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Total frustration, depression, and fatigue.

candrews922ccandrews922 Posts: 21
edited 06/11/2012 - 8:50 AM in Chronic Pain
I read the letter about chronic pain, and it being put to normal people to understand. I agreed with some of it. I was found disabled in 2008, and back dated to late 2006. I have had chronic pain at some level, so far back now, I don't even remember being pain free. I have had injections which caused me to go into spasm, when it comes to my spine. I have issues in my neck and lumbar area with ddd and arthiritis. I have myofascial pain all over the stinking place. What doctors I have seen don't want to give you pain medication for pain, because they don't want to deal with possible addictions. So they just let you suffer, and suggest pain management teams that want to do expensive procedures involving injections only. Treatments that might help such as acupuncture, and massage aren't covered by your insurance. So unless you have the money for those treatments, their out.
I had worked since 14, served twice in the military, and never stopped till I was 43. That included having a baby and still doing it all at almost 29. My back, which was first injured when I was 14. What a coincidence. Finally gave out when I was 46 almost 47. I had another baby in 2003. She was a total surprise for all, and at 43, an OMG for my body. She really took what little was left in me out I think. I stopped working when I was 4 months along, and was never able to go back. I have been working a 4 day work week for awhile, before getting pregnant because I just couldn't handle 5 anymore. I had a 45 mile drive to work also, that really made my days long and tiring. I always worked hard, busy, on my feet. I would skip at least 1 break a day.
Now I am home, and my now 7 year old is the only thing that keeps me going. My husband is 10 years older than me, but has been blessed with great genes. He shows and has very little wear and tear for his age. He still works 6 to 7 days a week most of the time. He has no idea what I have gone through, or still go through I a daily basis. He doesn't really know what my limitations are. He is just immune to it all. Well this is all I can write for now.


  • Well make doctors not get prescription drugs because maybe can complicate your situation with the addiction. Mention Findrxonline that every month grows the percentage of people who take medications and have problems side effects causing pain medication like vicodin, percocet, lortab, among many that exist. My recommendation is that you follow the treatment you can improve your pain in a healthier way.
  • you're suffering so much. I'd keep at it until I found a decent doctor. I had a 360 3-level spinal fusion a little over 2 years ago. My doctor has been wonderful about prescribing meds for me. Before surgery, when I was in constant agony, I had fentanyl patches, which provided decent relief over a 3-day period instead of having to pop pills continually. I was prescribed hefty doses of oxycodone after surgery and yes, for a while, I was dependent on them because I still had a lot of post-operative pain. As I healed and got more limber, I was able to decrease the pain meds until I only need the occasional pain pill if I sit way too long or do way too much. I rarely take them any more. I have a standing prescription with my doctor that he never bats an eye at when I call to request a refill. Now, mind you, I probably call him once every four or five months, as I don't need them much, so I think he knows I'm not an addict. My point here is that it is possible to take strong pain meds without becoming addicted. More doctors should recognize this.
    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • I totally get what your going through, and I am there know trying to find a way to improve my quality of life as depression has really hit me hard since I am at home and very isolated. The folks on this site have been of great comfort and support to me.

    I am also ex military and I understand about financial limitations for good effective treatments. I also very much understand about how fearful and reluctant so many doctors are to offering you medication for pain even though it's obvious you need it. To me it's like a cruel joke to let someone suffer when they can write on a pad and give you some relief. Why can't they just make you aware of the risks, sign a paper saying you understand those risks and want to be treated with pain meds. I mean they stand behind a woman's right to choose abortion because it's her body, well we're in pain and yes it's our bodies as well.

    I was also wondering if you signed of for VA medical care? I also didn't know if you knew that they offer accupunture and even pain meds if you show like and mri that shows a physical need.

    I'm going to be honest I go to the VA for somethings that they are good at, like treatment for my PTSD, but there are many things I do not like about the VA and since I am disabled I have medicare thank God so my NS is not in the VA, nor or some other specialists I see. Just offering some information in case you didn't know.

    As far as pain meds which I do take, there are good doctors out there that will help but you have to find them. Also the best way to get good results from a PM doc is to have a refferal form like your NS explaining your problems so they know your not just a drug seeker. I have had to change several docs because of theirlack of empathy or just not wanting to use pain meds much or not long term.

    I am so sorry you or not getting much help or relief at this point, but if you haven't you may want to see a NS wether you plan to have surgery or not so you can have an up to date opinion and get help finding a PM to help you.

    I hope this helps in some small way.

    AL S
  • Post removed. Solicitation is not permitted on Spine-Health

    Ron DiLauro, Spine-Health System Administrator 02/15/11
  • Could someone in the admin team please ban this spammer idiot. It's an RX online site.
  • I know this is a very frustrating journey, but for the sake of you AND your family, you need to stay proactive and keep looking for options. I know this is sometimes easier said than done, but I can relate to much of what you're dealing with; my issues started when I was pregnant with my first child in 1983 and have continued from there. I have spent a small fortune looking for relief, and have found it in some of the places I least expected to; if you are able to at least try some of the options that have been recommended, you may find that they can get you into a routine that you can continue at home (i.e. stretching, etc.).

    As for not prescribing meds for pain, there is a very good quote that I came across, and it is so true:- "No evidence supports fear of addiction as a reason for withholding narcotics when they are indicated for pain relief. All studies show that regardless of doses or length of time on narcotics, the incidence of addiction is less than 1%." Another is: "Respect for the patient's pain tolerance is crucial for adequate pain control." (PAIN: A Clinical Manual for Nursing Practice)

    It frustrates me to no end when I hear these stories; I know pain meds aren't the answer for everything, but sometimes they'll at least give a person a bit of relief in order to regroup again.

    Take care, and good luck - if you feel your doctor isn't listening, it is probably time to find someone who will, if possible.

  • I agree with everything Tracey just said. Unfortunately, sometimes I feel like a suspect rather than a patient.
    AL S
  • Im glad you have your husband to help you out. Chronic pain can be very exhausting. You have been through so much. Thank you for your service. I know this whole process can seem discouraging but keep searching for answers and allow those around you to help (your husband, family, friends). I understand what you are saying about being frustrated with not getting pain meds when you feel you need them. You just have to keep trying. You mentioned massage being expesive. Yes it is but if you have a local university close by they may have some students in training that offer massages for cheap. Or at least cheaper. Some websites may even offer special daily deals for that type of stuf. Plus maybe the hubby can help you out in that area. I hope you are feeling much better since your last post.
  • One thing you may want to mention is Nucynta. It comes in 50, 75 and 100 mg tablets. It came out in May of 2009 if my memory serves me correctly. (I have just taken one and two Lyrica so bare with me.) I was on hydrocodone for a while and was upt to 5-6 a day before going to a pain management doctor here where I live. The Nucynta, to date, is non-habit forming and does not have the side effects as the others. I have been on it now for a little over a month and since I'm taking the maximum dosage per day, they have now added Lyrica to the mix. I am now taking 400mg of Nucynta and 300mg of Lyrica a day and when the meds are working, I have little to no pain however, I cannot function, think, I'm dizzy and/or asleep. It knocks me on my a$$. But mention the Nucynta and see if they will give that too you. Keep in mind, you have to have a script for each prescription so they can't call in a refill and I was told to guard my script for March like a $500 bill. Just a suggestion.
  • Have you looked into Low Level Laser therapy as another option for pain relief? These "Cold" lasers work much differently from other lasers in that they do not utilize heat whatsoever. The beams are able to penetrate the skin and biostimulate on the cellular level. With all you have been through, you may want to see if such treatment is available in your area.
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