hi my name is lynne and found forum by chance whilst looking up info on sciatica.
l am fairly new to alleged sciatic pain just 7-8 wks, so far just had low back and hip xray, confirming hips ok, spine a little degeneration, not too abnormal for its age.
Dont know if theres any connection, but 25yrs ago following csection started with chronic low back and hip pain, right side worst, along with frequency and general poor health, infections aneamia, no reason found, despite samples tests laprascope, put down to post op, gyneacalogical, hormonal, phycalogical, took many years of ill health and pain to finally see urologist who with cystascope daignosed intersticial cystitus, chronic inflammation of bladder, no known bacterial cause, maybe immune, allergy, so no cure, but treatment of symptoms, which did help a lot slowly over several years, from then on fairly well settled, occassional niggles, odd rare severe bouts, but improved active lifestyle and mental outlook generally.
Get a bit of athritus, bursitus, rhinitus, allergy probs but generally active. Two month ago simular hip pain, but also in my right butt, down my leg, had heard this was simular to sciatica, mentioned it to doc, referred for hip xray, ok, over the last few week the pain has got worse down into my knee calf, front as well as back, suprised me,
also numbness, occassional spasm,s cramps, noticed it got worse on cold day, then as the day went on, bad in evening, by bed time suprised that going to bed didnt bring relief trough rest sleep, pain worsening preventing sleep, fell off eventually, woke feeling rough and looking it, as bed did also. Saw Doc last week told him, saw a consultant two days ago about a different prob, told him, looking for support, at what seemed to me to be the docs lack of interest or advice, telling me it was 6wk wait to see an orthapeadic consultant, who would refer for mri scan, so now find l,m limping on walking more than a few yards, struggling to sleep, drained today after an active job day yesterday, not understanding how a condition, and now know from internet sciatic pain is more a symptom than disease,
how debilitating and disabling at worst, yet docs seem to have a blase attitude about it, seemingly no rush to confirm cause, or advice on meds treatments,alternatives,
l have gathered its difficult to treat,be it meds or ops.
At present just taking paracetamol, though take low does amitrip for years to calm nerve ends in bladder, and l have also noticed l,m experiencing more frequency with it, whilst ibs is more settled, odd. l am going to go and see senior gp tomorrow or fri, will ask if he can speed up mri at least, see if he can advice. Which is why l looked for and found this site, just advice on what you can do to help yourself. So far just by reading others posts do see many of simular symptoms to myself,that has helped knowing the sleep problem is common with it, also pain isnt just at back of leg, also numbness is usual. Went through simular with intersticial cystitus, turning to and relying on others for info and advice, and reasurance symptoms are usual for others. Sorry to go on at such length, thanks for bearing with me.