Hello, I'm not so new here. I joined a long time ago and usually come here for info rather than talking.
Anyway, my name is Bill, I am 38, I'm from Indiana and I have had severe lower back problems for 12 years now.
Everything went wrong in 1998, I rolled out of bed like any other morning and my back hasn't been
right ever since then. No car wreck, bike wreck etc. I'm not sure, nor do the doctors know what happened.
My first 5 years were a struggle. I kept going to urgent care doctors and apparently they all thought I was
a drug seeker because they wouldn't help me at all. They took one look at me, 5-'10", 165 lbs and said that
I was in great physical condition and since I was in no acciddent. I was faking it. During this time I put my wife
through nursing school and was very familiar with many of the MD's and got me an appt. with a Physical Therapist.
By this point I was in so much pain and so angry because I got no relief whats so ever I demanded an MRI the
next day. The MRI showed that my L5 S1 disc was ruptered and degenerating. 2003 New Doc and he performed
a mircrodisketomy and a Laminectomy, neither helped at all and of course he released me and took all pain meds
away too. 2004, 9 months later, new insurance and new doc. After 5 minutes with him and an X-ray he told me I needed
a spinal cage fusion sugery immediatly. By this point my disc was completley gone. After the surgery the doc came to see my wife to tell her that he had to scape my nerves off my spine and they were so badly damaged that I would recover
some, but not very much and he was right. 2005 New year new doc. Pain Managment. She is wonderful, first time I saw her
I explained that she's my 18th doctor and told my story and started to cry because I just couldn't take it any more. I had been on and off Vicodine and I hated them, yes they helped with the pain but I lost so much weight. I
got down to 130 pounds. She suggested Percocet and I've been on those ever since. Doc has tried (2005)80 injections,
(2005) temp spinal stimulator, 2006 permanent stimulator, 2007 stimulator revision, 2008 another revision, and last year we just removed it becuase it didn't work and I was getting horrible migrains and restless leg syndrom.
At this point I thought I was done with surgeries and was put on Kadian meds which is a slow release pain
med and they worked really well for me. I did a little house work last December and days after that I had a horrible burning sensation in my upper spine and my left torso would go numb in seconds when I would sit down. So I went to the hospital and had an MRI and they found a tumor in my T-10 vertebrae and it was interfearing with my peticle as well. New year, new doctor. I went to my first appoinment and I had a neurosurgeon as well as a team of Oncologist. Their conclusion was that I had bone marrow cancer and I was devistated. I went for several tests and after a week of losing my mind and preparing for death it came back negative, thank you. I went to Inianapolis for embolization, they injected ethanol into my vertebrae to kill the tumor. The doc told my wife that my bone wall was really thin and I should take it easy, of course doc, no parachuting, gotcha. Another surgery right after to grind on my pedicle to relieve the nerve and about 2 months later I went back to work and it's like it never happend. But, about a month ago I had pain between my shoulders and in the base of my neck. Another MRI in May would show 5 more tumors and the orginal one is still alive. The tumors are benign but are extremley agressive and are acting like malignant cancer. Basically the tumors are like cavities in a tooth eating it away. I now have an Oncologist and I am scheduled to have radiation treatment on 06-15-10. I am so terrified it's hard to put into words. I can't sleep other than maybe 3 hours for over a week now. I constatly have nightmares either I am already dead trying to comunicate with my wife or I'm trapped in the radiation machine and it's burning me up and I violently shake and kick myself awake. Other than all this for the most part I am very positive, I always try to smile even when the pain is overwhelming and I just want to cry. I am currently working and always have and I plan to as long as my legs will work. I know my story is way to long (I left lots out too) and hopefully you made it through. If I can help you in any way just ask, I'm about as easy going as you get and we're all in this together.
All I got left to say is, I love my life, I love my wife and children. Life IS what you make it and life is good.