I am scheduled for an evaluation Sept 14th for SCS and Pain pump. I have read alot of posts and most were excited to get this done. Has anyone who was scheduled for this eval. not sure if this is something they really want to do? Yes, I can say with all certainty being in less pain would be wonderful. I have just had bad experiences with every single surgical procedure I have ever had. I am truly not overreacting at all. Rotator cuff surg. 3-19-03 developed blood clot size of softball, surgeon waited too long to do anything. PT had to be stopped shoulder froze up. Had manipulation and rotator cuff was retorn. Have yet to get it repaired. Cervical fusion C5-6-, c6-7, rt. vocal cord severed and paralysed. Pain worse than before had this 2008. Foot operation many years ago, woke up during surgery exactly when surgeon was sawing the bone to break big toe. (that was freaky). C-section my first surgery major blood loss had 3 transfusions. (that was a close one)
Currently I am unable to ambulate have a wheelchair which I cannot push due to very weak muscles upper body and torn rotator cuff. Failed fusion and now C8 problems with nerve root damage. Pain radiates down left arm to fingers. Both hands numb. Lumbar L3,L4,L5 & S1 daily pain approx 8+ neurosurgeons (have had 3 opinions feel I would not be candidate for surgery at this time) surgery may complicate situation rather than make it better.
So my final step is SCS and pain pump. Have had every therapy possible.
So as you can see I am scared to death. Do they knock you out for the trial? Due to the loss of my rt. vocal cord I am so scared of having tubes put down my throat for fear of losing left vocal cord. Right now I can whisper. I cannot lay flat as I choke on everything even my own saliva.
I am sorry this is so long and I know I probably sound like a baby. I know I should be proactive in my own disabilities and I am only 49 believe me I would so like to have a quality of life because right now I can't say my life is all that great with the exception of my wonderful husband who makes life happy for me as much as possible. I tell myself everyday to have a positive outlook and I pray alot. I also read the posts on this site and there is such an outpour of love and compassion.
If anyone can share their experiences and I am a realist so please be honest and don't sugar coat anything it would be so helpful for me. I don't post often but I really need help and I know I can ask for it here. Thank you so much for any feedback.