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Please I need some advice - thanks

mscatmmscat Posts: 22
edited 06/11/2012 - 8:46 AM in Chronic Pain
Hello everyone I am new to this forum and it seems that many or all our sufferers of chronic back pain.

I have herniated disc L4 and L5 and have tears in my upper spine. For ten years now I have suffered with constant pain in my lumber hips knees and ankles. I am 29 with a 5 year old and a 11month baby who is 25lb!!

I have already had a steroid injection which helped for few weeks now my consultant has said he will do another epidural injection into my spine. Its seems that actual surgery involving incision only agravates and worsens condition in long term.

My dad has has 2 lamectomys and now is completely disabled on Morphine patches.

Im finding the ain so hard to cope with u wake up with it it wakes you up at night and its always there. Sometimes I have been suicidal.

My questions are wud u recommend avoiding surgery or only as last resort. Im on diazpam Ultram Metafarmic Acid and Paracetomol each day and most days are spent in a fog but still in so much pain.

Seems like people on here know what Im going through and what I may face is lifetime of pain.

Emphathy and hugs to all of u xx


  • Hi, welcome to Spine Health. You found a great site.
    If you look under FAQ you will find the suicide hotline at the bottom of the page.

    I'm sorry you are having such a rough time, and with 2 young kids it must be difficult. Have you gone for a 2nd or 3rd opinion? Only you and your surgeon can make the surgery decision.

    There are plenty of success stories (my husband is one), but those lucky people generally leave the site as they are busy living their lives. The rest of us stick around for information, support, etc.

    My pain also makes it difficult for sleeping, as is true for so many others here. The sleep deprivation makes it that much harder to cope with the pain.

    Best wishes to you, hope you can find some relief.

  • Welcome to Spine-Health.

    Yes, surgery is generally considered a last resort, but for many of us it's been successful. I've had two fusion surgeries and am not disables and consider them both successful.

    I'm still in pain and probably will be all my life, but it's still much better than what I was going through before my surgeries.

    Surgery is a very personal decision and one of the main things is to have complete confidence in your surgeon and the doctor that's treating you to suggest the right treatment, whatever it is. I trust my surgeon 100% and when he says to do an MRI, an injection, surgery and/or PT, that's what I do.

    I always think that finding a fellowship-trained spine surgeon (specialist) is best to start with and just because they happen to be surgeons doesn't mean that they'll suggest surgery first. Most surgeons will try all conservative measures before surgery, and many insurance companies demand that as well.

    Good luck and please keep us posted on what is happening and how the injections go.

  • I am new at communicating in this way but really need interaction! Recently diagnosed with psoriatic arthritis and just had hip replacement. Is anyone familiar w/this type arthritis?

  • Prior to diagnosis of psoriatic arthritis had cyst laminectomy L4/L5 and then fusion of these discs a year later.
  • Welcome to Spine-Health.

    You might want to post this question in the Arthritis section of this forum - you'll get more personal answers that way.

    This particular post belongs to mscat and is regarding injections. If you don't know how to start a new one, please PM me and I'll talk you through it.

  • It seems that you are in a similar situation as I am. I have several herniated discs but one is extruding out pretty severely.

    I have a 2 1/2 year old. I was laid up for the last two weeks.

    I have gone through PT, injections the whole 9 and nothing helps but extremely high doses of Morphine which I tolerate pretty well due to the extended time on pain meds.

    My surgeon and PCP have been telling me that I am too young for surgery. Having surgery now would only cause problems down the line and I would probably end up having several surgeries by the time I am done.

    I am 36 so at your age, I doubt they would do surgery.

    I cannot "recommend" surgery because I am not a Dr.

    As far as suicidal, always turn to this site for support. It has helped me greatly as far as the depression that has come along with suffering.

    I am not sure if that was an exaggeration but stick with us. Your kids need you. :)

    Hang in there and find a good Dr that will listen to your plight and manage the pain however they deem appropriate if surgery is not on the table.
  • #:S Thx that's helpful. I will figure it out!
  • I apologize if that was not the answer you were looking for. But most of us here are not Dr's and are also looking for answers for our own spine issues.

    You asked if we recommended surgery. I don't think anyone here can make that determination for you. :shrug:
  • Thx for the suggestion Cath, but my issue is also chronic pain, have had many injections and also faced the choice of having surgeries or not. Cervical injection (herniated C5/C6) helped quite a bit with pain and numbness in hands and arms. Decided against cervical surgery. Also had two facet blocks L4/L5 after cyst laminectomy, but severe pain and cyst returned and opted for disc fusion L4/L5. And though my diagnosis (finally! was psoriatic arthritis - by then needed total hip replacement - am dealing with severe chronic pain as arthritis meds haven't taken effect yet.
    Regarding surgery, doing whatever homework is required, the key is finding a highly regarded surgeon who is willing to stay abreast of state of the art techniques.
  • Thanku for all ur words of advice and support I guess I will see how the Epidural injections go. Thankfully unlike many others on this site I do not have things like arthiritis ot major joint prblems. Apart from refered pain and trapped nerves. I think I will ask to be refered to pain clinic as well. As far as my feelngs of depression are concernewd I think life is so much more exhausting when your in a lot of pain and have to keep up with the kids.....then sometimes u feel guilty u even have constant pain (like any of us had a choice)
    M consultant said my disc's were starting to 'denegerate' but didnt offer an explanation I find they can be very rude and uncaring at times!! But I suppose they will try everything else before they perform surgery.....thanku I am glad that I have found this forum and please if anyone ever wants to chat or end messages then feel free
  • I am so sorry to hear that u are goig through so much. Pain is exhausting and it can control ur life. I hope that the meds start working soon and u find some relieve.
  • It is pretty hard when u have an energetic kid full of life when ur in constant pain....so yes it makes it more tiring I think! But they bring joy into ur life to relieve some stress!
    As far as what I said about suicide is that sometimes the pain is excruciating even when i'm on high doses of meds and sometimes u feel like ur failure as the pain affects family as well. But I never would go down that route as that would be selfish and giving up hope. I get exhausted as everything takes twice the effort and my brains telling me to stop all the time because of the pain. I'm sure u can relate to all of this. Thankyoufor the supportive words and hope you have better day today :)
  • So how have you been? I must admit that when I first commented on anything, or said hello, that I waited for some one to acknowledge my presence. It was not long before several had said hello.

    Just that simple gesture - reduced my pain, because I was no longer alone. Never again! And I did not have to explain why I felt like dodo or why I was bent over for the 30th time that day. I could just chat and enjoy time, getting outside of myself for a short while.

    Cheers to you! C45
  • That has been my problem thinking there was a'cure' that a visit to the consultant would solve all my problems. But there is no cure just pain management and most importantly being kind to ourselves.
  • I agree that only you can decide if surgery is right for you. I'm looking at my 3rd surgery fairly soon, and I am only 32. I know how hard it can be, but the thing that helped me the most was while spending time researching keep in mind that everybody handles surgery, and for that matter any treatment differently.

    Another thing that helps me is the "one day at a time" attitude. If your having a really bad day go for a one hour at a time attitude.

    Again no one but you can decide if surgery is right for you, but if I had to do my laminectomies again I would.

    Hope you have a good day,
    Best regards,
  • i have sent you a private message
  • Chronic muscle pain can be a symptom of vitamin D deficiency. Vitamin D is found in fish with small bones, fortified milk and cereal, and exposure to sunlight. you can try for Music therapy. It is a low-cost natural therapy that has been found to reduce the disability, anxiety, and depression associated with chronic pain.
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