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PAIN Perspective *** OMG A Win for us little ones!! (Spineys)

MetalneckMetalneck Island of Misfit toysPosts: 1,364
edited 06/11/2012 - 8:52 AM in Chronic Pain
Today while at my primary care doctor's visit, He asked me how I was doing overall with my pain management. I have for the past three months (post MVA and new Lumbar herinations) been seeing a pain specialist - been through all of the ER med changes with little relief - had ESI's etc.

I responded that after being in chronic pain with my neck for going on 6 years - and a failed fusion and a redo ++
I told him that the experience of now having lumbar problems, pain in my leg, and numbness, and foot symptoms - has given me "pain perspective" for I now have a brand new malady that is nipping at my tail as constantly as my neck pain has.

I take back every doubt I ever had about people with lumbar disk problems, because I am now one of you folks also. The experience of having constant LBP and leg pain and numbness, and a leg "go out" from underneath you is something I can now fully understand.

The helplessness of not being able to easily do, something I have taken for granted for all these years has now stared me in the face - and I am afraid.

Warmest regards to all who suffer from these afflictions be - it cervical, thoracic, or lumbar - may G_d guide us through all our lives - as we trudge our daily way towards happiness, and or at least eventually an everlasting serenity in his/(her)hands.


You’re staring at space... and what do you find,
A looking glass face... a life so sublime.
Fantasies that never stop,
Until they reach the very top,
Rainbow colors ...lasting on,
Until you reach...a new dawn.

(Rory T)
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  • Dave,

    While sometimes through all this madness and doctors appointments and what not you have find yourself. All you can do is keep filling your tool box with things to aid in your chronic pain issues. Somedays the tool box might look empty as there is nothing left to do but lay down and relax. But, at least for myself laying down does still help. Hopefully, your doctors will be able to find the right combination that works for you. I myself have had to go to being up so long then laying down for so much time to get the pressure down. Hopefully your keeping a journal of all your activities and what not and what meds you used so you and the doctors can come up with the right approach.
  • I've had cervical pain for years but I have always thought that should this pain have occured in my lower back, I could not have continued to function in my job and life in general. I completely understand your new perspective. Hopefully you will experience some relief soon. I'm sure others will appreciate your comments too. Try and take it easy on yourself.
  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    I find it is that I can mentally remain above water on a daily basis... It is the physical issues and minimal daily demands ... that bring to my knees.

    The assalt is one of external issues and interior (physical)disabilities that continue to wear me down.

    The true measure of a man (or woman) is how they deal in the face of adversity - I continue to attempt to "deal". One of or fellow posters says 'Its not how many times you get knocked down - but that we continue to get up".

    After talking with my brother last night-(my only remaining family member who is again out of work and depressed), and discussing my new found problems, he simple said that its a good thing I am not one of his dogs. They shoot horses don't they?

    Still crabbing along - SSD hearing the 26th of this month 12 days and count till disappointment or the hope of future stability .... I paid into the system for over 30 years and close to $90,000. SS is insurance folks .... F.I.C.A. (Federal INSURANCE cotributions act). It is NOT an Entitilment!!

    Time for me to be able to collect on that policy I paid into for so many years.

    Say a little prayer for me? Will you please?


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  • My dad complained of back problems for as long as I can remember. Growing up I always associated pain with headaches or the occasional bruise or knock while playing. I didn't understand how pain could make someone so mean and contrary. Even when I broke my arm I thought well I can still ride my bike and play so pain can't be that bad.
    When he was 39 my dad had 4 discs removed and a 4 level fusion in his lumbar region. The incision opened up two days before he was due to come home because of an infection. He was in the hospital for 9 months that year. When he came home he was completely changed. If we heard his truck we left the house. He became a very mean alcoholic. When I graduated high school I joined the Navy to get away from it.
    That was 31 years ago. I now understand what he was/is going through. I have suffered from chronic pain due to degenerative disc disease for the past 8 years and add to that the pain from 5 knee surgeries in the last 3 years I know what stress it puts on a person and understand how it could drive someone to drink.
    My dad is still in chronic pain that no medication can touch. With the help of the lord he has been sober for almost 20 years. I pray every day that he gets some relief and that I become a more understanding individual for those stuggling through what I can't fathom.
    laminectomy c4/c5 2008, ACDF c4-c7 Jan 20 2014 sched
  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    Thank you for your insight - you indeed sound like you have developed "pain perspective". That coupled with a belief in prayer and compassion will help you and your loved ones through this brief journey called life. Its life on lifes terms .... not mine.
    Many accolades for you dad's 20 years of sobriety ... I hope that comes with the use of a program such as friends of Bill W. I have been a friend of Bill W's for 10+ years myself. Without that extra support ... I would have been burnt toast long ago .... instead .... Im more like moldy bread. Maybe blue cheese - mold allowed and encouraged!!

    Regards - tell your dad hello from a fellow friend of Bill W.

