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hi everyone im new to the forum

jlm789jjlm789 Posts: 6
edited 06/11/2012 - 8:53 AM in New Member Introductions
hello every one i just thought i would say hi and i hope i can learn some tips from those of you who have more experience with coping with this awful disease.


  • SavageSavage United StatesPosts: 5,427
    You've found the best site ever. So much info from articles, posts, etc...
    I trust you will find something that can assist you and assist with communication with your doc.
    Keep in touch.
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Please tell us more about yourself. This way other members with similar issues can answer your questions, and too understand more of what is going on with you. Welcome to Spine Health!!! Lots of information here, great people (members), and ....'we get it' as they say!! :)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Hi,i am 36 year old women who life has changed drastically since Jan 09. i had an accident where i sustained a Webber b fracture of my left anke to cut a very long story short their was a lot of damage to the joint and ligiments that were undiagnosied i have since had two surgeries on my ankle and have OA in the joint and am unable to walk with out crutches. I also developed Chronic Regional Pain Syndrome in the leg and have had two DVTs the last one just 3 weeks ago.

    I the started to have pain in my back and have just had the results of my MRI and it seems like i have have disc desiccation L3,L4 and L5,S1. I also have disc bulges at L2,L3 and L4,L5 as i understand it from my limited knowledge. It is also pressing on my sciatic nerve down both legs.

    I am on Warfarin for the rest of my life now so cannot take steriods or anti inflammatory drugs like diclofenac, so am stuck taking opioids and diazepam as a muscle relaxant untill i see a pain specialist which is not for another 8 to 12 weeks as the nhs has a long waiting list. i have difficulty do alot of the things i used to do and miss the person i used to be.

    I hope that give you a bit more information about me so if anyone has any tips on reducing the pain if it be herbal supplments or any advice it would be welcomed.

    many thanks
  • Howdy Jlm, thanks for adding more info. 36, bummer pretty young to be on this spiney journey! *HUG* I am in the US, but thanks to this site have a "little" insight to the NHS and all the delays and such. Do your doctors have a game plan for your back?

    I ask that because believe it or not, bulges, hernia's, DDD isn't always a surgical candidate. Conversely, not all cause pain - your's is causing pain from what you've described. Is any of your spine issues radiating into your butt or legs?

    As for your ankle, is there anymore they can do for it? I broke my ankle as a kid and they didn't do much for it. It healed (no real pain to this day), but I have the most funky bump for an 'ankle bone'. My hubby always teases me about it - yeah it sticks out pretty far. (G)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Hi am still on crutches and my ankle treatment is on going i have OA in the ankle and have to see a orthopedic surgeon, but still unable to walk with out the aid of crutches. As for my back you are right it is not sever enough to warrent surgical intervention at the moment. and there is some nerve impingment on the sciatic nerve which is what is causing the pain through hips, bottom both thighs and lef leg more than right but the that is because i have CRPS in the left leg. will just have to grin and bare it i suppose and hope it doesnt progress quickly as you say i am still young to be dealing with this. Any advice on sleeping would be great i have heard sleeping with a pillow under your legs helps is this true ???

    Many thanks for your support :))) :)))
  • Jlm,

    I'm glad to see that they are addressing your ankle. Lots of bones in there can screw things up. Fingers crossed they are able to stabilize it for you.

    I'll know Friday if surgery on my back is in order. There are two areas for me, two herniated (on nerves) disks, and solidifying fat around my cord. Fun... I have found that once you're ready/needing surgery, your body will tell your brain! Seriously, you do actually get to a point where you know if it is needed - not sure if I am there yet for the back, might not have much of a choice with the fat issue.

    Aaahhh sleeping. Myself I ended up buying a fully adjustable TempurPedic (the Cloud) bed, and it has done wonders for me. As for pillows and such under your legs, for sure that does work for many. What I did before my new bed was used a wedge pillow to elevate my head and shoulders, and another wedge for under my legs. It seemed to put my spine in a low stress environment. When my hubby and I go on RV trips, I use the wedge pillows since that bed doesn't adjust! (G) I also (before I bought my bed) invested in a 4" memory foam mattress topper - it was like laying in heaven!

    Others find they are more comfy sleeping on their sides and have a pillow between their legs for better spine support. I can't remember who makes it, but there is a foamy pillow that is shaped such that it stays between your legs when you sleep. I hope that helps a bit - crappy sleep gets old but fast! (G)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
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