Hi - I had my stimulator put in in Feb. of 2009. After getting programmed multiple times, I love it. It really helps with my tail bone pain and pain and fiery feelings down my legs.
My Doctor wants me to have it removed so he can do an MRI of my spine. I had a fusion in Aug. that collapsed after 5 weeks, was redone and I'm doing pretty well, but having a lot of numbness in my feet and legs - mostly left one. I had a myelogram to try to discover the problem. Ended up with a spinal fluid leak in late January and have been doctoring to try to seal it ever since. I have a tethered spinal cord and have had two surgeries inside the cord, plus five others outside the cord, so there's lots of scar tissue and hardware. We've tried blood patches, fibrin glue patch, a drain in the cord for five days in the hospital with nurses turning me, and another five days, to try to seal the drain site. That's where we think it is leaking now!
Now, before he does anymore poking, he wants to remove the stim so we can see better what it going on.
Has anyone out there had there's taken out? Did it cause a spinal fluid leak? Did you have it put back in?
Hoping and praying it will heal on it's own before May 3rd when I go back to Mayo.