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need help, need advice

RBearRRBear Posts: 8
edited 06/11/2012 - 8:53 AM in Chronic Pain
Hi, I'm actually writing on my husband's behalf. He has had chronic back pain for several years now. He's been to doctor after doctor with nothing but pain meds handed to him. He's had the rhizotomy burn done that helped some with his lower/chronic back pain. It only lasted a few months. He's had other back injections that don't seem to help. He's frustrated and depressed. He doesn't do any of the activities he loves to do like camping, hiking, fishing, and yes our love making has even been effected by this. For fear of his back going out.

He's in constent pain/discomfort. His specialist doesn't seem to know what's causing his pain they can't seem to find anything wrong with it. He went for a second opinion yesterday on his back and left frustrated and basically at his wits end. The doctor did suggest another MRI which is good because it's been a couple of years since he's had one. He is so concerned that they aren't going to find anything wrong with his back. He doesn't feel like anyone is taking him seriously. They talked briefly about surgery and was basically told that if nothing was seen on the MRI to continue on with the pain management. He doesn't want to do that. He wants answers and he wants reliefe. I want to help him cause I know how frustrating it can be, not knowing what's wrong and whats causing the pain. I went through that before I was diagnoised with Fibromyalgia.

I still think he needs to see a neurologist. I guess we'll start with the MRI and before we go any further I might suggest that. He has an Oh well attitude about the whole thing and I told him he can't think like that. I don't know how to help him or what to do next. I just know that in the last couple of years because of his back pain I've seen a change in him. We left the office yesterday really no further than we are now other than getting an MRI done. I've mentioned setting up a massage for him and for some reason he doesn't seem interested in that. I guess he's afraid it will do more harm than good right now.

What are our options. I hate seeing him miserable and being passed around like this. Are we going in the right direction with this or are we being passed through the system with no beneficial help?


  • Welome to Spine-Health. I'm glad you found us and hope some of us can offer you some good alternatives.

    What kind of doctors have you been seeing? Are they specialists? Has he "clicked" with any of them? What kind of symptoms is he having? There are so many things that can be happening - disc problems (which are usually easily diagnosed), stenosis, spondylosis, facet problems - just so many different types of problems that need to be seen and diagnosed by a someone who really knows spines.

    My thinking is that he needs to see a spine specialist, ortho or neuro, but someone who only works on spines and hopefully is fellowship-trained.

    Since you're hubby is having an MRI, it would be a good chance to take the results to different specialists and see if he finds one that he find especially caring and interested in his specific problems and finding a solution.

    Sorry I can't help you more, but for so many of us finding the right doctor is imperative to moving forward and finding what relief we can. It's easy to say "I have back problems", seems everyone does, but when you have "spine problems" they really can and need to be taken care of.

    Please keep us posted.

  • I read your post and it was almost my problem 4 years ago to a T. I had MRI and CT and Myleograms and no one could find anthing, although I had extreme pain. I went to 7 Drs. I finally went to a Spine Clinic in Mpls, and the Dr there told me that not all disc tears show up on MRIs. He did a discogram and bingo I had 3 torn discs. This is a gold standard for surgeons to see which disc is problamatic.
    I am not saying this is what is wrong, Just a little about what they found for me and how. Good Luck and PM me if you need more info.
    I know how he feels, as I have been there and done that. But there is hope, at least was for me.
  • I think that's part of the problem, I don't think he is truly connecting with the doctors he's seeing. I don't think the one here in town is taking him seriously. He's all the time having to repeat himself about his condition. Shoot half the time if they have to call in a prescription they can't seem to get it to the right pharmacy.

    I'm hoping this new doctor will find something anything on the MRI. The only thing is he is hard to understand. He does have an accent like he's not from here. My husband even said he had a hard time understanding most of what he was saying. At least we r getting an MRI done. I just don't know why we had to go to a second doctor to have that done. You would think his current doctor would've suggested that. He's been seeing him for quite awhile now. I told him that before any surgery is done I want to take the new information to another doctor. I know that's frustrating to him. Sometimes that's what needs to be done though. Just because one doctor doesn't have the answers maybe the next one will.

    I just want to see him back to his old self again. I want to see him happy and doing the things he enjoys. I want to see him getting out more and simply enjoying life and trust me I know that when your in pain and espically if you don't know why it's hard to put on a happy face. I know he tries though.
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