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Hello all nice to meet ya

edited 06/11/2012 - 8:45 AM in New Member Introductions
I am a 29 year old woman in Kentucky, USA. All my problems are in my signature. I had a really bad car wreck in 03. A huge truck hit me from behind going full speed, running over the back end of my car. I did'nt go to the hospital because at the time i was in no pain, and was wearing my seatbelt. The next day, I could not move. Still I was stubborn and did'nt go to the doc. Fast forward almost 7 years and I am a 29 year old woman that cannot play with my kids because of the pain. Found out recently through X-rays my cervical spine lost it's curve and I have what the ER doc said was "degenrative arthritis" in my spine. I am on no medications for it because to quote my doc, "You are too young to be put on narcotic meds" Seeing as to how I cannot take ibprophin (sp?) NSAIDS, or asprin because an allergic reaction to asprin when I was 13 nearly killed me. And can't take tramadol because of my Celexa and cabinet full of meds used to treat my PTSD and othe mental health issues. I don't know what else is going to help. Tylenoyl is like candy when I take it for my back pain or the migraines. Neurontin about landed my in the mental hosp. because it made the hyperviligence and suicidal thoughts come back. Five days of that almost made me lose my mind. Flexrril really helps the mucsel spasms but not the arthritis pain I feel. When to PT for abotu 3 months ans got nothing but migraines from the traction they put me in. Nothing do far seems to help. I went to the ER Sunday because I fell (I do that alot) in my yard, got a stress fracture on my hip, torn tendon in my knee and a sprained ankle. Doc sent me home with 4 pain pills. Of course. Cause around here if you are a young person in the ER for pain you are automatticly a drug user so they send you home with 4 or 5 pain pills in a packet. Those helped me through the night and yesterday and this morning. I call my TENNS unit my life support. I am never unplugged. Except in the shower of course. I cannot sit or stand for very long. I can't even lay in one position for very long. I was recently diagnosed with Fibro, although I personally think I just have arthritis becuase most of the pain is in my joints. The only muscel pain I have is in my back and the tendons in my arms and hands. Most days, I lay in bed with pillows under me or in my recliner with pillows under me, crying and praying. My husband tries to massage my back but touch hurts. I don't have anywhere to go for this pain because my doctor don't belive me. I would'nt belive me either. But she has seen the x-rays. So she should understand a little bit. The chronic pain has left me deprssed and anxious. I am hoping that mabye through these forums I can learn how to control my pain myself since no one is willing to help me. I guess I sound angry. I am. I'm tired of this. I can't do anything a normal 29 year old can do. It hurts to walk. So I can't go shopping or hang out with friends. No one seems to listen when I tell them how bad it hurts. They say "your young, your body will heal itself" or "your young, you can't have all that pain in your bones" yeah right. :(


  • I am so sorry to hear what you are going through trying to get some relief. The first thing that I would do is find a new doc. This makes no sense at all that you should just suffer because you are so young! It really does not sound like you have found a doc that is willing and able to treat your pain. I know that it is hard to do but you must keep searching for a doc that will help you. He/she is out there you just have to find them. Has anyone suggested pain management to you yet? That may be a good place to start. Don't lose hope as it took me 2 years to find a doc that could help me. You will find many members here that have had similar experiences.

    I am glad that you have found this site as you will find many caring members here that really do understand and will provide support to you.

    Good luck and please keep us posted.
  • I am SOOOO sorry to read posts such as yours! I crashed a helicopter (yes I was the pilot) when I was 22, and for the next 18 months, I was in extensive physical therapy for pretty much all of my spine. No pen meds given waaaaay back then either (I am almost 48 now) not so much for 'drug seeking, just wasn't vogue? I had a lot of issues for years thanks to that accident, but pushed through much of it. I wasn't *looked* at truly until I was 42 - if that makes sense?

    Now a-days, "drug seekers" and "age" work against you sadly. My first suggestion? I would see another doctor. I would try to get with a doctor that is trained in spine specialties - Neurologist/Orthopedist. A real concerned doctor will see that you aren't "playing games" and will *look* at you as a patient regardless of age. I truly hope you find such a doctor. Again, so sorry you are in such pain. It does sound like your hubby is wonderful!!!! Please keep us posted on how it goes.

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Welcome to the pain club. I think you need to run to a neurologist. They are the only ones who can take your symptoms and match them up the the tests like MRI and CT. This is not brain surgery (just joking) and there is some pretty simple help. You have some of the pieces like a tenns unit. But there is more.

