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I am new and wanted to speak with people that are in my world of pain

angel4laricciaangel4laricci Posts: 44
edited 06/11/2012 - 8:52 AM in Degenerative Disc Disease
I am a 41 year old mother that has suffered spinal issues for 10 soon to be 11 years. I have DDD,
Fibromyalgia, Herniated Disc, Bulged, Torn Disc, as well as Arthritis. Spinal Fusion Disc Replacement, Titanium Rods and screws.
In 2002 I lifted my son into a playpen and the best way to describe what I felt was an electrical shock of some sort. That day changed my life. Long story and tons of details left out, I had every treatment I could to try to relieve the pain. After two years of suffering through horrible pain, and scared to death of surgery, I gave in and was told I had to have a laminectomy. I was told it was a fairly simple procedure, and I would be normal again afterward. Let's just say that day still hasn’t come. I have suffered, and suffered. Throughout the years, the problem brought about other issues. I was diagnosed with Fibromyalgia in 2006 and unexpectedly became pregnant with my youngest son later that year. He had colic for a year to the point no doctor could help him, all he did was cry. I had to carry and lift him throughout that entire year. In 2008, my left leg and foot went numb. I became severely depressed. I have been to Chiropractic, physical therapy, Epidurals, Tens Units, Neck decompression, Cortisone shots, Acupuncture, as well as many other homeopathic treatments. I cannot explain the amount of pain day in and day out it was working full time trying to support my children and deal with this all over chronic pain, as well as the horrific pain in my back every day as well as my neck. My hands became horribly numb, as it’s taken me to come back and forth to this forum entry at least six times to type. It got to the point I couldn’t work full time at all. I lost everything I have worked so hard to have. My home, my business, my truck, all my savings trying to make up for the lost amount of work, my 401k plan, and retirement, as well as my dignity.
It has been a living hell.The Fibromylaigia is horrific each day to live like this is insanity.
I pushed on until I honestly couldn’t take it anymore in January 2010 I stopped working 100%, and in July 2010 my entire left side went numb, I could no longer walk. I decided I was going to have another surgery obviously every doctor I was seeing (and there are 4 in my team) said (It's time). I saw two top surgeons. I went with Dr.. Reginald Davis which is the most sought after neurosurgeon in Maryland and on the East Coast. He told me I waited entirely too long and the DDD was very bad, that my disc L$ was gone completely and was smashing my sactic nerve making my entire leg and foot so painful and numb, causing me not to be able to walk. I can not describe the depression I was and am in. On Sept. 27th 2010 I underwent a spinal fusion, disc replacement, titanium rods and screws. Cut front and back during an 8 hour surgery. They cut me in the back to try to correct nerve damage as well as scrapped 1.5 hours of arthritis and scar tissue out from the first surgery.
I woke up in agonizing pain. The recovery was horrible. I had thought I knew pain....Dear God!.
I had to wait 12 weeks to even start Physical Therapy. In December I faced the music that I would never be able to work again. I couldn’t stand, or sit, or be in any position for more than 10 minutes without being uncomfortable. I was coming back from the Disability Attorney and was at a red light 4 months out of this huge surgery. I was at a complete stop and was rear ended by a truck which totaled my truck and did extensive damage to my entire situation with my back, the impact was huge and the disc above my fusion actually bulged. The accident also herniated and tore disc in my neck which caused the CTS to worsen terribly. I am trying to get Disability and it looks as if my home will be up for sale date within 60 days. It is beyond the worse time in my life. I pray I get the Disability as I need it more than you can imagine.
I just wanted to vent through and with those who have gone through this type of pain and life. My boys are the only thing that keeps me going.


  • I just feel so bad for you, truly. And when I complain I realize it could be that much worse. I hope you can find an attorney to sue his butt. Maybe move to to Canada! I hope you have a significant other to see you through. A compassionate attorney may be the trick.

    I just wanted to say my thoughts are with you. None of this is fair.
  • Wanted to welcome you here to the forum. It is full of wonderful, caring, informative people. I am so sorry for all that you are going through. Please know that we are here for you whenever you need to talk. There is always someone here.
    You are in my thoughts and prayers, and I will be hoping that you get disability soon to help you financially.I agree with CB, we can always use another fellow Canadian...it is beautiful up here, and really not always so cold.

    gentle >:D< coming your way

    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • As you haven't had the surgery, you may want to read all my past postd. As it turns out I'd say these spine surgeons are no different than used bad car salesmen. They get paid by the health insurance co. the day after surgery, I was told. Maybe that's way we all have little interaction afterwards. Unless you're basically as bad as having been run over, I'd live on hydrocodone for as long as possible, if not forever. Surgery does not guarantee anything as many drs don't appear to be good enough to do these intricate procedures. Then they tell you 2-3 mos, to get you to say yes! Then...reality is fusion takes 10-18months. During which you need to be extremely careful ALL the time. I could go on and on. But had I known this, I'm not sure I wouldn't have just lived on hydrocodone. (never made me loopy or sleepy)
    This is a very lucrative business hence all the spine surgery centers opening up. It's all business, not health care nor even a guarantee of cure. Be careful. Get lots of opinions.
    That's my opinion; I could be wrong!
  • I would place the surgeon who did my first surgery in the category you describe. Had a lamenectomy and when it didn't provide the desired result was sent to pain management. Now after 2 years and really bad pain management experience I have a new surgeon. He flat out said if I was his family member he would strongly advise against 3 level cervical fusion until much later as there was less than a 50% chance of it relieving the pain. My lumbar spine he said just the opposite because nerve blocks work that when they quit working he can guarantee me pain relief with a fusion.
    There are some surgeons out there that truly are looking to help.
    Hopefully you can find one. It took me 5 years to find this one.
    laminectomy c4/c5 2008, ACDF c4-c7 Jan 20 2014 sched
  • Wow...you have had a lot on your plate, and I know how difficult it is to carry on when you have kids, but it sounds like you're proactive and not willing to give up!
    If you feel like you're in limbo, it might be worth trying some counselling, just to get things off your chest and get through this.

    I hope you find a specialist who can give you some answers and possibly relieve your pain at least a little, OR make suggestions for other procedures/treatments that might give you a little relief.

    Take care, and I hope you'll stick around - you'll find lots of encouragement and good information on this forum which can get you through some miserable days.

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