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What is happening to me!!

ashtonaaashtona Posts: 55
edited 06/11/2012 - 8:51 AM in Chronic Pain
Ok, so I am 36 years old, I have a 3 year old boy and am on 100mcg Fentanyl patches every 48 hours as well as Morphine IR 15MG's. This has managed my back pain nicely but there is a lingering pain in my leg which started out as a minor annoyance.

This has escalated into full blown pain and other symptoms. When I put pressure on my left leg, I get pins and needles in my left foot. There is a pain that shoots from my lower left side of my back, down my leg and into my foot. I am at a point now where walking is not an option.

I converse with my Dr via e-mail and his initial thought was inflammation in the nerve, stretching, OTC anti-inflammatory meds and heat and ice. Oh and rest, which I cannot do because I burned all my PTO on my back issues.

It is getting to the point now where I am literally going insane. My family is on hold, my life and career are teetering on the brink of destruction and I don't know what to do.

I made an office visit appointment with my Dr for Weds morning but this morning, the pain was so bad, my vision turned white and I began wobbling. My wife ran over to escort me to my chair where I sat and finally got a grip and managed to drive to work.

What is this pain, why won't my unbelivably strong opioids manage it and what is my Dr going to finally do?

I have to assume I am not the only to ever have this pain so what am I looking at here pain wise and med wise?


  • The only thing you can do is see the doctor and let him evaluate what is going on.
    Sorry, I know that doesn't really help much. Can you get you appointment moved up to today or tomorrow?
  • Hey there...you are in need of a visit to a specialist. Not sure if you are in the US or not but if you are in the USA, look for a referral to an orthopedic spine surgeon or neurosurgeon.

    Not being able to walk and excruciating pain is indication that things are not getting better.

    Without knowing your background, I suspect your diagnosis was one in which surgery failed or was not really an option. However, when your symptoms change like that, it's time to get another evaluation to see what's changed or if your body is just no longer responding to the treatment plan you are on.

    Did you have surgery in the past?

    I'm so sorry you feel so lousy.
  • Yes, it sounds like medication would only mask the problem at this time, and though I understand your circumstances, it sounds like rest wasn't an option, but a necessity right now until you find out the cause/source of the issue so that it can be treated.
    The Dr(s) are going to need to find the cause in order to fix the problem, but once they do find that they may be able to help you more with the pain. The only problem with that, if you are going to need more medication, is tolerance, which is probably why he is saying "OTC anti-inflammatory meds and heat and ice."

    Maybe you can talk to your boss, or have your Dr send him/her a letter concerning the issues you have and are going through. I really do understand as many of us here use to work, and now some of us are on disability and unable to carry on with the same things we use to do. It seems almost impossible at times as we are going through these changes, but somehow we always end up..maybe not "ok" by our standards now, or as good as we thought, but better than where the darkest part of our imaginations had us believing we were headed.

    Wednesday can't come soon enough and you are likely to be feeling pretty frustrated by then. If your wife can help you get a list of questions and concerns together for your Dr., it will probably help your appt. go more smoothly, will show the Dr how concerned you are, and help to keep you focused. I hope you are feeling better soon.
  • As I said, I am literally going insane now.

    My PCP basically strongly advised against surgery. He was so adament that he almost begged me not to do it.

    I have several bulging discs in my lower back, I forget the actually L numbers but in the 5 region I believe. I have DDD which at this point I am beginning to believe is a myth and more of a way for Dr's to explain what they can't explain.

    I have seen 2 orthos and 2 neuro surgeons. The last one I didn't meet till appointment 5 where he came in and said: "yeah, ill do surgery if you want but honestly, I wouldn't advise it. You're too young for surgery."

    They basically don't want me to have it for fear that I will just end up having surgery for the rest of my life every 3 to 5 years.

    Disclaimer: posted from my phone so forgive the misspellings and grammar mistakes.
  • Can you describe your symptoms more clearly.
    Is it in both of your feet or just your left leg?
    Are you able to walk? Does the pins and needles pain still occur when you walk?
    Do you feel numbness anywhere in your legs?
    And another question, what type of work do you do and does it involve sitting a lot? And do you sit on top of your wallet (is your wallet in your back pocket when you sit)?

  • they are pushing on nerves pretty badly. What you describe is what I have daily. Percocett works for me, but that's about it. Neurontin at night, but only at night for it makes me woozy in the head and I must also go to work each day. It's a crappy, lousy deal. Hope yours gets better or they find the right meds for you.
  • I suffer from the same type of issues, but pain meds don't help. I also have DDD and bulging/crushed discs L4 - S1. My OS has given me a couple of nerve blocks whick gave me relief for 3 months at a time. He is willing to continue giving blocks up to 3 times a year as long as they help. He said the good news is we know whre your pain is coming from because the block worked and if they stop surgery should provide relief.
    The issue with surgery is you put the adjacent discs under stress and risk further degeneration and additional surgeries. That may be their reluctance.
    However if you can't function/have a life because of the pain let them know, does it make sense to suffer during your prime years just to get "old enough" to have surgery. I am 49 and had a partial knee replacement, soo many Dr told me I was too young, but I wanted my life back. Now I'm taking the same approach to my back problems. Good luck to you.
    laminectomy c4/c5 2008, ACDF c4-c7 Jan 20 2014 sched
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