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Cervical surgery coming up

elleHeelleH Posts: 16
edited 06/11/2012 - 8:54 AM in New Member Introductions
I am new here and the reality of my surgery next week is just hitting home hard! Feeling very scared and suddenly I want to run in the opposite direction! Actually, to be able to even walk at a proper pace would be good, run would be a miracle!
This surgery is just the start to a run of others needed due to early osteoarthritis in other parts of my body but I am desperate for my lumbar region to be sorted as the pain is terrible and I think its that which will put me in a wheelchair before anything in fact as the waiting lists are so long it will be a while before they can do it after this. I have other health issues which makes this operation complicated with extra risk which is why I am extra scared. I feel everyone else is carrying on with their lives as if everythings the same yet it could all change next week and not necessarily just for the better. I know a positive attitude is important but I have to be realistic and responsible too and I know my risks, as do others around me, I just dont understand how I am the only one facing it openly.
Anyway, this is me, needing some support and glad to be here. Thanks everyone. Great site.


  • First off stop and breathe....you will be alright sweetie!!! I remember when I was coming up for my surgery , I was terrified and it was this very site and these very people that got me through!!! Now , I do not know everything that is going on with you but I do know that you don't have to go through it alone...we are here and we want to help!!! If you ever need to talk then just let me know and I will be there!!! And remember you can only take this one step at a time...slow and easy is just the perfect pace sometimes!!! Keep your head up and we will be here as you need us...you will be in my thoughts...take care!!
  • It's really normal to feel afraid before such a major surgery. I can remember being terrified before my fusion. It ended up being so much easier than I had imagined. Now lumbar can be a whole different beast, depending on what you need done.

    Perhaps if you let us know what you are having done and what may be in your future others could help you relate to what is upcoming. There are so many helpful people on this site and I'm sure we will all be here to help you through.

  • First let me say welcome to spine-health. Have a look around and unfortunately you will find many here whom understand the very things you are going through.

    It is normal to be scared of surgery, after all it is surgery. The best you can do is be prepared for the worst, as I have always done. Then recovery becomes so much easier. The most important thing is to follow all of your surgeons orders. As soon as you can begin a walking a program, as it is important to get moving. The longer you lye around the harder and stiffer it becomes. Look in the surgery forum at the top of the page and there is a thread for post op needs. Read through it and you will find some great advice on things people needed post surgery.

    Good luck on surgery, and post as soon as you can as to how your doing. Remember one thing we all get it, as we have all been there or headed there. Once again welcome to spine-health.
  • Welcome to Spine Health! Sorry to hear you have multiple spine issues going on. Lots of us do, and so you will find a support team here!

    I didn't know about this site (any like this for that matter) before either of them, and I was freaked out - that would be an understatement! Hopefully like many of us, you will find the pre-surgical stress is a lot worse than what you will find when you awake after surgery, and hopefully many of the negative issues are a thing of the past.

    Again, Welcome aboard!!! Support *HUGZ*

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Thank you everyone, it helps to have you here! This operation is because I have multilevel degenerative disc disease with
    thecal sac indentations extending from C3-C7 level, particularly worse at C4/5 and
    C5/6 levels..osteophyte disc bars,..with evidence of spinal cord compression and bilateral exit foraminal narrowing. I also have a neuromuscular illness which leaves me weak or semi or fully paralysed for anything from fleeting seconds to days and can be triggered by adrenaline, stress, pain, various foods, drugs, etc etc and this surgery is most likely going to be a big trigger as is the pre lead up which I am already noticing and the post op recovery time. My mobility and ability to get up and walk around is going to be very compromised. After what should have been simple keyhole surgery and a few hours in hospital i didnt go home for 2 weeks. This time they are better prepared, I think, and hope, but its all down to which Docotr is on duty, if they have heard of it before, understand it, want to, or believe it. Yes, last time I had one who was on weekend shift who thought I was faking that I couldnt shake his hand and waited to do a blood test, by the time he did I was very ill and then of course the test proved I wasnt faking and suddenly the drip was set up quickly! What I dont understand though is people complain of neck pain but I dont have really have neck pain. My specialist said my neck is very unsafe though and at high risk of permanent cord injury particularly as I am at high risk of falls due to my weakness.

    I have an upper thoracic spine scoliosis convex to the left centred at T2/3. and minor
    non-compressive disc-osteophyte bars at T6/7, T7/8, T8/9, T10/11and T11/12. These may be worse now as that was from a scan 2 years ago.
    My lumbar problems stem from a disc that herniated 2 years ago and then shrunk but I suspect has done something again. It showed as a broad based disk bulge at L4/5 with an extensive left paracentral
    extrusive soft discal component which was seen to migrate craniad along the L4
    vertebral body. Then seen to compress the transiting L5 and exiting L4 nerve
    roots on the left.
    All I know it is soo painful to walk anywhere now but they said to do anything with it they would have to flex my neck which they could not do until my cervical surgery is complete as it would be to dangerous. The waiting list is many many months, I dont know what I will do.
    For my post op recovery from this first op they have said they will just take it one day at a time. No prognosis, no plan. Just see what happens as its unpredicatable and I think its that which is scarey. I am going to High Dependency and see what I am like from there. Do you think its normal to not have pain in my neck with this? It seems to be what all the Doctors ask me...'Hows the pain'? I get juddering through my body and all sorts of really horrid sensations, shocks and extra weakness and pain and burning around my clavicles and shoulders if i use them but no excrutiating neck pain?
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. so glad you dropped in! sorry to read you are facing surgery but it is a chance to become pain free!! please be sure and follow the doctor's orders to the lettter!!the forum can be a great place to visit during recovery.. it can make a long day go by alot faster!! good luck! Jenny :)
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