Hi all. Wasn't sure where to put this, hope here is okay.
I have seen a spine specialist and pain mgmt doc for the last 4 years. He's been awesome to me, but recently some of my health problems have extended beyond his area of expertise.
A few months ago I had pneumonia, and since I have felt and hurt worse than ever. My joints are swollen. I have low-grade fever almost every day. I'm dizzy and weak, and my fatigue is crippling.I know it's to be expected after such an illness, but it's been 4 months so I went to my primary and he has referred me to an Endocrinologist (I have adrenal insufficiency or Addision's Disease, we're still testing to see which), and to a Rheumatologist.
Well, the Rheumy was today, and I have never seen such apathy and dismissive behavior out of a physician before...and I just spent 13 days in the hospital, so that's saying something!
I was not asked to put on a gown or even take off my shoes so he could look at my ankles/feet, much less knees and neck. Every question I asked was circled around. He was the kind of doctor that instead of letting me tell him how I felt, he told ME how I felt! I went in with six pages of typed notes, and it took me longer to get my hubby a Subway sandwich after the appointment than the amount of time I spent in his office.
I asked him about fibromyalgia since it is on both sides of my family. Also asked him about Ehlers-Danlos which was suggested to me that I might have in the hospital. He gave me a one page copy out of a book on both subjects and then didn't mention either again! I mean, I know more than the info he gave me, or I wouldn't have brought those conditions up! And not a word about whether or not I could have either. Just a paper with definitions *?!*
It felt like he was ignoring the possibility that I might be suffering from more than one condition. He just kept saying "Well, you have the DDD and stenosis"...
How do you make yourself heard with doctors like this? Do you even try or should I just move on? He has a great reputation according to my PMD. So is this the kind of behavior I should expect from a Rhumey???