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Pain pills don't work for me

davidmddavidm Posts: 32
edited 06/11/2012 - 7:53 AM in Pain Medications
I have tried, Percocet, Lortab, all did nothing. The only thing that helped me was Oxycodone 30mg 4x day. My pain was about 90% gone and I could do things, as if I had a life. But that put me in a bad mood. My family didn't want to be around me, so I stopped and that's when the pain management doctor started with the dilaudid.

My PM doctor has prescribed me Dilaudid 4mg 4x day. Did absolutely nothing at all. Went back and he gave me Dilaudid 8mg 3x day. Guess what still does nothing.

Right now you can say we are "experimenting" with the medication to see what works, and what doesn't.

I know that probably none of you are doctors, and even if you were you would need to see me in person along with all my medical records.

What I am going to ask is based on your opinion, experience, and what your doctors have told you or you heard, etc.. I will not hold anyone to it I'm just trying to gather information.

Being that some of the strongest drugs out there do nothing to me ( besides oxycodone ) Does it seem that I am opiate tolerant?

I have read people who take Dilaudid pills some they do nothing at all to, like me. They get a prescription for dilaudid-hp, which is a liquid which you inject, and the injection works great.
Has anyone ever tried this? Why would injecting it work better then a pill?

My doctor told me that if the shots in my neck and lower back don't work that my only option would be surgery. I'm in no hurry for surgery, I'm going to be going to college, and trying to make a life.

All I want is some pain relief from the time I wake up until I go to sleep I have pain.

I will greatly appreciate any information, experience, etc. That anyone can offer me.

David

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Comments

  • Just needed to add, I need something that is instant release. My Primary doctor told me that I have a fast metabolism, that's why I need to take pills several times a day.

    My Pain management doctor told me that I'm a big guy ( built big ) and just that you need to start off on a higher dose. My dad sees the same doctor as I do and the doctor told me that You and your dad both need really high doses, to help the pain, small amounts don't help either of you. You probably inherited this.


    Thanks,

    David
  • David - I am not sure from a medical point why one person responds to a med that does not touch another person. I have been given some very strong pain meds only to find them 100% worthless, they did zero for me.

    Yet meds that people would consider weaker that are in the same family (opiate) have removed about 75% of my pain. Go figure.

    As for you & your dad, again I don't know. My daughter (an adult) needs enough meds to help her pain that may very well kill me if I took the same dose as she does.

    I have a few questions for you. How long did you try the Oxycodone for? I am asking as maybe you needed more time for your body to adjust.

    The second question is since your mood was the only issue with the Oxycodone did your Dr consider adding a psychotropic med to your "cocktail"?
    I am sure some here will disagree with this suggestion, but I know if I found a med that took 90% of my pain away and had that one side effect I myself would consider it, but that's just me ;)


    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • Ms. HumptyDumpty,


    I toke 15mg 3x of Oxycodone for about 1 week, went back because it did nothing, and received 30mg 4x I toke that for about 4 days. I will definitely ask about that.

    I'm really surprised that the Physicians assistant, or the doctor when I went back didn't suggest that. When I was on that my pain was minimum.


    Not trying to be nosy, What pain medications do you take? How do they work for you?

    David
  • David,
    My pm dr has to put me on high doses & switch my meds every 6 to 8 months due to adapting very quickly too meds. I've a very high pain tolerance so treating my pain is harder than most since its crippling by time I seek help. I've suffered for yrs with times of brief relief.
    A cocktail of meds is how I've been treated for yrs.
    Good Luck,
    Traci Mac
  • MetalneckMetalneck The Island of Misfit toysPosts: 1,614
    That being said ... a couple of questions ... what have "they" actually diagnosed you with? Cervical- Thoracic -Lumbar? Herniations - Numbness - Radiculopathy - weakness of limbs? Have you been seeeing board certified specialists (Neurological or Orthopedic - Pain Specialists?? What type of physical therapy if any has been attempted? What type(s)how long? any help? How many years young are you and how long have you had these issues? Was there a specific trama that started this or???

    About meds ... Most of the opiates you have mentioned are designed as short acting with an effective duration of around 4 hours - Have you tried any longer acting meds such as MScontin, Oxycontin, Fentynl patches, Methadone. Have you tried any of the neuro (anti-seziure) type meds such as Neurotin? Why haven't they done the steriod injections into the effected areas yet? Its sounds like you have a primary care doc managing your case when it maybe time to get the involvement of other specialists.

    Sorry .... ask me 2 questions and I'll turn around and ask you 20 more .... Been down all these roads (as SO many of us here have) before. I have been DX'd as "Opiate tolerant" and have been "habituated" to massive amounts of most all mentioned before ... I have been able to (with the help of a pain specialist) find an effective mix for me.

    Respond at will - Tell us a bit more about yourself and what else has been DX'd and modalities of treatment?

    Regards,


    d
    Spine-Health Moderator
    Welcome to Spine-Health  Please read the linked guidelines!!  (Click on Welcome to Spine-Health)
    My Story  - Click below
    http://www.spine-health.com/forum/discussion/44804/pain/neck-pain-cervical/long-and-winding-road
    I am not a doctor nor have I ever played one on TV.  Therefore any comments made are based on my experience.
  • davidm said:
    Why would injecting it work better then a pill?
    Bioavailability.


  • I have had pain for about 3 years, but only started seeing doctors, because it got more severe about 2 ½ years ago, I was diagnosed with Hip Dysplasia, Narrowing of my left knee, and Arthritis in my neck.

