Hi,new to this forum having found it whilst googling some answers and thought I may as well register and post. I'm based in the UK and in my early 30s, oh and female.
Quick history of my spine issues:
In April I woke up with excruciating lower back pain and sciatic shooting pains down my legs. I lasted (mainly due to getting an appointment with a doctor) until the Friday on Codiene phosphate and paracetamol (both on prescription for endometriosis pain). On seeing my GP, he decided as at that point I'd had post operative constipation for 12 weeks and suffered incontinence once **blushes**, it was a wise move to send me to the A & E (ER) for evaluation by an orthopedic registrar. I ended up waiting 5 hours to see one, being sent for an x-ray, then waiting a further 5 hours for a decision. They kept me in hospital over night on the assumption I may have cauda-equina syndrome and I would have an MRI on the Saturday when they could fit me in. I saw in total 3 ortho's during that overnight stay and the latter dismissed me as wasting their time and not even being constipated (my GP was fuming). I was told I wouldn't be having an MRI that day as they don't do them and I'd be recalled to have one within a week. I received a phone call on the Weds to attend on the Sat an MRI (yup on a weekend when according to the nurse they didn't do them). So that was my first MRI and was an LS series where I went in feet first and lasted approx 25 mins. Hated and panicked all the way through having seen how close I was to the tubing. Was told details would be with GP and on the following Tues I was recalled for another urgent one with contrast on the Friday following the first (so that puts me at two weeks I think). I made a GP appointment to see if he knew any results and said they hadn't even told him I was having one **rolls eyes** did however get some valium to help during the MRI and my panic attack situation as I'm claustrophobic. So I went for the second and was told whilst sat in the changing/waiting room that it was to look at further areas (still not sure which) and that I had a spinal lesion. Was left for about 5 mins where I did my own head in basically over wtf the lesion meant and then went for the MRI. Went in head first this time with my head put in a cage and wedged in with giant cheese triangles (well thats what they looked like lol). I had my first scan which last approx 3 minutes, I've no idea what this did but it was pre-gadolinium. I was then whisked out and the IV done so I'm now with gadolinium. Had 45 mins in the machine and I think I counted 4 scans (ie banging and then pauses when I was moved). Left and told results be back at consultant that requested initial in a week. Turns out it was to the one that dismissed me, who I've since found out specialises in feet and not spines. Anyways I digress, after a week I ring his secretary and ask for results which she says she needs to check with consultant and will call me back when she knows. Nail biting day where I waited until 3pm then gave up and rang her. Results were all back and evaluated, she wouldn't due to privacy give me details over the phone and told me I'd need to ask GP to request them. She did tell me I was being referred to a neurosurgeon but no more than that (not even where I would be seen as local hospital persay doesn't have them only neurologists.
So I managed to get an appointment with GP following Friday (so thats three weeks) for results as consultant ortho secretary faxed them across. Results were not full, GP annoyed no pictures from MRI, just a scratty note from ortho stating I have a herniated l5/S1 and a 4mm tumour within the cauda equina area. I was put on amitriptyline but after a week I had to go back as I have to work (no sick pay) and it turned me into a bizarre zombie (that was week 4). Was changed on Lyrica and managed two weeks on that with codiene phosphate/paracetamol with no symptoms. I started on low dose of 50mg per day and was told to see gp if this was working/no side effects. So two weeks later on Friday just gone (taking me to 6 weeks) I went back and the lyrical is now upto 75mg a day which my GP was happy to agree to. I've had some relief from this with pain, its not gone but I've got to a point where I'm able to manage it within reason, however the parethisia I've suffered has become more random (not sure if this is due to pregabalin/lyrica changing signals of pain) where I feel I have leggings nettles all day/night stinging me like mad and indeed driving me mad.
So there we go my merry 6 week journey, I see the neuro on Weds and I've no idea what to expect. I also as stated I think suffer endometriosis badly, and have a thyroid issue of non toxic multinodular goitre with hyperthyroidism (although I've put weight on recently due to endometriosis hormone treatment, its possibly minimal compared to your average person).
Hopefully this suffices an explanation to my joining the forum, I look forward to reading about similar symptoms, medications and hopefully if anyone can offer any help that would be greatly appreciated.
I've no idea what my small tumour actually means, if this is an issue, or whether my pain is predominately from the herniation.
thanks in advance