Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

In this Discussion

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Newly diagnosed syrinx

I am a 51 year old mom of 2 recently diagnosed with a "large C7-T3 syrinx without evidence of associated mass, abnormal signal, or enhancement" and a "small broad based disc bulge at T4/T5 with minimal thecal sac indentation." It goes on to say the syrinx is 10 mm by 11 mm in its largest diameter. I haven't see the neurosurgeon yet because they want to do MRI's on my brain, cervical, and lumbar first. I have had pain and tightness between my shoulder blades for probably a decade at least. At first it only showed up when I had been doing a lot of impact exercise. Gradually it became painful to run, skip, jump. Now it hurts pretty much all the time, especially if I bend at the waist while standing, or look up or down. I also have burning pain in my sternum area and in my rib area.

Doctors have told me very little so far. Is this a large syrinx by comparison to others? Are my symptoms caused by the syrinx or the T4/T5 bulge?

How scared should I be? What should I do or not do right now? I have the MRI's next week and see the neuro right after that.

Any advice or reassurance appreciated.


  • But, can I ask how it's going for you?

    I was diagnosed with a syrinx on Monday from my T3-T4 to my T10-T11 and just saw my neurologist at Mayo on Wednesday. I'm wondering how you're doing. Did you have surgery? If so, how did it go? I'm so frustrated with doctors at this point over not feeling believed since I've been trying for over a year to get answers. How has that process been for you? Was this something easily found or did you have to fight and suffer through months/years of people looking at you like it was all in your head? I don't want to offend, only see if it was similiar for you. My psychological therapist and I laugh at the fact sometimes that she would no doubt give me a cleaner bill of mental health than any one of my physical doctors would. I heard from so many specialists, right up to a local neurosurgeon who refused to even give me a T-spine MRI, it was all in my head.

    I hope things were easier for you and I hope you are doing well in your recovery!
Sign In or Register to comment.