    I was recently diagnosed ( less then 1 month ago ) with 3 bulging discs in my neck, 3 bulging discs in my low back, and spinal stenosis. He said I have spinal stenosis both in my neck and low back.

    In July 2010 I was in a fight and thrown backwards on a hard floor, after that the pain gradually started getting worse and worse. I have tried physical therapy for about 2 months, tens unit, ice, heat, back braces, etc... All of which does not help the pain.

    I am seeing a pain management doctor, he wanted to do the shots sooner, but I couldn't because I have something very important coming up, and I didn't want to risk it putting me in more pain.

    My dad had these shots on his back, and the first 2 made it worse. I wouldn't of been able to have all 3 shots ( every 2 weeks) done by when I needed to


    I have not tried anything longer acting like you mentioned. The doctor told me that I need something instant relief, and he doesn't want to put me on fentanyl patch I don't know why, he just doesn't want me on it.

    David
  • I think most of us who are taking high level of medications had surgery for the most part. In my view if the standard medications dont help is when its time for surgery to take place to get some releif where hopuefully no medication will be needed after surgery. We already know pain meds just mask the pain from the injury so i am not sure why dr would even prescribe oxy and deuladid at such high doses without trying to fix the problem for a patient. For short time i guess is fine but person cant go on these meds for a lifetime. Not without some sort of surgery if its an option. Some of us are stuck taking it because we ran out of any further options. Just saying cause you mentioned a lot of meds but did not see anything about surgery options.

    Injections can help with the inflamation and less inflammation less pain less meds,
    Injections worked for my mom when i took her in for her stenosis and 2 injection later with pt she is fine at the age of 76.

    Wish i was as lucky, Good luck
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Hi David,

    I don't know what type of medical issues you are having but shopping around for a doctor that can offer different treatments might be better right now.

    As for surgeries I HAD TO due to losing all function of both legs and right arm. The lumbar surgery did allow me to walk again but I do have nerve damage that contiues to cause pain but not as bad. The neck surgery did allow me to have use of my right arm. The damage there is severe & all pain/numbness was not resolved.

    They said I waited to long on both. I was 30 with lumbar & didn't want to face that my life would change. Sports are now spectator for me & since neck surgery my motorcycle is only rode by my hubby.

    Please make sure you do everything you can before surgery is considered.
    Best pt for me was soaking in hot tub the a deep tissue massage. Would relax my muscles which took strain off my neck & back.

    Best of Luck!
  • MetalneckMetalneck The Island of Misfit toysPosts: 1,614
    Sounds like you are stuck between a couple of rocks and a couple of hards places.

    Have you asked your doc about a combo of meds ... anti-infamatories - "nerve" meds (neurotin) and a long acting in addition to a shorter acting??

    It sounds like there are still many untried med therapies available and it might just take some time and trials (no errors please) to find a combination that will help you.

    PAIN IS A FOUR LETTER WORD

    Sorry you are going through this - you are not alone.

    Keep us posted on how things progress?

    d
    Spine-Health Moderator
    Welcome to Spine-Health  Please read the linked guidelines!!  (Click on Welcome to Spine-Health)
    My Story  - Click below
    http://www.spine-health.com/forum/discussion/44804/pain/neck-pain-cervical/long-and-winding-road
    I am not a doctor nor have I ever played one on TV.  Therefore any comments made are based on my experience.

  • Today I went to a new chiropractor, I know hard to believe a doctor would work on the weekends. They put on an e-stim on my hips/lowback, and then he adjusted my hips. My hips feel better.


    Alex


    He is giving me this strong of medication for a couple reasons. I am in a severe amount of pain. We are going to try injections in less then a month. I need something to help me get by until then. If the injections don't work, I will try to wait as long as I can to get surgery. I have a lot of things going on in my life, and surgery is going to be my last option. I'm going to try these injections, and I'm sure there are other things that I can try.

    He is giving me high doses because, Low doses don't do anything
    I have done some research, if you were to take 100 people and give them 8mg of dilaudid 90 people, it would knock them on their butt, and is a high dose for them. The other 10 people are like me it doesn't do anything, while it may be a high dose for the 90 people it isn't a high dose for me. For me it's like taking advil which does nothing at all.


    Traci,

    I am sorry for what happened to you. I'm willing to try everything before surgery. I by no means will let it get that bad, but I'm still in no hurry to have surgery, especially if injections and or meication can postpone it.

    Metalneck

    My Doctor is wanting to take things one week at a time nice and slow to see how things work. If it was up to me I would be going to him every day. The amount of pain that I'm in is unreal at this moment, my neck is killing me. My back is hurting some but not nearly as bad as my neck. Right now I want to get on something to help me with the pain.

    I haven't asked him about neve meds, and combining things, but I will.


    Davidm

  • I hope the chrio Dr can help you get relief and stay that way.
    Currently I take a instant relief drug and a extended as well. Maybe he can give you something like that. I have an alarm set on my phone to take theses meds at scheduled times. My meds are staggered as well. I really believe the methadone I take has helped the most along with the oxymorphone. I take cymbalta for nerve pain (this is a more pricy drug but other have blown me up like a balloon!). Then there's the voltaren gel that I use for inflammation.
    I wish you the best of luck. I was 16 when all this started with me. No accident just really bad luck I guess. I promise there's something that will help it sometimes feels like an eternity of time to find it.
    Traci
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