When the body starts warring with your own body, its tough to cope with all the feelings and changes that come along. Facing these issues are tough, especially when you have no support or none that understands the full aspect of accute pain. One day my husband says just rest, don't do anything. Then I hear him complaining that I never cook anymore. Its a roller coaster ride of support and complaints.
My 10 yrs of suffering, losing jobs/changing jobs, losing friends, isolating myself from friends/family, realising my perfectionest ways were failing along with my body's ability to function. In such a short time I went from a very active, virile, busy and outgoing person to someone who can barely dress herself each day. Looking at my dirty floors knowing that my OCD is screaming at me to get on my knees with a scrub brush, rag and hot clorox water to clean it down to the ground then back up again along all walls, cabinets and so forth. Now I just fester at my houses needs that require me to be well, but I.m not. I have no one to do that for me. I can't afford outside help.
We all find ourselves at some point feeling this self pity, this self degredation, self flaggelation for our shortcomings. We have to STOP! Accept each days little accomplishments, praise God for the times you are able to help someone else. Look for reasons to get out more, pledge to yourself you will find a group to start a special excercise group for those with your certain conditions & have your dr. recommend a program. We must make things happen for ourselves, if we wait on others to do for us....we get lazy and self-loathing. We find accomplishments in doing something new each day. Just call up that old friend/family member & bridge the gap w/just a invite to casual lunch. Love yourself, without that how can others love you. YOUR light has to shine first. Come on, lets get up and shine our light more. May God support us in this effort.