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Bummer!! Sitting *use* to be my only safe haven! :(

Aviatrix36440Aviatrix36440 Posts: 5,904
edited 01/27/2016 - 2:55 AM in Lower Back Pain
Well, this bites! Being upper lumbar, sitting with being able to 'wiggle', arch my back, bow it etc., sitting was a position I could handle for more than an hour. Now it is getting as bloody painful at times as if I was standing! Just sitting for a few minutes I have to move around, and it isn't helping much if at all!

I am getting the stabbing/burning pain in my upper lumbar like standing. It actually folds me over! I hope this doesn't mean the "protrusions" have gotten worse? I know it isn't levels below, as I have no pains in the butt, or the back of the legs - all still the back, outer hips, and front of thighs. Am getting more zings to the upper calf's as well. Sigh...

I am getting so tired of the neck (I gave up on the thoracic - it's there to stay) and back fighting for who wins! I know they aren't letting me win! Are we having fun yet kiddies? Sniff...Thanks for listening.

PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.


  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    Since my last lumbar surgery L2-L3 I've had a issue with sitting over 20 min. I have to get up and move around a bit. 5 or 10 min. which drives my wife nuts when we're watching T.V. Thank God for DVR! It's the only thing that keeps me from getting kicked out of the house! ;) But it's just stiffness, not nerves or anything else #:S. I hope it's not the sign of a new set of problems for you.
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Jim,

    I'm your new lover!!! I didn't know I had a fellow L2/3er on here anymore! I'm really L2/3/4, but the worst is between the L2/3. I too am hoping things aren't changing for the bad, but it is both mechanical, and yep, NERVE-dreaded nerve pain too! I feel like a piece of popcorn on here of late. I can post like 2 or 3 posts, and have to get off. Wiggle in the seat doesn't help much if anything anymore.

    As I said, sitting (laying isn't bad by the way) was my safe spot, but that seems to be going. As I type this, I am sitting a little forward, and my thighs are looking at me with the "you're kidding right" type of look. Won't last much longer (online that is)...sniff. Thanks for your well wishes - I too hope you're right! *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • since my recliner has been out of action {as i am waiting fir a repair on it} i have been forced to use an old la z boy recliner and its so uncomfortable its untrue its either that or my back has gotten a lot worse over the last month !
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • *HUGZ* Sorry to hear that! I know for my C5/6, my recliner was my "nest" and my best friend, and my TempurPedic I sleep reclined now. I can't sleep flat - and guessing even though different lumbar levels, you can't either? Sorry to hear too that your back too seems to be getting worse.

    I know with me *most* times I can look in the mirror and know "look what you did silly", but can't put a finger on mine this time - it just hurts more is all I know. Fingers crossed that both of us are in a bad flare?

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    I hope that it is 'only' a flare and that things aren't getting worse. I have trouble sitting also and know how bad that can be. I hope that it improves for you since I know how you love to go RVing. I haven't been able to go anywhere for the past two years that required me to sit in the car for any amount of time.

    I hope you feel better soon. Take care
  • considering its YOUR post that was very nice of you to wish me well .my back has been worse since the discography and i should have my recliner back on Monday all being well .hope by the time you read this you are feeling better
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • I just had to get up and walk a touch as I finished reading your reply. I too hope it's a flare, but I've never really had a problem sitting, so this is new.

    My Neurologist's office changed me again, but not a bad this time - just moved me back :45 minutes - Whew! I don't figure I will have many answers tomorrow, but hopefully scripts to get diagnostics done.

    Speaking of RVing... Hubby is working a shutdown at our nuke plant. He's hoping to get a week off in the next month or so for us to take a week off somewhere in the RV! Yes!!!

    Same for you Ms. Debbie, I hope you're feeling better soon too!! *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Tony,

    Nodding, we have different issues, but issues that at times consumes our time and attention. Something as simple as a recliner - Joe "normal" wouldn't give a second thought. To us, that can be a lifeline! So glad to hear you will get your friend back soon!

    Unfortunately about the same, or maybe a little worse, but working with it. I see my Neuro tomorrow, so hopefully back to moving forward on the progress scale of spiney life! Thanks Tony, you're good people!! :)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Sorry, for just catchin up here with ya...been off the board past weeks dealing with gastro stuff (ulcers from meds)

    Brenda, so sorry to hear the extensive level of pain going on now in your lumbar, that is so tough and knowing what you were experiencing with your back and legs. Makes me sad to hear what is happening right now for you :(

    Hoping your get some answers and treatment on track for your lumbar issues, to help your legs and back and some firm assessment comes for your cervical and thoracic challenges....I'm a prayin there is no obstacle in the way to bring good specialists spear-heading a plan of treatment and healing for you, Warrior Woman >:D<

    Hoping your appt. still stands with your neuro tomorrow. April lst and he is able to focus on all of your issues and needs. Hope he is able to masterfully take care of you as he has done in the past, with keen assessment, good diagnostics and tests and even possibly some non-interventional treatments to finally address what you so deserve - - progressive and positive direction.

