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I need some answers for my sacroiliac pain and it seems like no one can help me

tapfrangttapfrang Posts: 1
edited 06/11/2012 - 8:52 AM in Sacroiliac (SI) Joint Problems
I am going to give you my full history of this pain, and if anyone can help me narrow down what it is that would be great since no doctors seem to know. About 1 1/2 years ago i randomly developed pain in what I thought was my sciatic nerve. no injury that I know of, but Ive always been doing alot of lifting at work. I ignored it a while until one night it got so bad i couldnt walk. This was about 2 weeks after the pain started. It always was sharp and ceaseless at night, but I did pretty well during the daytime. It the more I rest, but also hurts alot when Im active. It is pretty sporatic and there are no patterns of things that irritate or alleviate pain. I have tried exercice, rest, heat, ice, and anti-inflammatory meds. I went to a spine specialist who said they saw nothing wrong with my lower spine (which is where i thought it was coming from originally)...She advised I get a sacroliac injection, which did relieve most of the pain, which means alot of the pain truly is from that joint. The pain came back in a few weeks, and has now travelled to the right side as well. The sharp night pains come and go as they please, and never show any patterns. The doctor just tells me there is nothing they can do, and that i can just get injections every so often to help with the pain. I refuse to believe that there is no way to get rid of this...and I was never even given a diagnosis!!! I cant handle this pain anymore, and now I am 3 mos pregnant and im afraid it will only get worse. My biggest issues now are that my hips always hurt, including the sides, bottom, and back of the pelvis, and where the socket is. I am just looking for at least some possible diagnoses, (ive investigated piriformis, sacroilitis, bursitis) but they all seem so similar. My pain was never tender to the touch, but now I can actually rub where the pain is. There is definitely alot at the sacroiliac joint, but newly developed is pain in my sitting bones on both sides, but none on my tailbone. If I push right under my glutes into where my femurs meet my pelvis its really tender...I really just am confused and need some answers. Sorry for such a long question but its really starting to ruin my life im only 19 and should not be feeling like some old granny who has hip problems and cant roll over in bed without yelping. Thanks so much for your help.


  • Sorry to hear you're having so much trouble....my back pain started with that type of pain when I was pregnant at 23, so I can truly sympathize!

    Did anybody ever do a MRI or CT scan to make sure there is nothing going on, or did he just do the physical exam?

    Have you tried any physiotherapy at all? They may be able to do some ultrasound to help you out, along with some stretching to take a bit of pressure off.

    I have had four rhizotomies (radiofrequency ablation....you can search it at the top of this page and there is info on it throughout Spine Health), and that procedure has been the only thing that helped me. My Neurosurgeon also does SI injections at the same time, so I believe it's the combination that is really what makes it a success for me; not everyone is so lucky.

    Each of your tender spots are areas that affect me, so I also understand your frustration with it. I hope you get some relief so you're at little more comfortable through your pregnancy....good luck!

  • Be sure to tell you baby doc..you may have to gear up for a not so comfy pregnancy as it put's lot's of pressure on the sacroiliac nerve...that's sort of how mine was damaged...I had a total abdominal hysterectomy and bleed out three unit's of blood..they had no idea where the blood went and had to infuse..I had a visual hemotoma on post op day two but my m.d. felt it ok to send me home looking 9 months pregnant..imma small framed girl so it looked really bad...my body was huge...finially found the blood parked in my incision..when they popped the second staple.i bleed soooo bad i thought it would never stop. my cloths were ruined and i had to wear the lovely paper gowns home..it was bitter sweet, felt good to be relieved but i was scared it would not stop..I've had pain and trouble walking sense that very day...now i know that nerve is damaged..all the doc's are looking at my bones, but, i know it's nerve damage..i was a high energy independent mother before the surgery..get lot's of sit down rest and make sure you tell your doctor...you will do fine however you may have pain as baby grows..how exciting for you...a new baby..keep me posted on your success...we are going to get you through it...hugs and blessings, suzie
  • I understand your frustrations. Ten years ago is when I learned all about Drs and found out they don't know everything and they don't sit on the pedestals I had them on. I had pain that wrapped around from the back flank to the front lower abdomen. Kidney stones were ruled out and I was sent to back people. Injections were done and I was told that would do the trick and nothing happened. I was still in terrible pain and getting worse. I was told maybe female problems but I had no female parts any more. Next thing I know I am having exploratory surgery and a hematoma is found and removed. Still not the problem, still hurting. Adhesions were found and I had problems from them from previous surgeries so again off to be operated on again. This time I end up in the hospital for 10 days but still in the same pain. I then am told I have a hernia and back in for hernia repair. Still in pain. I am then told to go to a Gyno who tells me my problem is a nerve in my groin area and injects me right in the nerve. It felt right on the spot but instead of making it better it only intensified the problem. He suggested I talk to someone that maybe I had some head problems and was looking for attention. At that point I was almost wondering myself. A few more months of suffering I went back to my family Dr and agreeing that if I was making all this pain up in my head then I really needed help because I just could not take it any more. She suggested I try a pill that they give diabetics for neuropathy and had a lot of success with. Within 2 weeks I was feeling great after all that suffering, useless surgeries, and Drs treating me like I was crazy and dismissing me. I look back now and realize no one ever did a MRI on me and I ended up with herniated disc and the same kind of pain. So keep telling those Drs until someone listens, or find a new one who will listen. You know your body.
  • Hey guys,

