I am so glad to have found thiss site! I have been dealing with horrible headaches/neck spasms for a year due to osteoarthritis of my atlantoaxial facet joint. The arthritis is only on my left facet, and I am pretty confident it is due to a motor vehicle accident I was in a few years ago (logging truck hit my vehicle and totalled it). After dealing with almost every type of treatment, I finally complained enough that my doctor referred me to an orthopedic spinal surgeon. Long story short, the arthritis was causing C1/C2 dysfunction and causing a whole myriad of symptoms. I was advised that the only way to repair the problem was surgery. We did try facet injections prior to surgery, but they did not work. About a week later, my arms/feet/back of skull started going numb randomly when I would lay down or go to sleep.
I had surgery on April 6th - posterior C1/C2 fusion with autograph and wire (Brooks Fusion). While I have not had a headache since my surgery (yeah!!!), my neck is still very tired and I get daily spasms if I am upright for too long. I started PT at 2 weeks post-op, and go 3x/week. I am also in a soft collar. I find I am very concerned I am going to move wrong and mess up my surgery site internally, but the doctor assures me that I am not. My hip region doesn't hurt at all, so that is good :-)
Anyway, I would welcome any advice from people with similar surgeries, or who can give me positive advice.
Thanks, and I am grateful to have found this site!
April 2011 C1-C2 Fusion (Brooks wiring)
January 2012 C1-C2 Revision Fusion (Harms Technique)
2010 - current: Trigger Point Injections, Epidural Injections, Bilateral C2-C3 Radiofrequency Ablations