I'm new on here, but am desperate for help and support so I cut to a new post w/o a bio! I am being undermedicated because my pain management doctors are ignorant and don't really care to do the proper research to justify their dosing. I was once on much larger doses of medication and on not only narcotic pain meds, but muscle relaxers and nerve pills (neurontin) and was prescribed IMM relief morphone.
I became pregnant with baby #1 unexpectedly and my PM drs yanked me off all meds immediately and put me on tylenol only. Extremem withdrawals and I was immediately in the most pain I could imagine. Then I did the research and found out that it safe enough to be on some pain meds. I also learned from my own research that I could have miscarried b/c it is most detrimental to a baby when medication intake is abruptly changed, it needs to be gradual. I was switched from morphine to methadone (20mg a day!) which was not that much! The only reason they switched me to methadone is b/c it is the only narcotic in its class known to have some studies done b/c of drug addicts getting pregnant and transferring to methadone (methadone clinics). I suffered in some pain but tried to keep the meds low. My baby was born 1 week early and they did not detect any medication in his system. He is very healthy and I am blessed! That was Jul of 2009.
Now we have since been trying to conceive baby #2. They don't now why, but I've had trouble getting pregnant so it's been 17M of TTC. My doctors have kept me on methadone because they refuse to switch even in the TTC phase! They won't prescribe any other drugs to help b/c those are known to not be healthy for baby. I've been in considerably more pain and as a mother I also need to do more than care for myself! Last year they were willing to increase my meds to 30mg, which seem to quickly degrade in effectiveness. This past year I've had more pain flare-ups than ever and the severity of each flare-up seems to get worse. I've gone through a whole new review of my condition and no real changes on the MRIs, I'm just in more pain! They refuse to increase my meds. I haven't left my house in 3 weeks and I'm in the most pain ever! Their refusal is not based on real knowledge. What is the magic number of milligrams not healthy for baby? They don't really know that. Methadone clinics give some women 200-300mg of methadone daily. I'm only on 30mg daily. It's not fair I be penalized and now my family b/c of their lack of knowledge, no real justification as to how they reached their number and no care to really do further research.
I don't know what to do. I want to run to a hospital, but that's an emotional move I suppose! I just don't know who to go to what to do. I'm in so much pain, suffering and nobody else in my life living in my area to help other than my husband. I'm helpless.
I've lived my entire adult life in pain with Fibromyalgia, 3 herniated discs unoperable b/c their not "bad / blown out" enough, pinched nerve in both L & R shoulder blades, Sacro Joint issues (undiagnosed potential sciatica of SI), Slow Transit Constipation condition, IC (interstitial Cystitis of the bladder), TMJ. The back pain and Fibro cause the most debilitating pain, so much pain I get nauseated from the pain. Laughing and a slight shake in my spine causes so much pain.