    I'm a 23 year old female who struggled for over a year and a half with sever back pain caused by weightlifting and athletics. I underwent a dozen injections, radiofrequency nerve burnings, etc before I finally broke down and got my SI fused.

    My surgeon told me that a percentage of his patients developed their SI pain during pregnancy, so it's not unlikely that pregnancy could make the pain worse :(

    If anyone is considering the option and wants to get a take on what it's really like, I'm here! It was a tough decision, I spent 5 days in the hospital recovering, will be non-weightbearing on my fused side for 6-8 weeks, etc. Any questions- feel free to ask!

  • Hi :-)

    I fell in my third pregnancy at around 3 months gestation. I got over it in a few days and thought everything was ok. A month later and I was having increasing pain, but never linked it to falling at all. I got frozen in a 90 degree bend at the waist - went to hospital barely able to walk - and I was repeatedly told I should expect more pain in my back, hips, groin, upper thighs and some women get sciatic pain, because it was my third pregnacy... I was made to feel I was a hypochondriac.
    2 months later I was in hospital totally unable to walk - and no one knew why I had sciatic syptoms but the rest of my symptoms didn't match. To cut a long story (most of 2009) short, I was in and out of hospital, only out for a few weeks before I was back in again. A chronic pain specialist worked out that I had S.I. Joint dysfunction, piriformis syndrome and facet joint inflammation - and although I originally damaged my left S.I. Joint, I damaged my right joint also because of months of overcompensating for the left s.i. pain.

    As my son grew in my belly, the pain intensified and I needed constant changes to heavy painkillers (my worst pregnancy nightmare). I was so mad at all the many doctors and nurses who told me that this huge pain was all in my head!
    I made it through and so did my baby - born via C-section a month premature as I felt the risks of him being born early no longer outweighed the risks from the painkiller and morphine injections. He is happy and healthy :-)

    Please know that I am not saying any of this to scare you - this has just been my experience. It is hard to find someone to give you the pain relief you need, and most doctors do not know that if you continue in extreme unbearable pain, that it can cause spontaneous abortion of your baby... it is hard whatever you choose (many risks of strong painkillers while pregnant vs. risks of depression and pain of mother on baby, and lack of care and nutrition because of pain and depression)

    I tried chiropractic treatment during the pregnancy before painkillers - and because of being hypermobile it actually made the pain worse.

    Please find a docor who WILL listen to you, they can measure the stress that pain has on you by raised blood pressure, raised pulse (when I was in so much pain I couldn't walk, they gave me an injection of 20 of morphine, sure that it would knock me out, so they had a heart monitor on me and a nurse on total watch next to me... my heart rate went DOWN to 120bpm - then they believed me!)

    If you want to know any more, feel free to message me - just get help sooner rather than later, because I feel that my situation (including current one) would have been alot better if I had been treated at 4 months pregnant, instead of 6 months pregnant onwards. Don't be scared because I am proof you can get through it - just don't fall for 'ohh women usually get back pain in pregnancy - you will be okay!', or my favourite... 'let's just wait and see how it goes for a few weeks/months'.

    Good luck and warmest regards,
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