    Believin and praying for ya, Woman, you deserve it!!!

    Let us know how your appt. goes :-C - - hope it's still on for April 1 tomorrow.

    May you receive direction, support and relief,

    your Spiney Warrior friend, >:D< Janelle

  • Hi; and so sorry for your increased pain. That schootching around in the seat just dont help no more.

    I feel your pain kinda. My back issues are getting worse with the pain increasing also.
    But mine is in the lower back,butt, and down the legs.

    Anyway best of luck to you with your doctor appt. and hoping they can find a way to give you temporary relief until the inevitable, if thats what it takes for another surgery to relieve your pain.

    Let us know what the doc say's >:D<
  • Janelle,

    You're such good people, you do know that right? The only thing that stands out (was thinking about the last few days) was a couple of days ago I bent down to almost waist level to get some salad fixin's out of the refrigerator, and had this weird "pull and pinch". After I stood straight, and stretched my back, it was forgotten. Dunno Janelle, maybe something happened with that? After losing a level in my neck just yawning, I know *any* movement can cause crap in our spines, especially if weakened already! Grr...

    I was called my my Neurologists office today, and they changed me again - but not bad. (G) I was asked to come in 45 minutes later. No problem - works for me, thanks! Whew!! I have all my medical data together for him to review.

    I was fairly consistent with my back for almost a year, so if sudden changes are going on, it wouldn't surprise me. What bites is this time if my Neuro feels a lumbar MRI update is due, I think they are going to have to prop me with pillows horizontal, as I (if this pain continues) don't think I will be able to "sit" for a positional MRI - even though *I* feel that view would be more accurate to what I'm going through. Sigh...

    Hopefully tomorrow I will have a new game plan started. Wish me luck Ms. Janelle!! Thanks so much for your continued support. Big *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Howdy Sir Jim! Long time no post back and forth!!

    After I finished with replying to Janelle I started to get up to stretch, and ended up folded over. It was funny (yeah funny) in that my cat came over to me meowing and licking me! Until I stood up straight, he kept meowing. I wonder, did he know something wasn't right? Wow!!

    It just bums that my safe 'sitting' might now be done. Grrrr... I feel like I'm in LaMaz (sp) class - hiss-hiss-ciss-ciss-haaa aaaah hiss... My hubby calls my attempts to control pain noises as "human air leaks!!" Love that man! Doctor wise tomorrow most likely just speculation as to where I am at, but hoping to get more diagnostics prescribed to get a new game plan going. I'll let ya all know. Thanks again Jim. Great to see you with us again. Big *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.

  • I hope that your surgeon will have an idea of what is going on with you and will have a plan of action to relieve the pain.

    I remember my surgeon, before my surgery, telling me that if I tried to avoid surgery any longer, I would end up in a wheelchair and that the positions that I could take up to relieve pain (sitting and lying) would no longer help. That was enough for me to give in and accept that I had to have surgery.

    After all your waiting to see this man, at last the day is here. :-) I'll be thinking of you. Do please let us know how you get on.

    I have just today got my replacement appointment to see the neurosurgeon on Tuesday next week.

    I am doing the seated 'wiggle' dance while I write this. :S

    Hoping to hear some good news from you.
    >:D< >:D< >:D<

  • Howdy Ms. Jellyhall!!!

    Most times when I hurt bad, and want to cry to get it out, bing, I let it out. With this I sit on the cusp of tears, and IT is driving me crazy!!!

    As I told Ron in a PM, I feel like a piece of popcorn...I come on, answer some posts, pop off and address my back, sneak back on...damn back starts again, answer a post, pop back off! Sigh..

    Have you ever had the pain that you either coughed a bunch or tossed? I'm in the coughing mode presently. It is funny that when I 'big-time' hurt, my cats come around me - love those guys!!! Tomorrow I see my Neurologist, not the surgeon. I decided to go back to the "trouble shooting" mode to get my game plan going again. I guess my back doing whatever it is doing...this is good timing? Hopefully I'll have a bit of news tomorrow, or some insight. Thanks Ms Jellyhall.

