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So done with all of this

JessyLovestheCubsJJessyLovestheCubs Posts: 43
edited 06/11/2012 - 8:46 AM in Chronic Pain
Well I was referred to a doctor in Iowa City from a doctor at the Cleveland Clinic who said I should have a discogram done because my discs looked bad on my mri. He was the first one who ever said anything about my mri looking abnormal. He couldn't understand why people weren't trying more diagnostic techniques with me.

So I went to this new doctor and he said he refused to do a discogram on me because there was nothing on my mri that looked wrong. He said he would do a facet joint block. Well I had it and it never worked, it actually gave me worse leg pain. I went back to see him again and he basically gave up. He said there is nothing on the mri to show that you should be in pain and I'm not going to keep doing tests on you because you're so young. So he won't try any more diagnostic tests on me. He gave me freaking anti inflammatories and told me to come back in 6 months. Do you know how many different doctors have given me anti inflammatories? About 5 now. Do you know how many have worked. None.

So what am I to do now? I kept thinking all it took was the right doctor who would help me but now I believe no one will help me because my mri isn't bad enough. No one will help me because I'm too young. It's too risky to do disco grams and injections on me because they can't see anything wrong. I don't think they understand what bad of pain I'm in. If they understood they would know that I am willing to take those chances. I have to take pain pills every day 3 times a day. I hate them! They think because I'm so young the only reason I take them is for the good feelings. I've been taking them long enough that I don't even get good feelings and more. All I feel is a little less crappy.

Not to mention that every doctor lectures me on the pain pills. This doctor told me to stop taking them and just take the anti inflammatories. First of all that's really dangerous to just quit cold turkey with Tramadol. Second, I would probably end up in the emergency room if I couldn't take the pills. The pain is so unbearable when I can't take the pills. I have forgotten them before and gone on long drives and it is absolutely the worst thing ever.

Ok so that's what's going on with me now. Nothing. I'm at yet another dead end. I am so done with all of this. Why even go back to the doctor? No one will help me. Just because this wasn't in there med school books they think this isn't possible. Am I going to feel like crap the rest of my life? I'm 20 freaking years old. It's ridiculous. The doctors don't listen. They don't care.

I'm sick of talking about my back pain. I'm so sick of dealing with this. I just want to be done with all of this.


  • Jessie you are not alone. Most of us wish this would all go away, but it doesn't.

    Have you tried contacting the doctor at the cleveland clinic who said you needed the discogram? Maybe he could talk to the doctor he referred you to. He must have had a reason for wanting this test done.

    Don't give up. I've had the same problem with doctors dismissing me. But with persistance you will find the right doctor for you.
  • I'm so sorry about all the trouble you are going through and also that the doctors can't seem to get past the "age" thing- back problems do not discriminate. But please do not give up; there has to be an open minded doctor around there. If it takes going to another city, or even the Mayo Clinic..go ahead. You are worth it. I can't see why they complain about giving you Tramadol since technically it is not a narcotic. Anyway, hold your head up high and keep fighting because your pain is real and you deserve to be treated. Take care
  • I wish better pain care for you and will lift you up in my prayers. If you were in SoCal, I'd get you in to see my pain mgmt. doc. He frequently reminds patients that not all pain appears on MRI's and we understand so little about the human body despite our arrogance that Western Medicine knows so much.

    He even put a spinal cord stimulator in a 17 year old girl to help her.

    Is your pain burning or stabbing or dull or what? Can you tell if it's nerve pain or biomechanical? Has anyone tried Lyrica or neurontin for you? Cymbalta or Savella? Topamax or any of the other anti-seizure meds that have collateral effects on pain?

    You must be exasperated and I don't blame you one bit!
  • So let's break this down into smaller parts and figure out what's going wrong here.

    1) Diagnostics. Doctors disagree all the time, you're not going to be able to fix this. How many doctors have you visited total? Of those, how many have agreed that your MRI is clean? You should be searching for the truth in your MRI, not looking for problems just because they make it easier to get your pain treated. Make sure to keep that your priority.

    2) Pain meds. One of the biggest frustrations seems to be that you're having difficulty communicating what is and isn't working with regards to pain meds. Did you tell them the anti-inflammatories were not working and they disregarded you? If so, it might be an issue of assertiveness combined with your age. Maybe we can brainstorm some better ways to script that so that they'll get the picture. If not, you need to tell them what has not worked in the past.

    3) Long-term management. Does your doctor have any plan to manage the pain long term? Have you done a good long stint with physical therapy at a quality clinic? Other than the facet, have you done any injections or other procedures?

