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how much is too much

snoopyssnoopy Posts: 9
edited 06/11/2012 - 7:52 AM in Neck Pain: Cervical
I everyone, once again I am trying to live with this terrible pain. I realize that it is never going to be cured so I have come to terms with the fact that this is the way it is.. I have severe degenerative disk disease at all levels of my neck. The specialist told me that I'm not a candidate for surgery. I have not taken my meds yet because I have Hep C, which I got from a cosmetic procedure. Lucky me, smiles.. Anyway the less meds I take the better off I am.. My new family doc told me that he does not perscribe narcotics of any kind. So I will be in deep doo doo when I need them. I do have amitriptyline which I did not start yet. I was told that it works for pain in the nerves.. I will start today and hopefully it will help. The family doc will give them to me.. I also have tramadol. I'm not sure about that one yet. If the amitriptyline doesn't work I will try it. Before I start I have to ask my family doc if he will perscribe it for me because it was given to me by I walk in clinic doc. I go for therapy for pain management to a group that meets once a week. I realize that there are many many people that have terrible pain and cope with it much better than myself. This neck pain just got severe the last 6 months, unbearable pain. My neck gets stuck and I have to take both of my hands and force it to move. My necks snaps really loud and most of the day it sounds like rice crispys. I have a whole slew of health problems just got diagnosed with myathenia gravis. This is a terrible disease that affect all of the muscles in your body, sometimes even the heart. The neck muscles get so weak that it is hard for the neck to hold up the head. Lots of fun. I have to wear a neck brace on an off during the day. I try not to wear it too much because the neck could completely freeze up. Not good. In the group I go to everyone is there for different reasons. Mine is to try to manage my chronic pain and come to terms with it. I sat there and listened to some to the others at the group. Some of them had emotional issues and others were on meds so they could deal with reality. I realized at that point that medication is the last resort for me and if I don't try if then I really should not complain. At night when I sleep for a couple hours at a time. That is all I get, never more than 3 hours at a time.. I wake up and my neck is facing backwords, smiles..Like I said I have to force it to turn where it is supposed to be..The pain is crazy. I have no support system at all. Except this forum and the group. I have found out that it is not good to constantly complain, nobody really wants to hear it, including my daughters.. I am not being negative about this reality that I find myself in now, this is the way it is..I try to take my mind off it for a minute or two. I paint, draw, create, write. I find myself being a darn couch potato now. Bur after sitting on the couch for several hours I can't get up and walk because of my arthritis and osteoporosis. I have to walk with a cane sometimes. My pets look at me and wonder what the hell is wrong with mother, lol. I live with 32 birds, 2 cats, and 2 little brat dogs, lol. I'm up to my neck in poop and feathers and trying to dig myself out is becoming a problem because it is hard to do housework, smiles.. Anyway I could go on and on but I will close this long post for now. Hopefully there is someone out there that will not get bored to death trying to read this.. FROM THE HEART SNOOPY
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Comments

  • If you haven't yet I would see a pm Dr. They can and will help with the pain. good luck


    Jim
  • I hear the heartache and frustration in your post, and I have real empathy for you. Counseling is good, and helped me tremendously in coming to terms with all of this. I finally get it that life is better when I control the pain, not let the pain control me. I had heard that statement many, many times until it finally clicked with me. It sounds like you are doing some of the right things to help with this (painting, drawing, writing, etc.). These things will help you as you learn to live with all of this.

    It sounds as if you have a lot going on. I just read a little about myathenia gravis. That sounds like a very complicated disease with a bleak future.

    Snoopy, I take tramadol and can tell you that I have no side effects from it. Sometimes I think it doesn't help, and then I skip a dose or two and am reminded of just how much it does help. For severe pain, it may or may not provide enough relief, but it is certainly worth trying this non-opiate medication. I have found that my doctors have no hesitancy in prescribing tramadol (also known as ultram). At this point, I am going to move to something stronger, because as I said before, I'm ready to control the pain, not let the pain control me.

    I have always taken the personal position that strong pain meds are not for me. I don't have issues with other people using them, but I don't even drink alcohol because it isn't good for us. How can I put morphine into my body on a daily basis? But after the past few years where I have basically lived my life in bed, I now realize that is worse than taking something stronger to control my pain so that I can be more active and functional. I think the key is finding a balance and not looking for total relief from a pill. My point in telling you this is that I hope you are able to get some pain relief so that in turn you are able to function better. It becomes a vicious cycle when we do less, we hurt more. When we do less, we get more depressed. When we do less, we get sick in other areas of our body.

    I hope you are able to get some relief with the tramadol. I agree with Jim that being involved with pain management is good. There are many things a good PM doc can do to help you through this phase of your life.
    Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!
  • Hi there. I want everyone to now how much I appreciate the support. It really helps and keeps me going for another day. This is a wonderful site and trust me without support for somewhere I think we would all be in deep doo doo. smiles. I hope that I can be of help to someone too that needs am understanding friend. Snoopy
  • Be careful if you decide to take Tramadol for pain relief, as it does attach to some of the same receptors in the brain that opiods do, and while that is not a bad thing for a person in need of pain relief, it has the capacity to raise your tolerance if you were to then begin treatment with an opiate type pain medication. In other words, instead of starting on a lower dose you may need a higher dose if you have already been taking Tramadol. There are safe medications a person with HEP-C or other liver issues can take safely and that have no APAP in them.

    It's good that you are in a support group. People helping people is good.
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