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Back again!!

tammycttammyc Posts: 894
edited 06/11/2012 - 8:53 AM in Lower Back Pain
Hi everyone,

I'm back again! It feels like its been forever that i've had back problems.I've been doing therapy for the last few months trying to stabilize my spine,however i'm just getting worse.
I've gone way up on my pain medications,i'm maxed out and can't get any higher on what i'm taking and am still having pain issues. I'm waiting to get into a pain clinic. The last three or four weeks i've started having problems with the way i'm walking.My right leg has started turning inward when i walk and it twists so much that i have muscle strain up and down my legs.My therapist wrote a letter to my doctor explaining that she was concerned about my walking ,leg pain and muscle weakness and said that she was worried that if i put off seeing a neurologist that i may end up with nerve damage. At this time my neurologist has closed down her clinic for medical reasons. I saw my doctor on tues. of this week and she asked me to walk for her out the room and down to her office and back. She tested my muscles and reflexes. I told her that my neurosurgeon had given me a name of a neurologist if she thought that it was a neurological problem that i had the name of another neurologist she could send me to. She sent me for an x-ray on my hip and leg to make sure that there wasn't anything going on with the joint first and she also sent a referral for me to see this neurologist out of town.She said that if this neurologist thinks its necessary he can refer me back to my surgeon. Everyone i know is happy that this has all happened but i just feel so sick about it. I know that its for the best but it just makes me feel so sick thinking that i may need another surgery. :< :sick:


  • Sorry you're back with not so good news happening right now with whatever's wrong with your leg. I hope it's manageable without surgery but your Neurologist will give you more answers and tests.

    I have to go for an EMG/nerve test for my leg May 30 with the Neurologist and concerned about the nerve issue also with the tingling and numbness I have in my leg.

    I hope you don't have to wait too long to see the Neurologist then you'll know better what's going to happen. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Nice to see you on the boards again, but sorry for the additional problems.

    Have you thought about PT? Sometimes we get out of alignment and need readjusting.

    Just a thought. I hope you get to see an NS soon and get this straightened out (pardon the pun).

    Take care my friend.
  • Unfortunately i've been doing physio since february of this year and i'm just going backwards instead of forwards. My pain isn't subsiding and the problems are just mounting. I guess the best thing for me is to see the specialists again. I see that you've been having quite a time as well. I hope that your starting to feel better!
  • Sorry to hear that you're having more major pain issues.

    Hope you won't have to wait too long before you see the neurologist and that he/she will be able to help you.

    Can understand you feeling sick at the thought of more surgery because you've been through it all before and the recovery process is so long.

    Sending you >:D< >:D<


    XLIF L2-4 20.8.15
    ALIF L4/5 2009
    Laminectomy/discectomy L4/5 2008
  • for the hugs trish. Yes every time i think of maybe having more surgery my stomach goes in knots and i feel so sick. I thought after my first surgery that everything was over and i could do my rehab and get back to life again. After my cervical surgery they told me that i'd have to find another line of work,couldn't do what i was doing anymore and before i was doing strengthening my muscles all the other issues popped up with my back and i'm still not back to work over two years later.Now thinking that i might need another surgery and more time off just makes me so sick.
  • Hi Tammy

    Not being able to work is very depressing. I had to retire early from my job and went through a long period of grieving. I so missed the people I worked with but I'm lucky that we keep in contact and have lunch every couple of months.

    Hope you will eventually be able to work again, even though it'll be something different.



    XLIF L2-4 20.8.15
    ALIF L4/5 2009
    Laminectomy/discectomy L4/5 2008
  • I know its sounds awful to say but its nice to know that someone knows what i'm feeling right now. I desperately want to be doing something of value. I realize that taking care of myself should come first,but i just really want to be earning a living and showing my kids that i can take care of them as well as my husband.
  • Hi Tammy

    I found that working gave me more purpose and interest in my life. I worked for the Fremantle Port Authority in the Harbour Master's area, and it was so interesting - lots going on with shipping and the office was right on the waterfront.

    You're right, taking care of yourself has to come first, but having that stimulation from work, you've got interesting things to tell your husband and children, as well as earning money.

    Keep your goal of getting back to work once you eventually get your pain issues sorted, or at least I hope that'll be the outcome for you.


    XLIF L2-4 20.8.15
    ALIF L4/5 2009
    Laminectomy/discectomy L4/5 2008
  • I'm really wondering if i should continue with PT right now or if i should wait til i see my neurologist and see what he has to say. I still don't have an apt. date but i'm really wondering if still doing therapy is a good thing to do. I'm not seeing any progression and actually have gotten worse with my leg weakness. Also am now getting back aches in my upper back around my shoulderblades and going down my arms. I'm not sure if therapy is keeping things from progressing quicker and i should keep going or if its doing anything and i'm just wasting my money and should just wait and see what the neurologist has to say and if he thinks i should return then i would.
  • Tammy, PT and all other conservative measures are to help you. If PT isn't helping, then wait until you see your surgeon, especially if you feel it's making you worse. You could always continue to do the exercises on your own that don't make you hurt more.

    Have you talked to your PT? Maybe they need to target a different area, or maybe you need to quit for now until the NS says it's best to continue, or again, do targeted PT yourself (without shelling out the bucks) until you see the NS.

    I wouldn't do anything that caused increased pain without talking to someone, be it the NS or PT.

    Just my 2 cents.
  • That's a good idea to talk to the Neurologist especially if you're having pain during PT. I agree. I just wanted to say something I know you wish you could work and hope one day you can but you're children's and your husband love is unconditional.

    My Grandma(who raised me when I was a teen) had MS and she didn't work and eventually stopped walking but she was my role model in her determination and strength. You're children will learn they have a strong Mom who's trying to get her strength back and just do what you can and don't feel guilty for not being there because you are there for them. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • My therapist has been working on my hip area trying to stretch out the muscles and get more range in it. The muscles are guarding and very tight .She thought that my leg was turning in because the tight muscle were interrupting the nerve communication down my leg,but i asked my doctor when i saw her about that theory and she said it was very unlikely.She's also doing some manipulation of my spine but i'm not seeing any results obviously if i'm getting worse. The stretches just cause me more pain because my muscle won't stretch out so i really don't see how this is helping me in any way. I see my doctor again on friday so i'm going to talk to her about stopping it at least until i see the neurologist.
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