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Hi All

kvlove0722kkvlove0722 Posts: 3
edited 06/11/2012 - 8:52 AM in Chronic Pain
After 7 years of being told, "There is no reason you should feel as much pain as you claim you have. You have a couple herniated disks and it happens to just about everyone as we age"...7 years of crying and contemplating not even going on any longer. I finally said I will go see one more doctor but this would be it for me, I could no longer handle the growing pain.

I went to my last appointment with a new Doctor named Dr. Cohen. At first, the PA came in and guess what she said to me...the same thing I had heard for 7 years before. "Your neck really does not look that bad." My eyes started to tear up. She said even though it looks ok I would like to have Dr. ***** come look before you go. Dr. ***** walked in the room took one look at my MRI and said ehwwwwww I see quite a big problem here. You have several things going on. You have cervical spinal stenosis, Ossification of Posterior Longitudinal Ligament, and moderate disc degeneration in C7-C6-C5-C4 & C3.

How do you have the best day of your life and the scariest day of your life all in one min. 7 years of extreme pain, icing my neck 15 times a day just to make it through work. One doctor even told me I needed to see another kind of doctor and I will leave it up to you to guess what kind. I finally had an answer someone finally believed me. Why was this so hard? All I can think about is going after the people who misdiagnosed me for 7 long years, years I can never get back, 7 years when I should have been being helped but instead I was only hurt more.

Did this happen to any of you out there? If so what now? I still hurt and now because 7 years have passed its way worse, a real big mess. I do not even know where to start the healing process.
Is it normal for the same hospital to miss something like this? Does this happen all the time? Why? In addition, how do I accept that it does, it is what it is, and it is ok. What if it is too late and now there is nothing that can be done to fix me or that it may now be much more complicated? Where do I even start? Any direction would be great.

I am grateful this new doctor introduced me to this site and finally diagnosed me.
Hugs :/

My other ailments
Narcolepsy, Fibro, Apnea and a Chari malformation.



  • KV,

    First off, you might want to use the edit button above and to the right of your post and take the doctors names out - not allowed here.

    That aside, Welcome to Spine Health!! Many of us have had doctors blow us off, especially if young or female! I am so happy to see you did like many of us, listened to your body, and kept searching for a doctor who would listen and care!

    Hopefully soon you will soon have more answers and too a game plan to knock down the pain, and address your true issues. Please keep us posted on how it goes. Welcome aboard!!

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Hi KV,

    Isn't it validating to finally have an answer? I'm glad you persisted and finally found a doctor who took the time to look at your MRI and tell you what is going on. I think it often depends on what type of doc you are using. Often primary care docs, physiatrists, and even orthopedic guys will rely heavily on the radiology report. Seems that some of these professionals don't even know how to read an MRI. But once you get to a good spine specialist, my experience has been that the good ones read the MRI themselves. I wouldn't be too upset about why it took 7 years. The problems you described certainly wouldn't have looked that bad 7 years ago--they take time to get to the point you described. My advice would be to just focus on what your next treatment is, and be thankful to have found a doctor who told you what is wrong. My feeling is that our energy is better used in healing rather than being angry. But that is just my opinion.

    Does this new doctor suggest surgery? When is your next appointment?

    Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!
  • Whoops, sorry about that. I removed the Dr. Name from my post. I was so excited about the info I was seeing on the website and finding others like me,I went right into posting with out reading the rules.

    In my 7 long years I had been to 3 primary care physicians, 3 surgeons, 2 neurologists and a rheumatologist. Not to mention the endless procedures like epidural steroid injection, bi lateral faucet injects and of course cortisone shots all over. I even went to a chiropractor for the first year and a half since the first Doctor I saw said he did not see anything at all.

    I can't believe I finally found a Doctor who was able to figure it out within 3 minutes of looking at my MRI.I had just met this doctor for the first time, but I wanted to walk over to him and just hug him. Of course I didn't after all he may have thought I was crazy...LOL If he only new inside my mind he was truly my hero.

    Thank you again for the welcome and the feedback, I look forward to speaking with you again.
    KV :)
  • Neck of Steel, Thanks for the welcome. I am not sure what the next step is. They are going to call me next week and set me up for a CT scan with and without contrast. He said he wanted a better look around, I guess once this is done I will find out if there is anything he could do to help me.

    I would love to be able to get off some of these medications I take. I have been a singer all my life and since being put on all these pills like Opana,lyrica,Cymbalta,Adderal,Atenolol,Endocet and Xyrem, my mouth is so dry it has become difficult to even talk let alone sing :''( I sure do miss it.

    I know it sounds like a lot and I know it is but it is the only way I can still work and not have to use my FMLA.Unfortunitly 4 years ago my husband became permanently disabled. We knew it was going to happen we just did not know it would be this soon. After his double knee replacement at the age of 34, he was no longer able to work anymore. He was born with a bleed disorder called Hemophilia and it has ruined all his joints. I made the decision a long time ago to take care of him when the time came. I have always been very active and healthy I never thought I would ever get sick. However, it happened and working for me has been very challenging.

    You think what else can happen right. Well it did 2 weeks ago. After 15 years with my company I found out our location was selected to be shut down, so in August I will be on the unemployment line. It is amazing how much stress seems to make things ten times worse. Well I am sure you have heard enough of my sob story. Thanks again for the warm welcome and I look forward to speaking with you in the future.

    KV :)))
    Ossification of Posterior Longitudinal Ligament, Cervical Stenosis, Moderate disc degeneration, Central disc protrusion at C5-C6 with impingement on the cervical spinal cord, Posterior spur formation centrally and to the left at C6-C7, Foraminal stenosis on the right at C2-C3, and an extra Cervical rib on the right at C7 with an anomalous origin resulting in foraminal stenosis.Fibro, Apnea, Narcolepsy and a Chari malformation
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