  • Thanks everyone here's some answers to your questions:

    -We already tried to go to the Mayo Clinic. They said they wouldn't accept me because of my MRI.

    - My doctor from the Cleveland Clinic moved and he doesn't work there anymore.

    - My pain is an intense dull pain that is hard to explain. Recently my back has started cracking every time I move my right leg. I also get sharp shooting pains all over down both of my legs.

    - I have tried neurontin.

    - Yes obviously I told them that the anti inflammatories don't work.

    - I have seen so many doctors in the last 5 years I can't even remember all of them. Only one has said he saw something on the MRI.

    - I will not do anymore physical therapy. I have been 6 times sent by different doctors even after explaining that it makes my pain worse. Every time I've gone the physical therapist is confused as the why the doc sent me. The last one I saw told me, "Well you can do these exercises, but I don't really think it will help."

    - Yeah I've had an epidural injection
    - I've had a bunch of different back braces

    - I am looking for the truth in my mri. what do you think I'm doing?

    - I have told them what works and what doesn't work. I am being assertive. sheesh.

  • JessyLovestheCubs said:

    - I have told them what works and what doesn't work. I am being assertive. sheesh.

    Oh, that's right. Well, good luck to you.
  • After my back gave out on me and my leg started hurting and started feeling numbness in my foot my Dr. sent me for an EMG/nerve test. That same day I saw the Neurologist and after saw 3 Pain Management Drs and had many different meds to see what would help since I wasn't a candidate for surgery because my MRI wasn't that bad. I'm on Cymbalta which has really helped the leg pain and numbness a lot. I would keep looking for a Dr. to help you. This recent Pain Management Dr. also injects my SI joints and my hip area where the sciatic nerve runs along and although the MRI didn't show the herniated disc I had, there's still nerve issues since I still have leg pain. What did the first Dr. from the Cleveland clinic say what showed on your MRI? Anyway can you see him again? Don't give up looking and pray you find out what's going on so you can get proper treatment. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • jlrfryejjlrfrye ohioPosts: 1,110
    I think I would start by asking for my medical records from the Cleveland Clinic. Perhaps it will state what the Dr believed to be the problem. With that in hand maybe you will have better luck with the new docs, Im sure it will be documented in your records why he feels you need a discogram. Even though this doctor is no longer at the clinic his medical records should still be available.
    Good luck
  • Hi Jessy,

    I am so sorry to hear that you are once again... hitting a dead-end (so to speak) with finding a good doctor who will help you out.

    If you have your records from the Cleveland Clinic and your MRI results, I would seriously think about looking into seeing a Pediatric Neurologist.

    My 16 year old son was referred to one for his Trigeminal Neuralgia and the man is such a great doctor. Yes, my son felt weird when we first went into his office, as there were mostly children in the waiting room. Once he met his doctor, he felt right at ease and so did Mike and I.

    This is only a suggestion, Jessy. It's terrible to hear that your age seems to interfere with proper treatment and you know, I'm sure there are others out there in your shoes. I know you are older than my son, but only by a couple of years.

    Pediatric specialists have tons of patience and generally have outstanding bedside manners with their patients and their families. Once you explain the dilemma's you have faced, I can't help but believe they would check you out.

    Just my thoughts...

    Don't give up... keep on trying, okay?

    Hugs to you,

  • Thanks everyone for being so positive and not snarky :)

    I did have my records sent from the Cleveland Clinic to my doctor now, but he still disagreed with it. The doc from the C.C. and the doc I'm seeing now are really good friends even. The doctor at the clinic said he believed I had a fissure in my L5 that happened when I played soccer and over hte years I have made it worse and worse. He said he sees this all the time. People will get injuries when they are young that won't pop up until later in life. That makes so much sense because I played competitive soccer very rough, I was on the ground a lot of the time. No doubt that I took a bad fall one day. I've always believed it was a soccer injury because I had to quit playing because of my back.

    Has anyone else every taken the anti inflammatory called Diclofenac Sodium? I haven't started taking it yet. I am worried it will make me too drowsy to go to class.
  • My wife took Diclofenac Sodium earlier this year. It didn't make her drowsy. She's back on Naprosyn which seems to work better for her.

  • It doesn't make me sleepy either. My brother takes it and it helps his pain and he's had back fusion. Good luck.
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I can certainly see why you are getting irritated. It is infuriating when you know how you feel, but nobody else either understands or believes you. It is like banging your head against a wall. I feel for you, being so young that is a lot to deal with. Do you have any older adults that could go with you for moral support and maybe to stress to the doctor how crappy you really do feel? Sometimes, that helps.
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