Hi friends, haven't logged in since my Myelogram, been feeling absolutely awful. Seems every step forward pulls me 3 steps back.
Myelogram showed recess narrowing due to OSteophytes bilaterally at fusion site, (L4-5), hardware placement & anchoring screws looked good as viewed centrally.
L5-S1 has degeneration (which I knew) and discogenic narrowing, radiologist states this is probably a congenital variant. (I do have that 6th vertabre in lumbar region.
L1-2 had a previous protrusion 4mm in canal, (this was measured in Sept, about 3 weeks post fusion, also this protrusion has been there for at least 4 years. Now it has grown and is 5.2 mm and is touching several of the cauda equina nerves as it passes the area. radiologist states it is a fairly prominent right paracentral protrusion.
if you remember, post ALIF I've been suffering bladder issues. I've started bladder rehab & retraining, as well as pelvic floor rehab & stimulation. not sure if its helping, had to stop therapy due to infection.
post op I've been suffering bladder issues, frequency, retention, spasms & pain. additional test show sphincter dyssenergia and atonic bladder. I am now on my 4th uti in 3 months! strong strain, with over abundance of white blood cells & crystals in my urine. also one of my fallopian tubes is dilated and causes more pain. Constipation is out of control and GI doc has me on regimen.
pain doc suggested ESI at l1-2, which I did last Tuesday - no relief!
sorry I'm rambling here, just frustrated! my nerve pain in leg has increased since ESI. I was to do another injection tomorrow, but due to my infection, doc called today to reschedule till 12/28. Then he called back to say he us not sure he wants to repeat?? he wants me in office on the 27th to discuss other options....he had his nurse make the calls, So I'm not even sure of his thoughts, treatment plans...... frustrated!
on 12/2 I left my Myelogram cd with my surgeon with a nice note. He was expecting it, originally he did not know about the Myelogram, but when I saw him on 11/30, I told him I had it on 11/22; ordered by pain doc and he said he wanted to review films..... still haven't heard from him (over 10 days - I did leave a message with his nurse to confirm receipt of the hand delivered cd, I guess I have to call again!)
my left leg nerve pain is increasing, not sure I WANT to stay on nuerontin, makes me, dumb, forgetful, NOT me, I cried for two straight, this is not me. also I am now dizzy, almost fell several times, not sure why, antibiotics, neurontin - which I recently increased, or just more leg weakness.
I know we are not doctors, nor are we able to give medical advice, but MAYBE someone has similar issues .....so I don't feel so alone!
I go to doctors almost every day sometimes 2 a day, meds are driving me nuts and I'm unable to return to work in any capacity at this point.
god bless you all and grant you healing & relief.
I look forward to your caring & insightful replies.
ps. excuse any & all typos its like near 3am and sleep deprivation is taking its mighty toll and then adding a tax....LOL!
missed you my fellow spineys!