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NEW info on intrathecal pain pump....

tarheelgirlttarheelgirl Posts: 474
edited 06/11/2012 - 8:47 AM in Pain Management
First, Ron I know you would rather us seaarch a topic and read rather than start a new topic...but I've read everything there is on this site regarding pain pumps and I really want NEW info since the devise has recently changed. Plus, I'm suren more have had the pump implanted since the last long thread...
S

So, everyoone who has a pain pump, can you tell me the "good the bad and the ugly" once more about your pain pump. Edited but wanted to hear from the members of this site. I have so many questions.

*did you get off all oral meds:?
*is the devise uncomfy when you sit, esp if you lean forward:
*are you able to walk better?
*are you getting good relief??
*if the catheter comes out, is it simple to place back?
*are the med refills usually covered under most insurance as a copay?
*do most insurance companies approve the surgery? (I know the last two questions will depend on MY insurance)
*any other advice, experiences would be deeply appreciated.

Oh, and what is the pschy eval for?

Thanks!

EDITED

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Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.


Post Edited by Moderator haglandc
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13

Comments

  • Hi Tarheelgirl,

    I just wanted to echo your interest in fresh info on the Pain Pump (same thing as Intrathecal, right?).

    After yet another set of injections that seem to be off the mark, and as I approach my one year anniversary of my fusion, I am becoming more interested in a Pain Pump.

    Thanks,
    Dave
  • yes, they are one in the same. What do you take now for pain? If you dont want to publically state that, you can PM me...just curious. I'm up to 320mg of oxy a day...it would be nice to get that 1/300th of a fraction...it's got to be much better on your body (liver). I don't know...just want more info.
  • Thanks for asking the the questions that I have been looking for.

    Julie

    PS/Edited

    EDITED

    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.


    Post Edited by Moderator haglandc
  • Hi There, Edited LOL My questions are following:
    1) I would be able to drive because the drugs would be in my spine and not being metabolized like they are now. (Now I am not comfortable with driving). Is that true?

    2) What is an estimate of how much this can run a month once the dosage has been set and stabalized?

    3) On a scale of 1-10 how uncomfortable is the injection through your stomach to the port?

    4) How does the skin handle the injections in that same spot month after month with out breaking down? I have issues with scarring real easy inside and out.

    5) During the trial, is there some immediate relief felt? Will it be extreme or just slight?

    6) Will I feel painless enough to return to work (currently retired disabled 2 yrs) or painless enough to enjoy life but having to still watch what I do so I don't make it worse with the euphoria?

    7) Those that have had a pump, or currently have one, would you do any thing different?

    Thank You,
    BP

    EDITED

    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.


    Post Edited by Moderator haglandc
  • Excellent questions Bep! I hope we get some answers for all of our questions soon by someone.
  • I had my pain pump put in about a year ago and I was very excited about how it would improve my pain. First of all, it takes time for the doctor to titrate your dose to a level where you feel comfortable with the least side effects. Please keep in mind that everyone is different and some people will need more time or higher doses. After surgery they will have you on 1 mg a day of intracecal morphine for example. At your follow up office visit they may increase it to 1.3mg or so. The titration process is really slow- I started at 1mg of dilaudid daily and about one year later I'm at 4.4mg. Not everyone will get up that high, but from what I understand is that there is no limit on how much to give, but it is left up to the doctors' discretion. You can find a goldmine of personal accounts at Edited.

    My pump refills fall under office visit and all I pay is my normal copay, while my insurance picks up the rest.

    If the catheter dislodges, you will have to go thru surgery for them to fix it. My doctors says it takes something traumatic as a nasty fall or car crash to do that. I was always scared that it would come out but now I know it takes a lot for the catheter to come lose. If that happens, one of the early signs is that your pain increases and you experience withdrawal symptoms. They will bring you in for a dye study to confirm the catheter coming loose.

    As far as getting off oral meds, I did wean off my ER medicine, and have recently cut back on my Oxycodone and this has been done while my Dilaudid dose was increased. I have run into more pain and suffering due to fibromyalgia and more meds like Lyrica has been added. I hurt all the time and sometimes it's hard to tell which condition is causing more pain.

    The pump refill is not so bad. It takes about 10 minutes or so and the most discomfort you feel is some stinging. I haven't had any problems with my skin due to the injection sites. After surgery, the incision will feel sore for around 3 months; it did in my case and I called my doctor and it was okay to use a heating pad on the area for a few minutes at a time for the pain. If you have increased incision pain, always call your doctor first.

    Well, I hope this answers some of your questions because my fingers are numbing up. Take care guys..

    EDITED

    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.


    Post Edited by Moderator haglandc
  • I'm limping along on 60mg of Hydrocodone per day. That tells me that you have been suffering much more than me. However, I keep telling my doctor that I'm in pain for more than half of the day because my medicine doesn't last very long. So, maybe I would be taking a lot more if I was allowed to be more comfortable.

    I recently had a very invasive set of injections and it obviously didn't work as intended. I'm at day 7 and I should be beginning to feel better by now. Instead, my entire lower body aches severely, and my usual lower back/buttock pain is more intense. Still, based upon what you've shared previously, I know that you are really suffering and I don't mean to complain about my pain to you. That's for certain!

    I hope you are able to pursue this and get some meaningful pain relief!

    Take Care,
    Dave
  • Oops! I just had my first post ever edited and I don't even know why. It might be good if you copy it and message it to us so we remember what NOT to say. I don't even remember what I posted :) Sorry!

    Reformed1- I wanted to comment on your post- Pain is different for each person. Just because your managing along on the med you are doesn't mean you are suffering any less than anyone else on something stronger or harder to get. It just means that is what you are being treated with. I chose Norco because my NS could fax it to the pharmacy and it was a lot less driving for me. If it was percocet I would have had to go and pick it up personally each time.

    Incidently I am manging (poorly now) my pain on similar doses of the very same med. On the weekend I use more (take it every 6 hours) but during the week when I have to drive I use OTC meds during the day(since I have to drive and I don't want to break the law). Therefor usually by late afternoon I am almost out of control with pain before I take my pills. Plus it does nothing for the nerve pain.

    If the pain pump is an option for me- and it doesn't have the side effects of feeling drugged I would be all for it. That is why I am trying to find all I can about it. I doubt I am a surgical candidate- I don't even want to be at this point. I know I have to do something. I want to come prepared for my first PM appointment. I would rather be in a leadership roll than in a following roll when it comes to my health care and a Pain doctor. I don't want to be put on all different kinds of meds and drugged out of my mind. Scary!

    Julie
  • Links, solicitations and recruitments to other websites or groups is not permitted. This thread was very quickly becoming a major solicitation for another web based group.

    My apologies for not sending out an individual message to you at the time.

    "C"
    No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums
  • Ok- the yahoo group. Got it.

    Thanks,

    Julie
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