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Surgical visit no DX no options

sinatrafan44ssinatrafan44 Posts: 64
edited 06/11/2012 - 8:49 AM in Chronic Pain
I have been in constant pain since 2008..Have had ACDF surgery c5-7 in 2009..very little relief from surgery. Last 8 months have had arm pain, mostly in the left arm from my shoulder down to my hand..most recently my right arm has been in pain and numbness in some of my fingers..The only thing that showed up on my mri was a slight bulging above where i had my surgery..the surgeon today said that could not be causing my symptoms and based on the mri he does not know why I am in so much pain, I think he believed my pain and all he could say was that it could be from the minor spinal cord injury I had at the time of the accident.. So where do I go from here?? I feel like I have no option and am stuck with a life of pain...I am afraid and the pain has taken over me..i no longer can enjoy life like I used to and I am tired..To hear today that nothing can help that I have to live with it,,well it just was like the knife was stuck in the back..I am taking narcotics, but they only take the edge off..I can't be on narcotics for the rest of my life..i am only 46..Can anyone offer me any hope..I guess I should see another doctor but who..if there is nothing "showing" how do they treat you...the pain is real..What do I do about work? there is nothing to show the pain...I feel so sick..Any suggestions..thanks for listening..Amy


  • Amy I am soo sorry!! I will pray that they can do something for you!!!! You will be in my thoughts!!! I hope you get some relief for the holidays!!!
  • First off, I *do* feel your angst and pain. May I ask you this? Have you had an MRI in what's called a "Positional" MRI? What this does is instead of "laying" down recumbent, you are sitting, and as such have your spine under load. By example, when I first blew C6/7, the recumbent MRI didn't show but a tiny little protrusion...protruding on nothing! I whined and my doctor (NS) agreed, and I underwent a positional MRI - there was the hernia - on the cord, bigger than stink!

    Of course, no guarantees here, but just another option maybe to look at? Have you had any nerve conduction studies done yet? If done correctly, can give a LOT of information to your doctor or surgeon as to what might be going on. We're here for you. Gentle *HUGZ* of support!!

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Hi brenda..thanks so much for all your support..I am having a nerve conduction study done next week..I had one done before my surgery so maybe this can give some other option possibly..No i have never had a positional MRI..the ortho said that the mri only showed a possible bruise of the cord..Bu ever since my accident I have be hyperreflexive in my arm hand and leg refexes..to me that indicates something nerve related...thanks again..hope you are doing as good as you can..Amy
  • You're Welcome Amy,

    Hopefully some answers will come from the study. Hopefully the new year will yield new answers! Happy Holidays!!

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Thanks Brenda and Polly..This site is a God send ..I feel so validated here..Happy holidays to you both and I sure hope everyone can find relief to their pain issues..Amy
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