    I know surgery is on the list again, but (sniff) trying to put it all off - I know, fooling myself. (G)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    I'm fused from L2,L3, all of the way down in 3 different surgeries over the years. Starting with 2003-1/19/2010.
    It must be a nerve pinched that I haven't had to endure. Because I've never had the sitting problem you described.
    I hope it's a easy fix! :/
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Sniff.... As I stated in the beginning, sitting was "the" most comfortable spot for me. This is new (3 days?), and it truly is painful. I am figuring something is going on at my present levels as my nerve and mechanical pain is still "back, outer hip, front of thighs, and a touch (when I walk) upper calf's." I have been on the edge of tears since this started. Not sure if it is frustration or the bloody pain that is now constant.

    Lyrica isn't touching it, so guessing more is mechanical than nerve. Not in the mood for Oxy...Yeah, I am a buttmunch with pain meds!!! My hubby fusses I "undermedicate" most times!

    So you too didn't have a problem with sitting? I was like that until 3 days ago. Grrr...now what comes to mind! Thanks Jim!!

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Good luck with your Neurologist appt. tomorrow Brenda. Now as far as I know I have no L-spine issues outside of the occasional muscle spasm, and once in a while my lower back will hurt for anywhere from a day to a few weeks, but I have never brought this to my Drs attn. because I never felt it was serious. Now I am reading your post and after having this pain for going on a month now I am starting to get pretty frustrated..So, thanks to you I am going to begin journaling these issues for my next appt.

    Enough about me..but I really wanted you to know that there are just times that another person starts a thread and it has the capacity to wake another person up. I hope that your lower back problem is not anything serious. I imagine you could use a respite from.......it all!!

    You mentioned that your husband often accuses you of undermedicating, and I get that, but now is not the time to be a hero-lol. I really hope you can get some relief because I sure do understand that feeling of being so close to tears. Sometimes it's the pain, other times just feeling weary of it all, but when it is both at the same time there is no question I am grateful for my pain medication. I still try to take less than prescribed because for some reason it makes me feel like I accomplished something, or like I am beating this. Truth is (usually) I am letting the pain win on those days, but still it feels good to have left over meds.
    Feel better soon... :)))
  • Robin,

    Smiling with 'happy tears' from your post. I see it that the "bank" is finally starting to call in the loan that I was given back in 1985! I was sort of use to the pain I was given thanks to my stupid neck, but this back...whoooah, whole different animal! I use to get the deep mechanical pain, but I could wiggle, change posture etc., and get a break, but now instead if I wiggle wrong, my thighs scream!!!

    I just woke from an 1.5 hour nap (watching Gray's Anatomy), and feel totally drained, so off to bed after the show. Nodding. My hubby gets rather fussy at me for not taking pain meds. Don't get me wrong, I'm not afraid of addiction or anything like that, I just don't like the feeling I get when I take the stuff...pain reduction or not. Okay, I am weird!!! (G) Heh... Hubby just asked if I "took anything for my pain" "No", "Why not?" "Don't wanna"...he walks out of the room shaking his head. Okay, I stink...Grrrr... I know I am not the only one that feels this way?

    Thanks Robin, hopefully you won't have lumbar issues, they bite. My bank note is coming due I guess. (G)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Yeah, when you are use to one pain and it is already pretty bad, then something else starts hurting-to a point where you might not notice (much) the regular pain that you were living with (CP)-that can be pretty scary. Not a day went by when I did not feel pain in my feet with every step that I took, and I still do, but there are days when something hurts more. Usually my neck.. and when this first started it shook me up pretty bad. This might sound weird but I have a feeling you will understand, when I felt the pain in my neck and barely noticed my feet pain..I was both happy, because I could never remember a time not feeling the feet pain, and scared. I know the days my neck is worse now because I measure it by my feet pain. Now, the days my feet are worse..that is a normal day. I literally hurt from head to toe--lol.

    I hope you are wrong about your bank note coming due, but you know your body best..even so, it's good to hope. If you are right and it's time for collections, we will all be here to offer our support. I know that won't help the pain..so we hope.
  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    I'm thinking of you today Brenda and hoping all goes well with the Neuro. Gotta get you ready to take off with hubby in the RV.

    Keep us posted.
  • to say that I am also thinking of you Brenda, and hope that your appointment with the neuro goes well and that he can help you (or knows a man who can!)

