    I know that there are spine teams out there (my spine clinic being one of them) that deals with the most difficult cases. Like "C", I'd suggest that you hang in there and find that team that will work very hard to get you to a place where you can live your life at the most reasonable level that you can.

    Ending it all isn't an answer, but finding the right specialist is. They really are out there. At this point, I'd say even if you had to travel a ways it would be worth it to find help.

    I don't want to ride in a car with you either LOL - jusk kidding there.

    Hang in there and keep posting and getting support here as you try to find a way to get this under control. You might get some great suggestions from other members here, as we're 12,000 members strong.

    Take care and please keep us posted.
  • Howdy and Welcome to the site!!! I think I will echo "C" in the "Wow on 9 accidents" - and they don't sound like fender benders either! Gentle *HUG* Wow!

    Like was already stated, be your own advocate and don't give up! Some doctors don't know how to say "I don't know..", and in doing so, they equally aren't real good on referring one to someone that might actually know! Ego thing maybe? It sounds like you have had MRI's and other diagnostics. Can any of these doctors tell you logically *WHY* they won't refer you? I would gather you are either in a country where referral is mandatory, or a insurance thing? Please try and push one of them for a referral.

    I am so sorry you are going through all this at such a young age. Know you have support here and we understand and therefore listen. Please keep us posted on how things go. Support *hugz*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. so sorry to read of so many serious accidents. i do hope you find some help and are feeling better soon. good luck and keep us posted.... stop by anytime! Jenny :)
  • all i can say is keep trying till you find the right doc, it can be a damn long road and you got to believe there is light at the end of the tunnel. i myself have felt exactly like you, was on antidepressants, suicidal thoughts, the whole 9 yards. it was because i lost sight of the tunnel, i felt i was the only one with a problem of this magnitude, my family and friends though i was faking, or just enjoyed taking drugs so no support there. it was actually sites like this one that made me come around. i wasnt the only one! there were actually people out there in much more pain, had many more problems, and still managed to go on. it helped me find the tunnel again and eventually see the light. everyone here can help you find the tunnel again, and hopefully with time and helping yourself, see the light at the end
  • Never give up. There is an answer out there for you. You have a very long and complex history. My first suggestion is to get organized. Most doctors alot 10 minutes to a patient. That's why they are always running behind. And often if they are way behind the next patient gets 2 minutes so they can catch up. So you have to go in prepared to any visit if you expect to get help.

    Write out your history in a clear unemotional way. Try to stick to facts. Date, Treatment, Meds, Doctors. Then start a log of what you are feeling now. If you do this for two weeks you will be able to pinpoint what bothers you the most. Nothing turns a doctor off faster than "I think".

    Then I would look for a teaching hospital in a big city. A childrens hospital would also be a good idea. Most of your injury happened when your body was doing it's growing. This is probably playing a part in the problems and only a childrens spine specialist will understand this. You need a large medical center where they can have an orthopedist, neurologist and cardiologist working together.

    If you can do all of this you should be able to get some clear answers and some pain relief. Now that you are older you might need to get those discs taken care of by a discectomy. Or they may be able to control it with meds and therapy. Whatever the case you need to get a comprehensive plan.

    Good Luck and keep us posted.
  • I went back and seen my PCP and told her that unless she helps me STAT she'd better admit me to behavioral health. She scheduled me for a thoracic spine epideral. I had that this past Monday and DO NOT want to go back on the 27th for the 2nd one. I am feeling some relief of my thoracic spine, but my neck and shoulder are really hurting now. Maybe since my back hurt so bad it masked how my neck and shoulder really felt? I don't know. My epideral was very traumatic to me and I don't see myself going through another one. I posted about it in the spinal injections thread, named it "ouch".
    I didn't and still don't have any pain meds and I'm hurting still the same just not in the same spots. How do I tell my doctor this? When I was there last Friday I asked if instead of her giving me another hydrocodone script that will just get thrown in my drawer if I could try something a little stronger and longer lasting. Hydrocodone 5/500 every 12 hours did not even touch my pain. That along with Mobic (sp?) made it so my legs and hands weren't numb and tingly anymore but thats as far as it went. She said "Absolutely not,something stronger is overkill for whats going on with you." ???? I don't get it. Why does she think I'm faking. What do I have to say or ask for them to believe me? I see the PM on the 27th. Any suggestions on what I can do to make them all listen to me? I did not go in for an Epideral for fun.I have no control of my BP being 149/100 with a pulse of 153 but I guess they think I do.

    ~Fed up Jenni
  • Kris has some great ideas. It' been said around here that if you take your MRIs to 10 different doctors, you'll get 10 different interpretations.

    I'd suggest finding someone, a teaching hospital, or a fellowship-trained spine specialist, someone out there that knows about spines to look at your history and test results and not rely on your PCP who really can't understand what's happening.

    Please try to get a referral.
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