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I had my consult with the pain pump doctor today, and he is recommending a pain pump using prialt as the medication, at least to start with. He feels like in my situation, this would give me the best relief for all the neuropathic pain I have. Said the trial for prialt is only 4 hours, and it is immediate relief if it helps.
I have read some horror stories on the net about Prialt, mostly that it makes people psychotic. We discussed this today, and he said the other medications scare him more than Prialt. With prialt, it can be stopped immediately with no side effects. It is not an opiod. At first report of any adverse reaction, the patient is to come right in and the medication would be stopped, no appointment necessary for any of his pain pump patients. He said the mild chance of a psychosis reaction, there are basically NO other side effects of this medication. And, if all I used in the pump is prialt, it only has to be filled every 6 months. Amazing.
Contrast that with morphine and baclofen in the pump, which is something that I may need to cover my other pain and spasticity. My doctor told me there are many risks with those medications. If you run out, it could be immediately fatal, especially with the baclofen. If an error was made in the amount administered, morphine could go straight to your brain and kill you. He said these things don't happen frequently, and he has never killed anyone by running out of medicine or administering the correct dose, but his point was that the risk was higher with these medicines than something going wrong with the Prialt.
So now I'm seriously considering the Prialt. I haven't heard it discussed on these boards. Does anyone have experience with this med in a pain pump?
Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!