I'm new here and from Australia so hopefully you'll understand the medications etc...
anyhow I have chronic lower back pain and nerve pain in right leg. right leg weakness, numbness and sometimes tingling. I have had this pain for 2 years, i have had alot of investigations and am currently having more, tomorrow im having nerve conduction studies.
i am here because my specialist in my regional town (im in hospital in city, 4hrs drive fro home but was air ambulanced here) presurred me into having nerve root block injections with local anaesthetic and steroid. i say pressured because my nerve damage/injury was caused by a very negligant anaethetist who for my casearean birth had 7 very painful attempts at epidural, hit nerves twice which felt like electric shocks down my leg. (this was my 3rd caesarean and had no problems with the others) I was scared at the thought of more needles in my back but he was cutting my pain med so felt like i had no choice. this procedure was very painful and the dr said he could tell it was very inflamed and damaged.
well the nerve blocks flared it all up and here i am.
so, my problem. i am on fentany patches, one 25 and one 12 and 300mg twice daily of lyrica. my nerve leg pain is pretty good i think thanks tp the lyrica, but it got to this dose to get good relief. when i was admitted it took alot of pain meds to get on top of my psin. they did some mri scans and referred me to a pain dr. he basically cut all pain relief including from tomorrow cutting my fentanyl patch to just 25. i am still having killer stabbing back pain at times still reducing me to tears
my leg at times is so 'dead' i can't make it do anything! the plan is to send me back home in 36 hrs with pain relief cut to the one patch, the lyrica and 20mg of slow realease oxycontin twice a day (i hope this is the case) and nothing for the times when the pain flares up.
they have enrolled me in a course called ADAPT whixh is 3 weeks full time. suppossedly the demand is very high and outpatients have to wait 18 months to get in. i am enrolled to start in 4 weeks. its is basically about managing chronic pain medication free. in fact they want you off all pain meds by day 4 of course and help you withdraw.
are these courses really this good? what am i going to do for the times when the painis so bad i am bed bound and in agony?
I have 2 small children including one with severe cerebral palsy. my husband is supportive but said to me he cant wait for me to do the course so he can 'get his wife back"
please help! any advice from others who have been down this road? are these courses that good? how am i gunna manage this level of pain with no meds?
thanks so much if yoy got this far, it ended up being long!