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anybody out there that has TOS?

emomof2kidseemomof2kids Posts: 3
edited 06/11/2012 - 8:52 AM in Upper Back Pain, Thoracic
Anyone out there with Thoracic Outlet Syndrome? Or just me...


  • hi Im new here and looking for people who live w/ chronic back pain. I have thoracic outlet surgery,
    bilateral rib resections 4 yrs ago. And for the last yr, I have had symptoms return. Pain is back and im having a hard time with new docs and gtting shuffled around. Anyone else out there with the same probs?
  • dilaurodilauro ConnecticutPosts: 9,875
    There are many members out here who suffer from TOS. I've been dealing with it for about 6 years now.

    Please give us some more information about yourself, your condition, treatments, diagnostic tests, medications, etc.

    The more you can provide us, the easier it is for members to respond to any of your posts
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I had surgery after 2 yrs of severe pain. was able to recover well and until the last yr did good.
    this time last yr same pains came back. now i am in new town and doc keep shuffling me around. MRI and Xray were negative. thanks for the reply
  • it took over two years to get a correct diagnosis .i get cold hand and pain in the bit of my neck that sticks out {the bit that runs across your shoulders] when it flares up its very painful .i have an extra cervical rib so for me it was something i was born with .as for spine faults i also have an L6 or and S2 both you should not have !.TOS can be operated on but its best to avoid it for as long as possible as it involves complex and radical surgey involving many important structures .nerves under your arms can be damaged and if it comes to removing ribs ...YUK !many people have TOS and don't even know they have it .there are many test to confirm a true diagnosis .like a doppler blood flow test/ electric nerve conduction studies? MRI and CAT scans and X RAYS .,.but the best tool is a very experienced orthopedic surgeon .sorry you have this unpleasant condition .try to keep your hand warm and there are many exercise you can do to help open up the thoracic area get info from this site .and good luck
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
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