    Right now everything you are doing is like putting bandaids on a major incision. You need a doctor who can take the info and make sense of it. The clues are in your post, you just don't know it. Like falling alot - thats lower back issues.

    The fact that you are posting here means that you know you need something more. Meds are not the answer they are just a piece of the total cure. And remember that sometimes you need to shop for the right doctor for you.
  • Hi,

    First let me say welcome to spine-health have a look around. If you will go into the neck forum you will see at the top of the page many links to some wonderful articles. Keep in mind while reading members post they are just patients.

    Now I am not sure how your insurance works but many insurance companies require referrals to get to any real specialist be it a spine surgeon, nuerologist or pain management doctor. I would assume you are seeing your primary care doctor? The one thing I know is you need to stay persistent with your doctor. The best thing I can tell you to do is to write your symptoms down the major ones, keep a journal how they are effecting you and what your doing at the time that increases the pain. Also keep track of what makes you feel better. Be realistic about your pain to the doctors. Like if the doctor has you rate your pain don't say a 10, as that is a indicator to them. Google those scales and learn and understand them. Should you have to do all of this, no, not really. But it more than likely what your going to have to do at this point and time.

    This is how I look at this is your body and your life and no one is living in it but you. So you have to become a advocate and a strong advocate for yourself. Learn as much as you can. There are so many other test that they can be doing. Your primary can also order those test it doesn't take a specialist to order the test. So work with the primary doctor you are seeing, but go in educated with a plan. One thing that may help you is to look at this article and form a direct line of questions when you see your doctor next. Although it is for a spine doctor you can still re word the questions to fit the doctor you are seeing.

    As you research the site you find more and more articles that will help. But don't give in till they have run the proper test and came up with a definitive diagnoses. If I can be of any assistance don't hesitate to pm me. Once again welcome to spine-health. Take care.
  • To J.J. Grey: I have'nt mentioned pain managment to the doc. I know she put my husband on it for Crohn's. He said it was great because they had couselers there to give you ideas on lessening your pain with out all the pills. He is now in remission and don't go there anymore.

    Aviatrix36440: You crashed a heli? that must have been scary. Yeah drug seekers and users are bad in my part of Kentucky. I guess they're bad everywhere. We had this old doctor doing a free clinic here. He was about 80 and worked Tues. and Thurs, helping people without insurance. Well a guy came in wanting him to write out oxycotin doc refused so the guy pulled a gun on him. Now there are a hundred people that are'nt getting what they need because the doc shut down the clinic.
    Kris: Thanks. I am going to ask about that. I did'nt know nerulogists dealt with spinal problems but it makes sense. I seen one for 3 years, from the time I was 13 till 16 for migraines with aura apperantly I had something on my brain associated with puberty. They thought it was a tumor but it was'nt. As far as I know it's gone now. The falling alot that I do and my right leg had scars all over it only my right never my left, gets hurt. I don't know if it's because all the pain in the right side of my lower back kinda where my hip is. Somedays I have to use a 3-leg cane to get around because when I put weight on my right side the pain is awful. And there's a crunching feeling in my hip. X0rays show arthritis in there.
  • Thanks tamtam. My pain is at a constant 7. The first time a doc asked me on a scale from one to ten how bad is your pain? I told her to explain it and she said ten being wanting to throw yourself out of a window painful. Well, it is not THAT bad more like a 7 on good days 8 on my pain spike days. Somedays yes I would rather sleep and sleep until the pain is gone. But I dont want to throw myself out of a window. I try to advocate for myself. But doctors around here get suspicious. They see it like this ( I had an ER doc tell me this. And he's the only one who ever helped me) When you go into the Er or your docs office and tell them your back is hurting, they automatically become suspicious of a young seemingly healthy person saying my back hurts. I can understand why. I don't blame them. I would be suspicious too. But when that young person comes in limping and holding onto the wall. And then when she lays flat on the table she cries from the pain it's really painful. My doctor never mentioned a neuro doc or anything so I'm just going to ask her myself. She wanted me ot go to a chiropractor but with degenerative arthritis in your spine is that a good idea?
  • Good grief, you need to find another Dr. that can help you. Its very upsetting to hear how you have been treated so far. As the others have said, try to find a neurologist/spine specialist who will take your issues seriously and try to help you.

    As for chiropractors (no disrespect here) I would stay far away from them. More damage can happen tp your spine. My surgeon told me in no uncertain terms that going to a chiro with my spine issues would be a very bad idea. Just my 2 cents.

