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Not sure where it goes

daisy maeddaisy mae Posts: 109
edited 06/11/2012 - 8:48 AM in Lower Back Pain
Hello all,
I'm not sure where this goes, so I assume it'll be moved if I messed up terribly by putting it here.
My questions are , what happens when you have ct and mri and it does show that things are going on but the drs seem to poo poo you and dismiss what you say. "Well everyone has bulging discs"..and whatnot. I am no dr but I do know that not everyone is wired the same, meaning my nerves may be off to the right and yours to the left. Isn't that right? So anyways, for 2 years now I have been on the fight to get better. Ia m confused by so much. Too many drs OWN opinions and not enough hard facts you know? Can anyone explain to me why that over the last few months my back pain is now ON my spine? Like, the actual bones, prior it was to the left and the bones ached but it was to the left and almost muscular and now..holy cow batman..BONES BAD. I have too many other things going on now. I was supposed to get my very first esi on the 30th and I don't know if it's possible now. I am having to see a cardiologist urgently. I was prepped for a surgery (not related to spine) and the anethetist refused to put me to sleep and was gravely concerned with my bp. I am 34 and it was very high as was my pulse and it has been for motnhs now and my pcp just said it was no big deal. Here's this dr totally fearing my life..he even called the card himslef infact it is HIS dr. I believe God intervened there..but anywhoo..I don't know if I'm allowed to get the injections now as I wait for the cardiologist to call me to run tests. Does anyone know if I am still able to go through with it if I have some sort of heart/adrenal issue? (the dr said he had a hunch about the adrenal)..Sorry this was so long winded and boring. I'm just lost and forever crying. And...after my colonoscopy..I sit here STILL unable to have a bm without harsh laxatives ..this has been going on for roughly 9 motnhs. I am at the ned of my rope! I see him again on Wednesday.
Geez, as if it wasn't bad enough..I cannot exercise, hell even pick up my babies..and sex..hmm I won't even touch that one, always cranky and angry and jealpus of everyone who CAN do the things I want to but choose to sit around and not exercise...and now..CAN'T even poop. Seriously, God is punishing me for somethng I clearly have done..what? I don't know......


  • Just wanted to say sorry you're having high B/P and possible adrenal problems but you have to see the heart specialist first to get that taken care of and probably an endocrinologist for your adrenal if that's your area causing the high B/P. Also see the GI specialist and get it checked out. I'm also not able to exercise or do much due to my back issues so you're not alone there and even with my epidurals I'm still limited. I also went through a temporary high B/P phase and had to take meds for that but am now off them.

    Please know you're not being punished as back and other issues affects us all. Please take it one day at a time and do what you can with your children and taking short walks close to home. If your B/P is high it needs to get under control and you would need to be cleared for anything by the Cardiologist. I'm thinking about you and prayers it will all come together for you. Take care and wishing you peace and positive thoughts. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I tend to follow Charry's posts and advice closely, due to her experience in the medical field. What she advised in her first paragraph, is probably going to hit home with you.

    I am very sorry to hear of what you are going through. And, by all means, I don't believe for one minute that you are being punished. Please don't think that, k? Back pain is the worst and you have a lot of other medical conditions going on.

    Being in chronic pain with other medical issues going on, means we need to take each day as it comes... and sometimes even down to the minutes of the day.

    Please let us know what transpires... when you see the cardiologist, etc.

    I don't know if this will help you, but I am in bed or on the couch the majority of the day. It's been like this for almost 2 years now. (My 2 year anniversary from my fall and surgery is November 23rd). I try my best to distract myself throughout the day and if I happen to have a good day... I take advantage of those days by getting out of the house for a walk in a store, a visit to my folks house, a friends house, etc.

    Better days will come and we will help you get through the rough times, as much as we can. It tugs at my heart about your children. I had to let my two go and live with their father in Iowa. (I am in AZ). It was the hardest thing I have ever had to give up in my life, but it was necessary and in their best interest. I communicate via FaceBook with my darling daughter and talk with my son all the time. Thank God for internet and cell phones! My son just got his first car a couple of months ago and he's out and about all the time.

    I will keep you in my thoughts and prayers, too. I have some inspirational quotes I am going to send you, as soon as I can find them... lol.

    Vent away... any time you need. You have come to a great place here for support!!!

    Tammy >:D<
  • Oh Daisy Mae, I am so sorry to hear that you are going throught all of this at the same time! I have no knowledge about the BP thing but I know a little ;) about back pain!

