Ok, first and foremost, thank you all for your support! I felt really bad with not keeping up and responding, but to be very blunt, I’ve been too depressed. I really, really, really appreciate all of your support and ideas!
The swelling from my toes to my thighs is not from nerves… At least not due to permanent nerve damage. I had my EMG yesterday, the doctor was very kind and talked me through everything. He said something’s wrong but he doesn’t know what. I have to go to a rheumatologist but the one they referred me to was a complete putz with an ego the size of Mt. Everest that even shined through the two staff members I spoke with when I called. I called my doc and asked for a different referral, which I got but haven’t called yet.
I’m scared. When I thought it was just nerves causing the swelling that related to my 9-year and counting back problem, I wasn’t afraid and I knew there was no additional treatment that would be needed if that’s what it was. But now that I don’t know what’s causing this, I’m scared.
I’m considering it might be one of my 6 bad discs pushing on my spinal cord. I had an MRI in January that showed that one disc was. Since my swelling came on at the same time as drastically increased back pain, loss of sensations in my legs and feet (even my normal nerve pain) and a few other things, this possibility hasn’t been ruled out yet. I have had urinary retention for years now, just never able to empty all the way as well as unable to hold it, but I’ve always been told it’s just from “chronic nerve irritation.” This problem seems to have also gotten worse in the last few weeks.
I also have another symptom now. I have some swelling in my lumbar area, about 2-3 inches away from my spine and about 5-6 inches tall. Who knows.
Ug, I’m exhausted. I’m tired of this. I’m 24 and need a vacation out of my body. When most people my age are going out to bars and parties, I sit here, at home with my future husband, just trying to be ok for work the next day. We’re moving out of our disgusting hell-hole apartment complex this weekend into an awesome place. I’m stubborn and will be trying to back my clothes and stuff because I have juuust a touch of OCD, hahaha. I’m so incredibly grateful for my future husband! He doesn’t want me to pack at all, but I know he’ll pick up where I leave off when my body poops out, haha.
I wish I could shut my mind off. Even just for a minute. Ug. Thank you for reading my gobbldy gook!