Well, I am very pleased to have finally found a good Neuro closer to home and had an appointment this a.m. for the severe brachial plexus and shoulder blade pain which is radiating down my left arm and creating major nerve/muscle pain and damage down into my hand.
It's finally the bright light in the tunnel and was so pleased in the thorough physical exam he did and his ability to focus on the scapular / under arm muscle and nerve problems on left arm / hand.
He's confirmed some suspicions I have had and believes:
#1 C-Spine Surgery will most likely not remediate the nerve/muscle problems in my arm/hand with the obvious muscle/ligament problems I'm having back of shoulder blade and into under my arm.
#2 Elbow & Wrist Surgery is on table until full diagnostics accomplished.
#3 HNPP hereditary neuropathy is wrong focus
Focus needs to be on:
Brachial Plexus & Suprascapular/Thoracic Muscle & Rotator
Diagnostics to be done:
- MRI Brachial Plexus - Scapular Area
- EMG NCS full test (not just arm to hand)
I am finally getting support of what seems to be the culprit for the severe nerve/muscle spasms and the severe episodes (5 now) where I can't move my arm and I have severe ulnar/radial nerve problems.
Re: Diagnostics MRI & new EMG NCS
Diagnostics are going to certainly tell us more. I'm pleased that a new complete EMG/NCS will be done (by the Neuro himself) previous one done in June by Ortho Dr's office done by Physiatrist was incomplete and he did not do the paraspinal muscles, brachial/scapular area upper and back shoulder to my arm - - not good, bypassed the real area where I have had constant pain. And in fact, I knew it would then isolate improperly and as results showed, they diagnosis targeted elbow unlar nerve compression and wrist.
So glad it will be the Neuro doing a full one as well from physically examining me identifying the constant pain source I have been having in the back scapular and under my arm!
I live in a small community,we just got a new Neurology Center and a Neurologist who is specialized with the neuro-muscular and movement disorders. I understand many have been pleased with the comprehensive diagnostic work this Neuro does.
So I am very hopeful now that I will finally know more about what I feared was not coming from my C-spine 6/7 levels, but from back of my shoulder and under my arm, where all the pain starts & not from my neck! - - believe we are focusing on what is the real culprit to my arm/hand disability. Unfortunate my OS and NS did not suggest pursuing the scapular/shoulder muscle/nerve area when they said prognosis was not good to remediate or reverse the nerve/muscle problems I was having in my arm! As well Neuro they referred me to bypassed it also! Not surprised I have seen this disconnect and narrow focus with OS/NS and some Neuro's!
Looking forward to my new and complete NMG NCS and MRI and finally moving in the right direction after 6 months of severe pain/disability !!