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Need help bad

Fed UpFFed Up Posts: 2
edited 06/11/2012 - 8:50 AM in Lower Back Pain
For months and months I have been waking up in the middle of the night with horrible back pain that also hurts down to my legs, so bad that I can't move my legs to the side without actually moving them myself with my hands and that hurts real bad. I also can't sit up when it happens. I usually just try to move to the side and get comfortable again trying to find a position that doesn't hurt that bad and cry myself back to sleep. On the pain scale it is about 1000.
Then during the day all the time I have regular lower back pain that is probably on the scale 1-10 about a 6-7.
I have been to my dr a few times over this, he gives me stretches to do and he does them there also, they do not help. I can't take the muscle relaxers because I can not wake up from them at all for about 2 days. I have diabetes and will not wake up to fix a low or high sugar, I have a job and dependents and responsibilities that I need to take care of and I am the only one who can. I also have taken so many over the counter meds that my stomach is crap now and if I take them I get horrible stomach aches. I have told my dr this over and over and over again but yet it seems he doesn't listen. Now when I call I get the run around and never a call back.
I am at my wits end and can't live like this too much longer. At times the pain is so bad and I can't do what I am supposed to do I often wonder if it would be better to just end it, especially since I think I may never get any help.
Has anyone ever had this kind of back pain and how do you get your dr to listen and help?


  • Fed Up- Welcome to Spine Health :)

    Can you see a different doctor? The fact that you are waking up with "dead" legs is concerning. I am having the same issues with my hands and my NS is very concerned. Add the extreme pain and I think your doctor would be more concerned.

    Diabetic Neuropathy is also a possibilty. Is your diabetes controlled? My husband is a diabetic and has never had the diabetic neuropathy, but we know some one who's lost all the feeling in his lower legs and will soon be having them taken off. It is nothing to be playing with. How can you take care of your family then?

    I would demand an MRI and tell him to take you seriously or you will be finding a new doctor first. Then if you feel like your docotor is ignoring you then see another doctor.

    Good luck,

  • I'm with Julie. Is this your primary doc telling you this or a spine specialist?

    If it were me I would stop wasting my time with the present doc. Sounds like he has written you off. I'd look for a new primary and get a referral to a spine doc. Preferably a Neurosurgeon in your case since there maybe a possibility of the diabetes coming in to play as Julie mentions.

    You don't have to tolerate one bad doctor and most certainly not let them run your life. You have exhausted only one avenue. You have many left to use.
  • What you are experiencing is one of the "red flags" my Dr told me means to get immediate help if it ever happened to me.
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • dilaurodilauro ConnecticutPosts: 9,836
    You said that your current doctor is not listening to you. Ok, then what has he told you to be your problem?
    A doctor cant (should not) just not say anything. They need to have some rationale for any of their decisions.

    As the others have said, what kind of doctor are you currently dealing with? PCP, Specialist,etc

    You mention you have had these problems for months. Prior to that did you have any similar problem. Did this just crop up on you by surprise?

    It also sounds like you have not had any diagnostic testing done to determine your problem. Nerve pain, Diabetic Neuropathy can be hide to distinguish between a spinal problem causing the pain. Some of the medications (ie Lyrica) can be used to help with both of them.

    - I would have a detailed discussion with this doctor. Be firm, be polite, but you have a right to know whats going on with you. If you approach this doctor in a reasonable fashion, explaining why you need some answers and you still do not get any satisfaction, then the time to look for another doctor is here.

    - Do NOT insist on anything, a MRI, medication, etc.
    For starters, most doctors will balk at any patient making demands. Secondly, ordering a MRI is not like it used to be. The doctor has to justify it to the insurance provider before it is approved. So, if anything you want the doctor on your side.

    - Pain levels exceeding 7. When this is a daily occurrence and what you describe at night, you should be looking at going to the Emergency Room. Pain level of 7 is on the upper end, but when it is constant there is a problem.

    - What to do? End it? Nope, I hope you are saying that in jest. For you stated that you are the one that needs to provide for your family and have a lot of responsibilities, checking out is not the answer.
    If you do have those thoughts, please contact the Suicide hot-line numbers provided below
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Hi, Fed Up. Back pain is a difficult thing to deal with, and we can all relate. It's too bad some doctors think back pain sufferers are hypochondriacs or something to that effect. I agree with dilauro about having a polite chat with your doctor, and if the outcome isn't to your satisfaction, finding another doctor. As for ending it all, here are two things to think about: 1) in the hands of the right doctor there's a solution, whether it be physical therapy, pain management or last resort, surgery; 2) I read a while back that suicide is the permanent solution to a temporary problem (words of the author of the article). This Board is a great place to vent, which has helped many of us to endure despite disabling pain and, in some cases, aggravating experiences with the medical profession (I've sure had my share!) Best wishes, and hang in there. >:D< Love & Hugs, Essmoe >:D<
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