    Hope you can find some relief,

  • For now till someone runs the right test and finds out what is going on in your spine there is noway I would go to a chiropractor. Plain x-rays can't see the disc and other soft tissue. Typically when someone has been in pain for as long as you have, a mri would have been ordered. So I wouldn't suggest seeing a chiropractor till other things are ruled out. Your falling down could be related to your neck, as well. I stumble a lot as I have myelopathy. Not that I am saying that is what you have only further testing could diagnose that along with the doctor. But work with your doctor to get the right things done as I wrote in the previous post. Good luck and keep me posted.
  • Thanks you all. I have actually considered the chiropractor cause my GP pushes it on me everytime I go in. That and if it helps the pain then I will do it. But you all made some good points with that. Now after reading your replies to me and other people on here, I know exactly what to say to my gp. Before did'nt know neuros delt with spine issues I thought they dealt with the brain. And I also did'nt know that my falling alot may have something to do with my back. But now that I know I'm going to talk to her when I go in on the 9th.
  • Welcome to Spine-Health. You've already gotten some great information and I'm glad you've been warned about going to a chiro. They definitely have their place and are good for many things, but what they do can be very dangerous for a spiney.

    I'd also suggest finding or getting a referral to a fellowship-trained spine specialist, either ortho or neuro, someone who just works on spines. If it's a surgeon, don't worry - it doesn't necessarily mean surgery. Many surgeons will try most conservative measures first.

    Like the others said, a spine specialist will (or should, if it's the right one) take you seriously with your spine problems because they have many patients just like yourself and can do the kind of test needed to see that your problem is spine-related.

    Take care of yourself and don't give up hope. You might need to see a few docs before you find the right one, but once you do, hopefully you'll be on your way to some relief.

    Please keep us posted.

  • Hi,
    I truly am sorry to hear you are suffering and have been for so long. It sounds like you have a few things going on. I agree you need to keep pounding the pavement and insist on the medical care you deserve. You have the right to keep going to doctors and seeing any doctor you want to see until you find one you are confident in and feel better. Only you know if it's a new doctor or a new tactic or line of reasoning with the same doctor.

    I do want to just throw my .02cents in on one thing though. I realize it's all a matter of opinion.

    Many are saying a Chiro is so dangerous for a spiney. Let's face it there are good doctors and bad doctors. How many times do we hear the advice, "you need to find a new doctor" on this site? We've heard it several times right here on this thread. Same goes for Chiropractors. There are good Chiros and bad Chiros as well.

    I am not saying that the Chiro is the answer to all Spiney's problems. I believe we need to be diligent in finding a diagnosis and sometimes a good Chiro can help us do just that. They are great at determining if our pains are disc, muscle, joint, ligiment, or even vitamin deficient related.

    I do believe that working together with a good PT program and your doctors they can do wonders. Even those with Ostearthritis can benefit from the correct forms of adjustments from a good Chiro.

    I'm not saying that in this particular case a Chiro is your answer. I certainly am not a medical professional and do not know all the facts. I just wouldn't be so quick to count a Chiropractor out. Mine kept me on my feet and out of pain for a very long time after a car accident many years ago.

    Years later he was still helping me keep the pain at bay and then was the first one to say you need to get further imaging and send me off to my Ortho Surgeon when he believed he could no longer help me.

    Good Luck, Please do not buy into the doctor's "you are to young to have back problems or pain" program. Keep us posted.
  • dilaurodilauro ConnecticutPosts: 9,859

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    Please feel free to contact me at rdilauro@gmail.com or send me a message
    I have two things that I would like to say.

    1 - Yes, so much does matter. You are young, you need to seek the appropriate medical attention that will provide you with an action plan that can help your situation.

    2 - I get so annoyed when I hear that doctors will not write narcotic prescriptions because a person is too young! Pain never discriminates. Doesnt matter how young/old, what color, what race, what religion you are... Pain can and will hit anyone.

    From reading your posts, I am not sure what diagnostic testing has been done to come up with a clear description of your condition. That is so important in order to come up with a clear set of treatments.

    Some things such as degenerative arthritis. That could be a result of the accident, it could be genetic, etc. But it is something that needs to be addressed.

    Being young is in your favor. It will allow you to respond to treatments better, you should have the stamina and muscles/tendons/ligaments that can work quicker to recover than lets say someone 20 years older than you.

    The key is finding the right specialist that will examine your situation and detail and come up with the right plans.

    Being young is NOT an excuse for any medical professional to tell you that you shouldn't be on narcotics or you shouldn't have surgery.

    My first lumbar surgery was when I was 28 and for years prior to that I was on many different types of medications, mostly narcotics to help manage the pain.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
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