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  • As you and I have chatted about many times, this land of chronic pain is the pits to be sure. Having issues in all 3 regions of my spine, I know this all too well. As many know, I try my damnedest to look 'back' to see forward is okay.

    I should know next month what the game plan is for the lumbar and cervical. Not thrilled as I know it won't be good news, but then again, (odd spiney thing here) maybe good news if it can relieve the increasing day to day pain. It is now to the point I just pick up my 12 pound cat, and pain from all kinds of areas zing me.

    As a perspective, just try to stay the course, realize that some things we don't have control over, and therefore should try to stay positive and not let it be in control, but "we" be in control. You are very much an advocate for your care, so I think you know where I am coming from my dear friend! *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • SSD isn't all its cracked up to be, but is sure better than nothing! My prayers are surely with you!
  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    I appreciate your support. These conditions ... this journey so many of us are on with chronic pain and progressive disorders ... and subsequent "insurance" issues ... I would not wish on my worst enemy.

    I am blessed to not really have any enemies except chronic pain and the failures of my own body, as time marches on.

    Warmest regards,

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  • Make sure you let SSD know about your new lumbar issues and include your EMG results about your peroneal nerve as that was a major for me getting government disability. Prayers for you for your hearing. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    You are always here for most everybody - to give support and knowlege. It is appreciated and doesn't go un-noticed.

    My PM doctor has done a great job of documenting the new lumbar issues including the peroneal nerve invovlement.

    He has stated that this is a permently disabling issue that will require future surgery as well as causing extreme restriction in my current abilites.

    Thanks again from this side of the puddle!

    Praying that this will get "sorted out" in my favor.

    Warm Regards,


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  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    Although we come at our situations with many inherent differances .... Brenda being a protector of the law and myself having a past history more on the on the other side of the equation - I have found in her the greatest degree of compassion and understanding -and most importantly genuine acceptance of me as a person.

    Brenda looks past my short commings and defects of charater and treats me like a person. Wrought with all of the common frailites and occasional foo - pa's that go along with being a human in chronic pain.

    This ability on her part look past my issues and just have a good ole time sharing a friendship based on our similarites and not pushing me away because of our differances is a rare quality to find in a person anywhere ... anytime.

    Brenda my dear friend - please keep doing what you do so well, to the benefit of EVERYONE here at SH.

    A on-line community can be judged by the quantity and quality of the posts by the most "vocal" participants, I personally request that you keep doing what you do so well "HUGZ" and at ad infinitem!!

    Sincerely Warmest Regards,

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  • Dave, Dave, Dave,

    I never thought anyone could make me blush on here! *HUGZ* Back to you. And thank you very much for such wonderful and caring words!! :)

    I hope you're feeling a bit better today. Just think of us all as the spiney puzzles in this wonderful thing called life! I figure unless they boot me out of here, you all are stuck with me dear friend!!

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    I got a call from my para-legal just now, today - as many of your know I was scheduled to go to my SSD hearing on April 26th .... Well according to my paralegel I have just Received-Been a 100% approval dating back to January 10th 2010 .... after 16 months of twisting in the wind ... hopefully my SSD saga is comming to an end.(or a new more fruitful beginning)

    Of course I won't really believe it till I see some retropay and my first monthly allowance but it this point .... NO HEARING NEXT WEEK and by the grace of G_d, and the over and above the call of duty support by all of you ... I have lived to see this day.

    Someone pinch me ... Im in shock and awe. Kinda like awaking from a very bad multi-year dream.

    Again so many thanks to those who have helped guide and support me. I don't think I could have made it without you all!!!!


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  • pleased to hear that finally after your long battle with dealing with SSDI, it has come through for you.

    at least thats one huge burden/stress you dont have to worry about anymore

    heres a pinch for you,lol, its real , its happened

    all the best to you

    i dont want to take away from your post dave , but just saw charrys pic, its funny , how we picture people , on here , i thought you would be a brunnette

  • I am very glad to hear of your outcome. None of us would wish our personal journeys onto anyone else. As I said to my Dr one time, "I would wish you to live the way I have to, but I know that you have not the tools with which to make a life out of this.

    Cheers to you
  • Congrats!! I'm so happy for you!
  • Congrats !! I still cannot believe that it took so long for your case.
    SSID is pretty weird.
    Good luck in the future.
    C3-4-5 fusion 2005
    C-5-T-1 disk bulged
    L-4-5 bulge to the right, with Microdiscectomy, failed
    L5- Bi-Lateral bulge
    Pain in right foot -loss of feeling
    Left butt, hip and front thigh pain with bad shooting pain into inside ankle sometimes
  • WONDERFUL !!!!!!!!!!!!!!!!!!! :)
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • Dave,

    I told ya, stay positive, and it will come to be!! Now I don't have to come up there and kick your butt! (G)♥

    I am so happy this nightmare is over now for you. When you get that back pay, take yourself out for dinner. I think after all this time, YOU need a treat!!! *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
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