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new with long tale to tell

auntylaauntyl Posts: 2
edited 06/11/2012 - 8:45 AM in New Member Introductions
hi my name is lynne and found forum by chance whilst looking up info on sciatica.
l am fairly new to alleged sciatic pain just 7-8 wks, so far just had low back and hip xray, confirming hips ok, spine a little degeneration, not too abnormal for its age.
Dont know if theres any connection, but 25yrs ago following csection started with chronic low back and hip pain, right side worst, along with frequency and general poor health, infections aneamia, no reason found, despite samples tests laprascope, put down to post op, gyneacalogical, hormonal, phycalogical, took many years of ill health and pain to finally see urologist who with cystascope daignosed intersticial cystitus, chronic inflammation of bladder, no known bacterial cause, maybe immune, allergy, so no cure, but treatment of symptoms, which did help a lot slowly over several years, from then on fairly well settled, occassional niggles, odd rare severe bouts, but improved active lifestyle and mental outlook generally.
Get a bit of athritus, bursitus, rhinitus, allergy probs but generally active. Two month ago simular hip pain, but also in my right butt, down my leg, had heard this was simular to sciatica, mentioned it to doc, referred for hip xray, ok, over the last few week the pain has got worse down into my knee calf, front as well as back, suprised me,
also numbness, occassional spasm,s cramps, noticed it got worse on cold day, then as the day went on, bad in evening, by bed time suprised that going to bed didnt bring relief trough rest sleep, pain worsening preventing sleep, fell off eventually, woke feeling rough and looking it, as bed did also. Saw Doc last week told him, saw a consultant two days ago about a different prob, told him, looking for support, at what seemed to me to be the docs lack of interest or advice, telling me it was 6wk wait to see an orthapeadic consultant, who would refer for mri scan, so now find l,m limping on walking more than a few yards, struggling to sleep, drained today after an active job day yesterday, not understanding how a condition, and now know from internet sciatic pain is more a symptom than disease,
how debilitating and disabling at worst, yet docs seem to have a blase attitude about it, seemingly no rush to confirm cause, or advice on meds treatments,alternatives,
l have gathered its difficult to treat,be it meds or ops.
At present just taking paracetamol, though take low does amitrip for years to calm nerve ends in bladder, and l have also noticed l,m experiencing more frequency with it, whilst ibs is more settled, odd. l am going to go and see senior gp tomorrow or fri, will ask if he can speed up mri at least, see if he can advice. Which is why l looked for and found this site, just advice on what you can do to help yourself. So far just by reading others posts do see many of simular symptoms to myself,that has helped knowing the sleep problem is common with it, also pain isnt just at back of leg, also numbness is usual. Went through simular with intersticial cystitus, turning to and relying on others for info and advice, and reasurance symptoms are usual for others. Sorry to go on at such length, thanks for bearing with me.


  • There's lots of info about sciatica and are you having back pain also? As well as meds, heat has helped putting it on for 20 minutes several times a day but not to sleep with a heating pad on. Heat has helped the leg sciatica also. I hope you can get your MRI soon to see what's going on. It's hard to be patient when you know something's off but just can't completely guess what's up. Best wishes and keep us posted how you're doing. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. sorry to read of the pain you are having!! i hope you find some relief soon. be sure and visit the different forums and make yourself at home!! good luck with finding good medical treatment!! stop by anytime!! i have severe sciatica and use medication that helps me quite a bit.. there is help out there!!! Jenny :)
  • that one of the hardest things to learn is that I am no one else's emergency. Sounds like you're learning that right off the getgo. It's a difficult lesson but a necessary one. Necessary because most people have to wait 4-6 weeks to see different specialist - even for pain management. Once that's learned, you slow your expectations down and it's easier to deal with.

    That saying, "If you want more, expect less" seems to apply.

  • LizLiz Posts: 7,832
    Hi Lynne
    I am glad you have found this site, there is so much information and support for you here. I hope things get easier for you soon
    Take care

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • It sounds like you are in the UK. Maybe the docs do not seem to have a sense of urgency based on your symptoms.

    I am no doc but my doc did tell me that if the pain does not go all of the way down to your foot it usually is not a ruptured disc.

    I know that won't help your pain much. I went through the same thing. My pain stopped at the knee but it was severe. Paralyzing at times. It took me 2 years to get a diagnosis mainly because back pain is one of the hardest things to diagnose. Two people can have the same spinal issues and 1 may suffer pain while the other does not.

    It may be a good idea to try and figure out ways to make yourself more comfortable as the wait may be longer than you anticipate.

    Good luck and please keep us posted.
  • hi thanks for responses, sorry for late acknowledgement, time flies. After a few month of severe pain and bouts of limping with it, seeing a physio who showed me a simple exercise, the problem did seem to settle. But, a few week ago pain started again,but
    bit different, the worst of pain when in bed at night, severe stabbing and throbbing pain,thigh, calf, knee foot, whilst during the day bareable with no obvious limping. But admit l push my luck with doing jobs, always a hands on gardener, diy, fetching carrying,so sorted a small garden pond on first nice spring day,after winter neglect, fresh water, moving stones etc.
    Same night in severe pain through night, constant, now been a problem for 3 days, worse at night, just knackered in the daytime with dull aching,see gp soon. What l wanted to know from others who get severe sciatic pain, is, can it make you feel ill as if flu, re fatigue sleepy,temprature, unable to eat,
    or is it more likely a bug aggrevates sciatica.
    Might add jj, yes in the uk, unfortunately a highly populated congested area, westyorks, so also not the healthiest air to breathe in for those with rhinitus,
    l,m so greedy l have that also, please send me a tank of fresh canadian air to start with, lol.

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