    Take good care of yourself. :-)

    I know about trying to manage the pain without pain meds, but remember that if you are feeling really bad, give yourself a break and relieve the pain with meds. (I know, I should listen to myself!! :? )

    >:D< >:D< >:D<
  • Robin,

    Most times my most noticeable pain issues are nerve, but Lyrica is great about keeping most of it in check. My neck stuff gives monster headaches, or I get the zings to the base of the neck, or out down the shoulders and arms, but not constant. My biggest complaint there though is when my hand and fingers start cramping. When they release, whew, can we say ouch?

    This business with the back has been constant. I do get relief however laying down on my right side, so there is a "comfy" spot still, but that's not saying much. Other times my neck and back play tag team on who hurts more! Sigh... I see my Neuro in a few hours, so lets see how he chimes in on this new development? I hear ya on the feet too by the way! :) For me when top and bottom take turns, it does take away from the other!

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Thanks girlfriend! Yeah, hubby and I are hoping in the next month or so taking a home away from home get away, if even for just a week! :)

    Have fur kids will travel! (G)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Jellyhall,

    If my Neuro does his usual assessment, I might very well need to take them when I get home! He is good on his physical exams. Yeah, hubby gets frustrated when I don't take them. I get quiet and off to myself. I guess it could be worse right? I could be snapping his head off instead, beating the cats, kicking the dog...well. (G)

    I'm hoping I get something out of my appointment today - hell, I waited long enough right?

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.

  • When you start snapping his head off, beating the cats and kicking the dog it is most definately time to take your pain meds!!! :?

    >:D< >:D< >:D<
  • Hope that everything went well with your appointment today with nuero. I'm sorry that you are having sitting problems...that, I can definately relate to.
    Hopefully he will arrange some tests to see what is going on there.
    Bet you are looking forward to getting away with the rv. I too had an rv until last year and had a blast touring around with it. With the problems I and hubby have been having with our lower backs, we have now traded in to a parked rv on a lot...looking forward to that though.
    All the best to you, and when you are able, let us know how things went today.
    >:D< Karen
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • Jellyhall,

    Your post had me roaring! Thanks, and I agree most definitely!! Hehehehe.


    I had a good visit with my favorite Neurologist! Poked, prodded, whacked for reflexes, sometimes lack of them, strength testing etc. He's not happy with the amount of atrophy I have developed. So plan "A" is now this:

    New MRI's for my cervical and lumbar - we agreed thoracic isn't surgical, so not going there.

    Full panel of blood work for verifying whether my Neuropathy is disease related or spine.

    All extremities NCV & EMG (he will conduct this testing May 13th).

    Then we go from there as he said. Our mutual hope is that surgery won't be needed, but he expressed concerns of the status of my C2/3 - pisst..me too! I will get my MRI's done in a few weeks, same for the blood work, this way all tests will be close to each other. Whelps, that's plan A in motion. Isn't this just so much fun? (G)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • with diagnostics. Sorry to hear "few weeks" on MRI, why so long? Also blood tests too... :W I've never waited that long for spinal MRI most has been 6-7 days.

    Anyway great to hear things are on track for you, Brenda!

    Hoping those weeks pass quickly for you >:D<

  • Sorry jumping in late here, don't know how I missed your thread.
    I can understand your wanting to have all testing done around the same time, but I'm worried about you & this new onset of pains and symptoms especially seeing it occurred right after the fridge move! It could be that move did something; like your harmless yawn.

    I am usually impatient and if it were me I'd be running for lumbar mri. But you have dealt with so much for so long I guess you've learned the virtue of patience.

    I hope when you are reading this you are sitting comfy or in any position that provides you pain relief!

    I'm so sorry you have to deal with all this!

    On the bank note, I wouldn't worry about them calling it in, with all the bundling and reselling of notes, I'm sure its lost by now *wink* You stay positive, optimistic and in Brenda fashion!

    On the blood work, can't help you out, I'm sure someone will know and give us the low down on what Neurolgist is looking for.

    Okay gotta ask what did you think of the musical Grays Anatomy? I'm a huge fan and I've been waiting too see what happened with the MVA car vs truck...will you marry me & all, but it was kinda of weird for me.... the singing thing.... I would have been balling if I wasn't laughing half the time. : -)

    Praying for good results on ALL your tests!

  • I thought TSH was thyroid??????? However I could be 100% wrong ;)

    So sorry to hear all this is happening :hug:

    Have you tried a exercise ball? I have heard great reviews from people who sit on them at their desks in place of a office chair. I have not tried it as I am so off balance I know I would fall off it lol

    Hey I am a victime of L too. L 2, 3, & 4 and S 1 & 2

    Sorry about type o's my new knees HATE my lap top even with a pillow between them, so no time to go back and correct spelling and such
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
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