I am a 51 year old mom of 2 recently diagnosed with a "large C7-T3 syrinx without evidence of associated mass, abnormal signal, or enhancement" and a "small broad based disc bulge at T4/T5 with minimal thecal sac indentation." It goes on to say the syrinx is 10 mm by 11 mm in its largest diameter. I haven't see the neurosurgeon yet because they want to do MRI's on my brain, cervical, and lumbar first. I have had pain and tightness between my shoulder blades for probably a decade at least. At first it only showed up when I had been doing a lot of impact exercise. Gradually it became painful to run, skip, jump. Now it hurts pretty much all the time, especially if I bend at the waist while standing, or look up or down. I also have burning pain in my sternum area and in my rib area.
Doctors have told me very little so far. Is this a large syrinx by comparison to others? Are my symptoms caused by the syrinx or the T4/T5 bulge?
How scared should I be? What should I do or not do right now? I have the MRI's next week and see the neuro right after that.
Any advice or reassurance appreciated.