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hello its good to find people

flowerfflower Posts: 460
edited 06/11/2012 - 8:47 AM in New Member Introductions
that "get this"and relate being a spiney. family and friends or normals just cant relate , it makes you feel so isolated with whats happening to all aspects of your life, the physical, emotional, the losses and of course the pain with longstanding , current and ongoing spinal issues. its a scarey ride and im hoping to feel " at home " here , where you all seem to "get it ". ive read a few posts and can certainly relate and empthasize with many of you .hoping to help when i can , gain some insights and get some support
flower , nice to be meeting some of you :T


  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    Welcome to spine health. There is a lot of information available on this site and plenty of us members who will be more than glad to help you if we can.

    What spinal issues are you dealing with?

    If there's anything I can help you with please let me know.

  • to Spine Health. :H
    We are a friendly community who are always willing to share our experiences and help to support you through difficult times.

    There are also a lot of informative articles on various aspects of spinal problems and treatments.

    Tell us a bit more about yourself, such as which part of your spine you are having trouble and any treatments that you have tried. That way people who have similar experience can share what they have learnt.

    I think you will be glad that you found us. :D
  • Welcome, Flower, to a great place to get and share information and support. Jump right in and contribute. Am looking forward to hearing what kind of spine issues you're dealing with. :)

    2009 Foraminotomy C6-72010 PLIF L4-S1Multi RFA's, cervical inj, lumbar injLaminectomy L3-4 and fusion w/internal fixation T10-L4 July 17Fusion C2-C5 yet to be scheduled
  • O:) i am new to this site but,so far from what i have read so far i fit right in.flower i am somewhat in the same situation as you.i have many back and leg issues ddd,facet joint,nerve damage bulging disc and something goin on with my legs that no doc can tell me what is wrong with me sometimes i feel as though i am going crazy!!!its in my neck ,thoracic and lumbar i also have a tumor inside my bone in the thoracic which causes sever burning in my left shoulder every doc i see says its nothing to worry about can you or anyone else help me on here give me some insight on what i can do?all nerve test come back normal dont understand?have had really bad tremors or spams as they have called them that will cause my body to jerk uncontrollabe docs ask if i was makin myself do it and now my right knee faces all the way to the left while my leg is straight and now my body is severly twisted need helphas anyone had any of these issues or known anyone
  • hurting , confused and in pain . have you had any ct scans or mri scans ? can you find out more about this tumour from yor doctor to explain his reasoning as to why you shouldnt worry or maybee see a new spinal specialist.
  • thankyou for you warm welcome and offer of help , really appreacite that
  • Hello health lovers,

    Most welcome in our healthy family.

    wish you enjoy every post here.:)
  • for such a warm welcome . :) gosh where to start. i have a 30 year history of cervical and lumbar, and a few years ago of thoracic. my problems that have been scanned are cervical and lumbar, not thoracic yet, (gosh i dont really want to no wats happening there , but i will get scans there in the future) have severe issues from c1 to T1 and more advanced from c4 to T1, narrowing of all cervical discs , sclerosis of srticular margins and stuffed facet joints , loss of cartilage , bone on bone, the exit foraminal have osteophtye encroachment and narrowing on both sides, with osteophytes bulging posterioly between c5 and t1 which is impinging on the spinal cord ,and the lateral nerve roots.
    narrowing of of exit foramina with osteophyte encroachmentcompressing the nerve roots between c5 and t1. the cervical is from a ct scan done 21 months ago.

    lumbar is a mess (neurosurgeons words) lol loss my glasses , yes they were on top of my head , der .
    lumbar, l2-l3 ostoephyes and and hypertrophy of facet joints, l3-l4same as above, l4 - l5, 20 year old massive disc shattering leaving me with complete loss of motor function in legs and no reflexes and permanant nerve damage , refused surgewry and made somwhat of a recovery over 3 years to regain use of legs . continuois pain /probs since . complete loss of disc at l4 - l5, due to long ago sequel to massive disc rupture and loss of endplates leaving vertebrae rubbing on vertebrea , osteophyte contacting l5 nerve root left and right sides.mild scoliosis in lumbar. early aquired spinal canal stenosis at l4-l5 and l5 -s1.
    gosh i should have condensed this post lol , got on a roll .
    comments , support , very welcome , flower :)
  • Welcome to Spine-Health. This site has some great articles and videos that you might want to check out and you have indeed found a place in the forums where we can relate to what you're going through.