    And I agree with Tammy....Charry is VERY wise!!

    If you ever need to scream or just talk you can PM me any time!!
  • I can relate to what you are saying. I had heart problems for a solid year, chest pain, tests, hospital, meds, and then I went to a university hospital here and got it fixed. I was finally good for a month and then BAM, I hurt my back.Just twisted and ouch!! So for two years I went through tests on my back and through 9 surgeries for other problems. They finally figured out I had torn discs by a discogram and had a fusion. Two years and no relief, and now I am having fusion 2 on next two levels.
    Did I feel angry? You bet! Think I was being punished? Yep. I recently had a bladder surgery and no happy time with hubby for six weeks. Well, that is when I have surgery. We havnt had relations, worth mentioning for 4 years. The pain effects everything in my life. My grandkids, and friends and family. But, I learned a long time ago, as Tammy said, Take advantage of the good days, and rest on the other. It really can suck sometimes, but it all has a way of working its way out.
    I am hoping the cardiologist can find your problems. And the adrenaline problems get checked out as well. Keep your chin up, and know that you can PM me at any time. I have been through enough to write a book over the last 30 years. 30+ surgeries. But I will try to help you anyway I can. Happy Thanksgiving and hoping to hear from you that things are better soon!
  • Can't help with B/P issue - but so sorry you are going through all this :(

    My spine the bone part like yours started to hurt and we found I have bone spurs in it...that is what is creating the bone pain in mine.
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • Howdy!

    Have you gone to the cardiologist yet? On my surgery for my C5/6 they screwed up the EKG (tech put the leads on wrong!!), and so for a week, I was waiting for the big one! This booboo on her part turned out to be a good thing believe it or not. In my family (I didn't find this out till after!) high heart rates, and low blood pressures are the norm! Hurmf!

    At any rate, the cardiologist will probably give you a stress test, maybe an ECG and go from there. For me, I was put on a Beta blocker (Toprol - I just requested and switched to Atenolol - my system likes it better) to reduce the heart rate and raise the blood pressure. I think if the BP is high and heart rate is high, they give you an Alfa blocker, but if the BP and heart rate are opposite, they give a Beta blocker. I felt 20 years younger within days! I was amazed. No problems since then.

    Please don't freak out until the jury is in as they say with the cardiologist, okay? Please let us know how it goes. Support *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Thank you all so much for your kind words! It really feels nice that I am not alone in this awful place!
    I just phoned the cardiologist office to ask again IF they had set something up..and guess what? The girl does not even have the referral! So of course I started crying I am at the breaking point. She was so kind she's going to phone the hospital and track down the ref for me and try to call by the end of today. She says that I need to be seen PRIOR to any type of pain injection as the meds used are not heart compatible with those with heart conditions. I am so upset! I specifically explained my current condition with the anethetists' secretary that I have really high bp and pr, she assured me he was fully qualified to make the "call". It really felt as though she was trying to SELL me on it, I know it sounds rather funny but really in the pit of my stomach it's whatI thought but ignored it. I just question someone who has to be so persuasice.

    Iowarobin- I can relate with the bladder surgery. Although I had more done and THAT was when all this terrible stuff started. I apologise if whatI'm going to say grosses anyone out, maybe the guys should stop reading..haha. Back in Oct 2009 I had a surgery for a lax opening and bladder prolapse. It was called a perineorraphy I also had an anterior and posterior repair , I had a rectocele that wasn't known about till I was on the table. I also had a tvt done with mesh (monarc). I had a total reconstruction done down there and if I could turn back time and change one thing..I would never have done that! I would be happy peeing my pants and not feeling my husband during intimate times. Really ladies, can you even believe it? THAT surgery RUINED my life. All my problems came from that day. I was totally bedridden for a full 4 weeks..just terrible. Now I'm left with a busted back, and a vagina and perineum that requires steroid injections every 2 months because I am left with deep vaginal fissures that never healed and scar tissue in my labia. I am considered chronically constipated and now only have bms with laxatives, harsh ones at that. My gi said to me yesterday (seen him too) that he fears for my overall health as it is very damaging to my system but he said "What are you supposed to do". He's sending me to Toronto to see another specialist..it's almost 5 hours away! How can I sit i the car that long? I can't even go for a nice 10 minute drive?
    I pray that someone figures this out as I really feel I'm at the end of my rope..at 34. I have asked my husband for a divorce as well.
    Thank you all for hearing me out. Bless
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