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Joint hyper-mobility syndrome

Has anyone had any positive results from ANY treatment for Joint Hyper-mobility Syndrome? I was recently diagnosed in my 50's. It came as no surprise, but instead more of an "ahh, that's why my shoulders used to dislocate in high school and why I was sooo limber!"
Anyway my lower back, S1, L5 is my problem. Over the years I've had 3 injections but not long term relief from anything. It was explained to me that Chiropractic wouldn't help so much because of my "laxivity". I get a dull, unbelievable hot ache that seems to stem from the right dimple above my butt. Sometimes sitting is unbearable. Would decompression help as in an inversion table? Hot or cold compresses? Supplements? Or is this my new life? :S


  • There is hope for you, it is Prolotherapy injections and your SI problem is what I had until treated with Prolo. Many Doc's either haven't heard of it or put it down because the studies are unconvincing but if a well trained Doc treats someone with Prolo they should improve greatly. Prolo is a safe and natural way to strengthen ligaments and the only way I know of to treat ligament laxity. You can go youtube and search on "Prolotherapy Lecture" for a very good discussion of it. If you need more info feel free to PM me.
    Good luck
  • I too was going to suggest that your pain may stem more from the SI joints than from L5 - S1. Those joints depend on the strength of ligaments to hold them in place, so if you are hypermobile there can be "issues."

    Another treatment that is being used, primarily by sports medicine doctors, is the platelet-rich plasma injections. I haven't tried it yet for my SI joint problems, but am thinking about it in the New Year.
  • Tetonier, I'm pretty sure PRP is used speed healing from an injury. Prolo on the other hand works great on injuries that haven't healed correctly by basically creating inflammation and getting the body to reheal the ligament. A sort of do over. :)
    Definitely good for chronic joint pain. My avatar is a shot of my back the day after a Prolo session.

  • Yuppers those SI joints are right where you find your pain...those butt dimples are the spot.

    I had my right SI joint fused and I'm much less prone to intolerable pain. Way more controlled now with low dose pain meds. Oh sure there is still pain but now I can be quiet and it will settle down.

    There is a way to tell a bit more if it is SI joints...lay on your back, bring your knees up so your feet stay flat. Then try to cross your leg over your knee at a right angle. If its difficult or not possible...then seek a doc who knows about SI joint treatment. And believe me I went to plenty who didnt have a clue. My doc was an orthopedic surgeon, who I gladly endured a 150 mile round trip to receive treatment.
  • I have severe sacroiliac dysfunction, as well as osteoarthritis and spurring of those joints. Yes, it Lyrica and tramodol. There aren't too many specialists that are very skilled when it comes to SIJD, but those that are, can offer you sacroiliac ablations(denerving the joint) or like in my case(i'm 28) they are actually going to fuse my sacroiliac joints in march to stabilize them. So there are options, just not easy ones. I wish you well in your search for answers.
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