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super scared

stupidnecksstupidneck Posts: 3
edited 06/11/2012 - 8:54 AM in Spinal Stenosis
hi im a 29 year old female in need of neck surgery i knew i had a problem when i was 20 but had no idea how serious and didnt want to know -- Im 20 im not having surgery on my neck the doc is crazy im fine ---- fast forward the pain can completly disable me and i have a seven month old 10 yr old and 4 step kids under 8. the docs tell me i will be paralized soon im unsure the exact names of my conditions but i know ddd cervical stenosis something that starts wih an m ( a white spot on my spinal cord on the mri) bone spurs a spinal cord being crushed and congentital something i think thats everything. I know i should know exactly whats wrong shame on me and even though i can no longer ignore the problem i still have good days and dont want to belive all of this. I don know how to find a doc ive been to a few they all say Dont fall dont get in a car accident no roller coasters i dont want to hear any of it. its terrifying i can die or be paralized if i fall down? needed to vent and if anyone lives near pittsburgh and can refer me to a good doctor im in need and i would love to hear if anyone has simalar issues and had succesful surgery i need some encouragement and the ability to face this problem thanks for listening


  • Supidneck,

    From what all you have posted, sadly my guess is they are hedging because of your age! Yeah, one of those "too young" type of things. Because many of us have adjacent level issues after fusions requiring more surgery, below about 40-45, surgeons get a bit antsy on spine surgery.

    You might want to ask them straight out if that is the issue that is blocking you getting relief, and if so, "if you don't have corrective surgery vs have it", what is the probable outcome? I would actually look at other specialists to see if you can get more valid answers. Please let us know what you find out. So sorry you are going through all of this.

    As an example, my disks (neck at the time) started going south when I was 41-42, but surgery didn't happen until I was 47! In their defense, I was able to get by, but once the disk got on the cord, the game play changed....

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • dilaurodilauro ConnecticutPosts: 9,839
    to pin your doctors down to give you an exact diagnosis of your current medication condition and what their action plans are.

    Age does not matter, when it comes to spinal problems and discomfort, there is no such thing as age discrimination. Sure, you would think there wouldn't be that many spinal problems in younger people, but the fact is that there are!

    I've read a few posts from members where they say the same thing. If I fall or have a car accident, I can be paralyzed,etc To me that is somewhat of an overkill statement by doctors. Sure there are risks associated with any spinal problem and when the nerve root is impacted, things can get complicated.

    Do you have results of diagnostic testing that was done? What tests did you have? What treatments have your doctors started you on? What medications are you on?

    Take a look at these Spine-Health articles:

    Degenerative Disc Disease

    Spinal Stenosis

    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • ive had two mris and have sen two nurosurgeons and a nurologist i tried to avoid surgery i would be able to handle this much better if i had another option. that is why i went to the neurologist at first he offered pt but as soon as he got my mri he personally called my home 8 times in two hours till i answered to tell me the results and his recomondations. and all of the doctors have told me i will go paralized if i do nothing i have also had x rays looking for mobility of my neck i have always had limited mobility even as a child at one point i thought i had klipple-feil syndrom i may have spelled that wrong. anyway i am going on vacation on friday and plan to really research doctors when i come back and even while im there any recomondations on where to get good information on doctors in my area? i checked heath line and health grades but im looking for patient testamonys any ideas?
  • When I was 21 years old I was diagnosed with lupus. I was told that I would be dead within eight years. They said you can't go to school, you can't have a second child, you can't work. Yada Yada Yada. My second child is 38. I got a PhD. I held down a fulltime academic position for 30 years. I am now 64 and being inundated with medicare paperwork. I also have two additional autoimmune conditions and several congenital structural issues - one related to my kidney and two related to my spine (scoliosis and stenosis)

    Learn all that you can about your condition so that you can understand the MRI reports and what they physicians are saying. They must be over cautious for reasons of liability. But do not live in constant fear. Stress and fear will ruin your life more than any diagnosis.

    Good luck finding the right physician. But also find someone to help you learn to cope with the stress. I will keep you in my mind. I know that like me you will live long and you will prosper. NO FEAR.
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