After years of trying to figure out what has been causing my pain and after years of visiting different doctors I'm now told I need surgery :-(
I have several autoimmune diseases, starting with ITP and Factor V Leiden, Uveitis, Fibromyalgia and ? Ankolysing Spondylitis. I have severe sciatica in left leg and peripheral neuropathy on sciatic line in right leg.
I've been on several different pain medications for years - currently on Oxycontin, Amitryptilline, Lyrica (Pregalbin), Baclofen, Lidocaine 5% patch and Solpadol. Nothing really works. I can't work at the moment, and can't walk without using a crutch. Since using the crutch I've had two episodes of Phlebitis in my legs.
Any surgery is high risk for me because of my autoimmune diseases and medications that I'm on.
A recent MRI shows a herniated disc at L4/L5 on right, and bilaterally at L5/S1. I've had facet joint injections done and last week a root block at L5 and am due a root block at S1 in the next few weeks.
My neurosurgeon is talking about doing a decompression at L5 to try and stop the peripheral neuropathy and most likely a micro-discectomy at L5/S1 - but he won't do them all together.
Had anyone got something similar? Any benefit from the surgery?
I'm in chronic pain all the time, barely sleep, can't sit or stand for long and basically just feel terrible. No one else really understands what I'm going through - husband, parents, sister. I've been seeing a counsellor recently and think this is helping me mentally a bit :-)
Any advice, thoughts etc gratefully received