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Hi I am new here...feeling scared.

marie1smmarie1s Posts: 2
edited 06/11/2012 - 8:53 AM in New Member Introductions

I am 34 and just last week diagnosed with mild spinal osteoarthritis and DDD. I am awaiting on further Xrays on my SI joints both sides and I suspect the news won't be good. I feel scared now and I don't know what to do with this diagnosis or what it means. I have only mild intermittent pain and hip stiffness the goes away with movement and I don't use any medications, but I am frightened what could happen down the road. I have tried researching on the internet and ended up in some forums that scared the daylights out of me because people were in so much pain.

I feel alone. I don't know of many people my age with this condition. I have a young son and I am terrified about my future now. I have started on a light exercise regime and made some major diet changes. I am very motivated to not give up. I will lose weight and I will get my body strong, but I don't how much it will matter....eventually it will catch up.

Does anyone have words of hope and support or inspiration.

Thank you.



  • Hey there,

    First, welcome aboard. Second, I hope folks here don't scare you. Just remember, there are lots of different folks here with different issues at different levels of the back.

    It sounds like you are having some back pain. It also sounds like you did the right thing finding out what's going on. But, keep in mind with the back, a good doctor will not push surgery on you so try not to be too scared.

    Take a breath. There are actually many back sufferers in the world (sadly). You seem like you already have a good plan...wait to see what the doctor says, start to make small changes to get more fit.

    Just to give you hope...I've had back issues since about 22. I never got an MRI or XRay because I knew surgery was not an option at such a young age (my personal opinion). At about 30 or 32, I did get an xRay of my neck and thoracic...I knew I had DDD. The doctors also told me I likely had a bulging disc in the lower back.

    Anyhow, the point of the 'hope'...staying fit & having a strong body (strong core) and understanding good body mechanics when bending, twisting, lifting....kept me well for 17 years. Granted, I needed occasional prescription NSAID but did well.

    There are many things that can help. Come back and let us know what teh doctor says.
  • hi and welcome to the forum! :W we are here to offer you support and answer what questions we can. so glad you dropped in! you have a good backbone of a plan going for yourself and that is a good start to feeling better and keeping yourself as healthy as possible.. exercise and keeping mobile are very important..so is stretching and using such things as massage and meditation... good health involves not only the body but the spirit and the mind, take care of all three and you will have a winning combinantion.. good luck to you!! stop by the forum anytime! Jenny :)
  • in your condition .i would try a good TENS unit .i would avoid ANY spinal injection {and i say this after going through ten years of them} and as for operations ..and i should imagine ALL the members o spine health with be with me on this DONT HAVE ANY surgery if you can get away with out it .if you need pain killers then use them but please believe me spinal surgey is the very last thing you want .even if you get a good result you WILL need revision surgey as the years roll on AND many spinal operation are done to stabilise your spine pain relief is not the primary reason it done ..and again believe me spinal surgey is not fun at all .my friends here will all tell you the same thing .dont get me wrong there are a few success stories but they are few and far between ...try a TENS before you do anyhting else
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • Welome to Spine-Health. There is so much information here and there's even a new SI Joint area in the forums that talk about just what's happening with your SI area. The members of this forum are generally upbeat and are very friendly, knowledgeable and supportive.

    I know that Tony said to never try injections, but I have to disagree, especially when it comes to SI problems. Surgeons prefer not to operate on that area as it has a relatively low success rate, but injections have become the standard for treating that area. One person here that can testify to that is TTLC - she's working on that area now (or was last time she posted).

    Everybody has DDD, it's just a matter of to what degree. Some people never feel any effects from it and others, like most of us here, do. And the arthritis thing, well that's one thing that brings many of us here.

    You're very young and I applaud what you're doing to try and help yourself. Keep doing what you can and try not to be too scared. We'll be here to support you along your journey and I think you'll find the support here tremendous in helping you get through whatever lies ahead.

    You're not alone in this, we've all experienced one problem or another with our spines and can understand how you feel. Many, if not all, of us can relate to what it's like to start along the spine road and so we can at least try and make you feel better emotionally about what you're experiencing.

    Take care, and again, welcome to Spine-Health. I hope you hang around and get to know us, we'd like to get to know you.

  • Hi and welcome to Spine Health. I think it is a great sign that you only suffer mild intermittent pain and stiffness. Please keep that in mind as you read through this forum and others. Normally folks show up here when they are already into the stage of chronic or severe pain or facing surgery. The fact you are here now, seems to me to be a wake up call which many of us would have loved to have early on. So many of us run headlong through life never giving a second thought to our backs and what we should be doing to insure they stay strong and healthy. Getting a wake up call allows a person to modify diet, exercise and body mechanics in daily life. Fantastic!

    I am a person who believes we don't have to fall into what everyone else feels we should. I believe we all of us have some capability to pave our own road through life. Hold your head up, educate yourself and press ahead with living YOUR life.

    We are all here for you and you will find there are as many opinions as there are members. Read, listen, take what you need and leave the rest.

    Kindest regards,

  • Thank you so much for the support and words of encouragement. I am feeling better day by day, but I felt almost stunned the first couple days. I am trying to come to terms with the diagnosis and being told it is progressive and will get worse. I am out walking everyday for 30 minutes and trying to do little stretches. I am also extremely conscientous now of my movements and posture. I have an appt with the arthritis society at the end of June and they will set me up for a physiotherapy appt so I am looking forward to that. I also booked an appt. with a chiropractor next week....(not sure if this is a good idea...but I figure he can look at my xrays and give me an opinion).

    I have another appt this Tuesday with my Nurse Practitioner to give me the results of my SI and pelvic Xrays. I think I will ask her to refer me to a spine specialist.

    Hopefully, I can go many more years without needing medications. I bought a bottle of glucosamine and fish oil supplements so I will see how they work.

    Thanks again. I hope to get to know more of you better over time:)
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