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CinnamongirlCCinnamongirl Posts: 51
edited 06/11/2012 - 8:51 AM in Depression and Coping
So, I was hurt in an accident a few years ago. I have been in pain everyday since. I have gone to doctors and physical therapy. I've had shots and procedures that failed and more shots. And I finally said enough. I can't stand being stuck with needles and getting minimal relief.

My surgeon says I need a fusion in my LS spine. But, that I should wait until I'm older. In the meantime I'm in constant pain with an allergy to opiates. The only way I deal with it is to balance my activities. The more I move the more I hurt. This means that most of the time I'm not doing much.

So, I applied for disability since the chronic pain is debilitating. And I get denied. Twice. Now I'm doing a review hoping to get my case accepted. And now I find out I have to see more of their doctors.

I am sick and tired of being poked and prodded by every person under the sun. I'm tired of having to prove the obvious.

So, this guy hurts me in an accident. I ask for help. And I end up being the one having to prove something. Really? I'm ready to scream.

I was just so upset I did what my surgeon tells me not to do. I got all stressed out. He told me not to stress because, when you stress the muscles around your spine tighten. And that I have inflammation all up and down my spine. And that the tightened muscles irritate the inflammation and cause more pain.

So, now I'm sitting here with a cup of hot tea. And pain is radiating from my neck all the way down to mid thigh with sciatic pain. I need to just relax. But, I can't help that I get upset when yet again I'm asked to prove the extremely painful obvious.


  • You're doing the right thing in dealing with stress by journaling and venting it here to people who understand where you're coming from as you're Surgeon's right about the stressing causing tense muscles and in return more pain.

    I understand though as I had to have a Independent Medical Exam by an Orthopedic Surgeon and it was a little uncomfortable doing the exam but most of all know how it feels having to jump through hoops getting disability. I hope you get approved and feel better soon. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • HI cinnamon girl,

    Vent away we all understand your frustrations. I am wondering if your allergic to opiates if it is the reason why your surgeon doesn't want to do surgery? I am curious how they would control the pain post surgery?

    I am sure you know the younger you are the harder disability is to get as they assume you can be trained to do something. Not sure of your educational back ground but if you have a degree it will be even harder.

    I hope you didn't settle that accident case and that person is still paying for your medical?

    Anytime you feel frustrated or need to vent we are here to listen as we all get the level of pain your in. Hopefully your more relaxed and tomorrow is a better day. Take care.
  • Cinnamongirl,

    Like was already said, coming here and venting might hopefully cut some of your stress down. Many of us here deal with chronic pain thanks to our lovely spines and pissed off nerves, so we get you. *HUG*

    As for the IME. I had to go through one with an Orthopedic Spine Surgeon, and as it turned out, he discovered my back issues forming in addition, he almost echoed what my Neurosurgeon listed as my not being able to work anymore! These doctors (most of them) have their own practice, and are there to do the exam honestly, not cover or try to prevent disability awards being awarded. Be honest with the doctor, and don't minimize anything. Please let us know how it goes.

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Hiya, Welcome to Spine Health, I have the upmost simpathy for you, and i am sorry that you have so much pain. There are so many of us who have a history just like you descibe! You are right , why should you suffer like this, when there is someone else at fault. Try CAB they do help fill out the DLA forms as i was told its the way you word your answers on the forms, CAB will do this for you and go through it with you. Hope this is of some help to you!

    Angie xx
  • Thanks guys I appreciate the comments. Surgeon wants to wait for surgery due to my age and the fact that it will limit my mobility. What he'd give me post op since I can't have opiates I have no idea.

    I've gone the route of shots. And they really didn't help. I went to a pain specialist.. and got more shots. I had pretty much the same results from those shots. And since I have injuries from my neck to my hip either one injury sets off another or one hurts more than another. Or sometimes they all hurt at once.

    I haven't seen my surgeon in a year. I just couldn't take the shots and minimal relief anymore. I basically, decided nothing was really helping and I was tired of being stuck with needles all the time. As a result I have to balance my activities with rest.

    This week I go back to see my surgeon. I confuse myself when I say I'm not looking forward to it. It reminds me of when I first got hurt. Of all the tests. All the attempts to bend me. How much my body has changed. And I'm really not all that excited about shots shots and more shots again if he wants to start me on that regimen again.

    It just makes me angry and sad. I've even gotten to the point where I don't remember what it's like to not be in pain. It just drives me nuts.
  • SavageSavage United StatesPosts: 5,448
    It is so difficult to jump through the hoops required for disability, esp. when pain is constantly screaming for your attention. I can't concentrate on....anything. :)
    I went to a lawyer for the disabily. They don't get paid unless you win, and if it is within 6 months, they don't make any money.
    That happened with me. I was accepted within 6 months. Also, if it takes longer. you are possibly eligible for retroactive payments.. a lump sum.
    When it takes longer than the 6 months to be approved, the lawyer is paid from the disability benefits. You don't pay anything out of pocket.
    It's really win-win!
    Good luck to you!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Hi, and sorry for the pain you are in.
    Like tamtam said i hope you did not settle at least the medical part with the ins. co.
    They are responsible to pay for your care and treatments.

    Remember tho never give up.
    Your in pain, and you need financial assistance, keep on fighting for disability, and get as many doctor's and lawyer's on your side as necessary to win your case.

    It's not fair that people have to suffer, due to the action's of other's, but it is a fact of life. So hang in there, and keep seeing your doctor until you get to maximnum improvement that is possible.
    Contact a lawyer also, to fight for disability for you. Like Savage said, "they dont get paid unless you get paid"

    Good luck to ya.
  • Good luck with your Disability case! I have had 4 back surgeries which resulted in C4-C5-C6-C7 fused together with plates and screws and cadaver bone, L3-L4-L5-S1 fused together with rods, screws, spacers and marrow from own hip. I also have DDD, Stenosis, Arachnoiditis, Seroma, Hematoma and two more herniated discs pushing on my spinal cord at C7-T1 and L2-L3 with DDD and Stenosis at those levels also. I have not had surgery on the C7-T1 or L2-L3 yet, It is in my near future though. I have been denied SSDI at all levels and have been sent back to work as of 3-21-2011. I have documentation to back up every single one of my problems and I was still denied. I guess that I will have to suck it up until my next surgery. I would like to voice my opinion about SSDI on here but I would probably never stop cussing at them. All I can say is "GOOD LUCK" I wish the best for you.
  • Thanks everyone for the input. Much appreciated. I've since seen my surgeon for the first time in quite awhile. Ironic too because one of my big toes has gone numb. Like completely numb. Not the occasional tingling numbness I'd sometimes get. So, when I spoke to him I asked about it and he told me my sciatic is now pinched causing the numbness in my toe.

    He took more xrays. Said I'm not standing or walking right at all. He stuck me back in a brace. And said I really need to get disability to go through. He's sounding like he's going to really encourage fusion at this point once disability goes through. Whereas before he was encouraging me to wait as long as I could.

    I'm really torn on the fusion. I've heard 70% - 30% of repeated surgeries and not the success stories. And can he even fuse L5 S1 with my pelvis being twisted? Then I want to discuss with him what about my cervical discs? As well as the bursitis that has yet to go away despite shots and time. And what about all of the SI joint pain? I can't even leave my leg fully extended without the ache and then shortly following that the shooting pains.

    And social security is sending me to more doctors. It's exhausting and frustrating jumping through hoops like this. To have prove over and over again that I am in constant pain. It's hard to do all of this stuff with pain demanding my attention. I suppose that's enough of me complaining for now lol. Thank you again for the input.
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