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Chronic Pain and me...

NoMorePainNNoMorePain Posts: 1
edited 06/11/2012 - 8:54 AM in Chronic Pain
I am a 28 year old male. I have had chronic back pain since my teens that has gotten considerably worse this year. It is now to a debilitating level. I started seeing my GP about the pain in January and 6 months later its worse than ever.

I have always had pain that I can best describe as the sensation of pressure where my lumbar and thoracic meet. If I stay in flexion for to long (dish washing or the like) I have a really hard time getting straight again and pain is increased in this area.

I have also had a sharper more burning pain very low in my back and across the back of my hips for along time. The pain here varies and the triggers are less identifiable.

The last few days I have been having pain down the front of my thighs. It feels like the "growing pains" that used to keep me up at night crying when I was kid. This pain ends at my knees which ache (long term) especially on the sides.

Back at the beginning of the year my doctor ordered a few xrays, mri and a nuclear bone scan. From what I'm told nothing shows up in the T12-L1 area where I feel the "pressure pain". At L5-S1 there is spondylolisthesis or spondylolysis depending on the mood of the docotor. An amount of arthritis that my doctor says is normal is present. After being referred to a physiatrist I had extension/flexion xrays (That I thought would have included the T12 area but didn't). These showed instability at the L5-S1 that varies with position. The xrays also show a broken facet joint on L5.

I have seen a surgeon but she told me that I don't have neurological pain and therefore she wont do surgery (I'm unclear how she tells?). I have been on many different meds including NSAIDS and muscle relaxers. Most recently I have tried Tramadol and lidocaine patches. Non of these have even touched the pain. PT has left me with increased pain and difficulty with even basic mobility for the days after.

The pain prevents me from working and living a normal life. I cant take care of my house let alone go out and create an income. Sleep is often impossible. I never would of guessed that this would still be unresolved after so many tests and treatments. Where do I go from here? Any help or ideas are greatly appreciated.


  • Took years before they finaly did discogram to check the l4l5 disc which finaly confirmed i had leaking disc that never showed up on mri and any other test. You might want to look in to that. Pain management dr does the discograms usualy as far as i know cause thats who found my issues. Good luck.
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Finding the right medications, or combination thereof. If they can't do surgery, then you have to find a way to control the pain to a reasonable, livable level. For me personally, narcotics are my answer. Nothing else works. In my mind PT is a joke and causes more problems than it solves, but I suppose it all depends on the individual. I would suggest finding a doc that specializes in pain management. Primary care doctors are worthless when it comes to pain management. Good luck, I hate to see anybody so young starting with this crap. Sucks when your old and have it - you are just starting your life which makes it even worse.
    Good luck - Marion
  • The first thing I would do is see a different surgeon because it appears the one you saw is disinterested at best, and there are more. It took having a discogram the get the ball rolling for me. Something is definitely not right in your spine and it needs to be found.

    So, I would ditch your current surgeon and find another, tell him or her what is happening and maybe even keep a journal of notes as to what is going on with you to go over with whomever you need to share that info with.

    Most importantly, ADVOCATE for yourself....it's YOUR pain, YOUR body and YOUR life! :-)

    Good luck, please keep us posted!
  • I can relate. I also had back pain at a very young age. It grew worse year by year. I can't count the number of doctors I've seen or the therapies I've tried--everything except surgery. I resisted any type of surgery for back pain because a relative, a surgical nurse, warned me against it.

    But 2 years ago, at age 59, I was at the end of my rope, nearly immobile, in constant, debilitating pain, unable to work. I went through a series of workups by specialists in several different fields who all came to the same conclusion--total joint replacement of both big toe joints, both knees, both hips. They advised me that even with joint replacement, I'd be confined to a wheelchair because of the condition of my spine.

    I felt hopeless, and after a life of pain, frankly suicidal. And then I read Forever Free From Chronic Pain: The Pain Sufferer's Guide To Getting Your Life Back by Dr. XXXX. His web site is http://www.noway.com .

    Dr.XXXX discovered two abnormal foot structures which cause musculoskeletal problems resulting in lifelong chronic pain. I asked Dr. XXX to review my medical records and he diagnosed me as having preclinical clubfoot deformity. He explained that being born with this abnormal foot structure caused my posture to deform as I grew. He promised that once my posture was corrected, my body would be able to heal itself without any surgery or medication.

    At that time, I had no trust left in any doctors. I didn't exactly believe Dr. XXX claim that he could treat people by long distance. And my feet looked normal to me. But I did have what Dr. XXXX describes as one of the tell-tale signs of an abnormal foot structure--the heels of my shoes wore down unevenly.

    Because I was desperate for a chance at a normal life, one outside a wheelchair and nursing home, I decided to start therapy with Dr. XXXX. I've been in treatment with him for one and a half years and I can only describe his therapy as a miracle...and I don't use that word lightly.

    After two months, my pain dropped from a constant, unrelenting 10 to a 5. After six months, my daily pain level was 3. Today, after a year and a half, my daily pain level is a 1. And I can easily forsee a future where chronic pain is just a memory. I'm back to work. I've been able to start tai chi classes, something I always wanted to learn but was never able to tolerate.

    Only someone that's had lifelong chronic pain can understand what I mean when I say that now I have a LIFE--and Dr. XXXX saved it. Dr. XXXX book is available at Amazon, but much of the information in it is available on his web site.

    Personally, I have found Dr. XXXX to have a deep understanding of the causes of musculoskeletal pain and extremely high ethics. If he finds a person does not have one of the two abnormal foot structures he treats, he will not accept them as a patient, but will discuss his findings as to the actual source of their pain and do what he can to help them find appropriate treatment. If I could clone Dr. XXXX, I'd put one of him in every clinic in the world. Since I can't, I'll just suggest a visit to his website for a better understanding of his work. ( He has a research website for medical professionals that want to learn about his work, but laypeople that don't speak doctoreeze should visit Curing Chronic Pain.)

    Post has been edited. Forum violations of identifying specific doctor names and a doctors web site

    Ron DiLauro, Spine-Health System Administrator 07/14/11
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