    We have all faced family, friends, coworkers, etc. who have no idea what it's like to be a spiney, be in pain all or most of the time as much as they may try.

    But here, you aren't judged. You'll be offered support, share in others' experiences and find friends that you may have for life.

    I wish you the best with your spine issues and am glad you've found us. If there's anything I can do to help you, don't hesitate to PM me. I look forward to seeing you around the forums.

  • for your warm welcome and support, it truley takes another spiney to understand the complex issues , fears , pain , limitations that impacts our lives on such an ongoing basis . greiving for what we use to be able to do and frustration at what we cant , having to find that place to mentally and physically adjust. thats hard stuff. i was allways active , but having longstanding spinal and cervical issues , ive had time to adjust and work things differently , untill 2 yrs ago when things got much worse again.
    i have checked out some of the fine articles here on sh and find them very helpfull and informative
    flower :D
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can.as you can see you are already making new friends and finding out facts here on SH. good luck with your pain problems. stop by anytime. Jenny :)
  • yeah thats how they found the tumor by accident when checking my cervical.but no doc even my pain doc will not listen they blow it off saying that it will cause no problems that everyone is born with them?if the docs had to go through these thins they might change what they say.they say with the ddd that it should not hurt or cause any problems but when you have bone on bone rubbing together it hurts.but i have come to except these issues because they are not going to do anything about them but i wish they would check into this tumor i looked it up and there is 3 diff types and i dont have a clue what mine is.do you know anyone that has had one that could tell me something about it?thanks bunches for responding good to have someone to talk to.
  • and so glad that you found S-H forum. I see you have had, much like me, years of spine issues and yes I sure agree with you, it creates major losses in our life and truly grieving for the ways it affects our life mentally and physically. And you fully know it truly is "hard stuff" when it really restricts us from being the "always active" to not being able to do so many of the things we could do and love to do!

    Flower, I liken it to us being "Spine Warriors" for the courageous challenge it is and the ways we continue to live keep on keeping on and in spite of conditions/disease, surgeries, long recoveries, adapting and adjusting to living life as well as we can and not losing the spirit of life, in spite of our spine challenges!

    Your sharing the roller-coaster of learning to "adjust and work things differently" and then...to have things change... and "get worse again. has been my path as well especially in the past 5 yrs with my C-spine and with unfortunately a motor vehicle accident 3 yrs ago.

    I believe you'll find some great people, "spineys" who truly do understand the challenges, the path and who truly become #1 support in facing the challenges that are as you are experiencing, and this is a good place to give and receive support with the uncertain spinal path!

  • thanks for your kind posts
    janelle , i like your spine warrior analogy and i can say i have for 30 yrs been a warrior dealing with my spinal pain/ restrictions /adaptations. but 2 years ago, when i thought it couldnt get too much worse, well it did, and now i feel like im losing the battle.
  • your in good company here we are all friendly and have a tremendous amount of knowledge regarding pain
  • straker, thanks for the welcome :) yes that beast the pain, u no when its that bad (as you no) thats when i wish anybody , some body would just cut into my spine and fix it. i think a lot of you can prob relate to that. my NS says i have to have the fusion that ive been putting off, and i also need more fusions on other levels too. like you,im extremly limited in what i can do, but I AM very concerned of the outcome of going thru with them.
    .Im really pleased for you that youve found a surgeon that will be able to help you. best wishes
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