Opinions please! I don’t post very often but I do read pretty much every post. I used to be a lot more active here but lately, it hasn’t been emotionally possible. I know none of you can diagnose me, but in my humble opinion, I believe you all are (Gasp! Do I dare say?!?!?) Smarter than most doctors! :-D So here it goes…
I have spinal issues at 6 levels, the bottom of my thoracic and my entire lumbar. I’m 24 but have been dealing with this for 9 years, so this is nothing new. I’ve had some, apparently minor, loss of sensation in the saddle area and decreased sensation when going #1 but no glaringly obvious Cauda Equina. It’s always been blamed on chronic nerve irritation. I’ve had the standard back pain and nerve pain, to put it lightly.
Then, about 3 months ago, I started with a new symptom. It was swelling and redness in my ankle, instep of my foot, and bottom half of my calf. All of this was RIGHT-SIDED ONLY and I didn’t have swelling in my toes. My MD was worried about a blood clot, so he sent me to the ER, and then wasn’t satisfied with the first ER so he sent me 2 days later to another one. Both ER’s, no blood clot. They all said something is wrong but they don’t know what.
I followed up with my PMD, and since I’ve recently had to see his, um, how do I put this… Less-than-capable PA, all that “professional” did was look at it and say it was swollen. Gee, like I didn’t know. It wasn’t made to seem urgent to any degree, so I let it go.
Throughout the past 3 months, it’s gradually moved to both legs, and is now swollen in both sets of toes, both insteps and the outsides of my feet, my entire ankles, my calves, knees, and quads. I finally saw my PMD in person, after many moons, and he ordered an EMG due on July 20th. I’m absolutely terrified of this test because I’ve had it twice quite a few years ago, and it is ridiculously torturous! But… I know it’s necessary to start to get to the bottom of this.
It was also brought up before this new stuff started that I need to see a rheumatologist to determine if there is an underlying auto-immune or connective tissue disorder causing all my problems. I have ligament laxity, which I’ve always been hyper-flexible, and more-than-normal degeneration in every joint in my body. I also had a failed knee surgery at age 15. Yeah, GYMNASTICS IS THE DEVIL!!!!!!! So far, none of the diseases seem to fit my complete set of symptoms from my research, but that’s for another day.
Ok, so that was the long-winded way of getting to my question. Have any of you experienced this progressive swelling? Or have any ideas that I could bring up to my doctor?
If you’ve made it this far, you have my sincerest gratitude! I appreciate all of you! And even though I’m not emotionally capable of responding as of late, I still hear all of your words and send all of the positive energy I can muster to all in need! Thank you so much for your support and intelligence!