I dont quite know where to put this so any pointers would be lovely- as would any advice.
I've had chronic sciatica for over 10 years now and had no joy with my local GP or pain specialists. I made an request for a second referral to St.Guys & Thomas' in London and things seem to be going well- at least they are offering me options for longterm pain relief rather than stuffing me full of pills.
I had my daughter nearly three years ago now and since then, I have have three ''episodes'' of completely different symptoms to sciatica that last around about 2-3 months. The last one was the longest at 4 months. I start off feeling like I have the flu, I get achy and cant get out of bed very wel and most of all, my feet burn and hips/ knees kill. My mobility is restricted in the mornings for about 2 hours and I walk like I've just come off a horse. The worst thing is the overwhelming tiredness and inability to concentrate. It gets worse before it gets better and fades away.
First time around a nice kind locum doctor gave me prednisolone and I cant tell you what a difference these made. I have requested them every time I get a flare up and within 24 hours I can move!
I was referred to rheumatology, who came to a vague conclusion that my chronic pain has brought on chronic fatigue syndrome, which just doesnt wash with me. The more I research CFS, the less I can associate with it.
This 3rd occurence started end of March and I coped really well until mid april. I saw my GP for advice and he recommended stretching at night to help relieve the stiffness in morning. (!) yup. Went on holiday to Greece where it got steadily worse. Found some predisolone in my cupboard when I came back which helped so much and made an appointment with GP to get more. He decided to advise against prednisolone and wanted to send me for a blood test.
I spent this past bank holiday weekend crippled going without prednisolone as it would affect the blood test markers. I did the test on tuesday and immediately after saw a locum GP for a sneaky script of prednisolone to get me through. Have felt much better since been on low dose.
Phoned my GP for results today and apparently I have raised inflammatory markers which indicate that something is going on but he said he didnt think it was anything serious. He failed to notice I am under the care of a rheumatologist already and offered to refer me to one. I guffawed and set him straight about what they have diagnosed me with. I asked him what he would recommend and he said just a referral and pain killers. I said that to get an appointment will take 6-8 weeks and what would he do to help me in the meantime. He said that I should take time off, take painkillers and rest up. The man is a lunatic who doesnt know his arse from his elbow and I have lost my trust in him. I take pain relief every day for my sciatica so I feel that if these would have worked by now, I wouldnt be in this situation.
He says that my sciatica and the new symptoms are one and the same muscular-skeleto issues. He said that granted, the pathology was different ( sciatica pain vs extreme fatigue, stiffness in morning, aching joints all over)but the treatment was the same: all the drugs I have tried over the years without success for sciatica. So now I am officially peed off and bemused.
Please please please, can any if your guys relate to this? Has your sciatica prompted another set of symptoms to come up like mine? Any ladies experience symptoms similar to my non-sciatica pain after birth? What did you do? What can you suggest? I see my uber-fantastic new pain specialist from London later this month and I would love to hear what he has to say on this too. But first, I'd like to hear your experiences.