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I need some support :(

paininbackppaininback Posts: 5
edited 06/11/2012 - 8:56 AM in Chronic Pain
It's been 2 years this week since my auto accident that started back problems. I had compression fracture of L1. After bracing didn't work, I had fusion of t12-l2. I went back to work after 8 weeks. I then started getting bulging discs...c4c5 with spurs, t2, L3, and L5. I had a neurostimulator implant in 2/11 for my lower back pain. Dr doesn't seem to want to acknowledge my middle and upper back pain. I am now in aquatic therapy which doesn't seem to be doing anything. It is week 9 of therapy. I've had the traditional therapy too but it was too painful. Anyway, my doctor makes me feel like I'm an addict or just a whiner. Today he added Desyrel to help me sleep.
Anyway my question...my pain gets significantly worse around 6p (I don't even need a clock!) and it progresses until about 3-4am. I take my pills, take hot shower, heating pad (yes I've tried ice) with no help. My doctor made fun of me when I asked him why my pain increased at night..his reply was "maybe the moon and sun get in alignment with the stars??" does anyone else experience this? and it is not because I'm settling down for the night and then notice it. I do not work so I take it easy all day so my mind is not "focused" on something else during the day..another idea my dr had. Thank you in advice. I feel so helpless, like no one believes my pain.


  • What kind of doctor are you working with (sounds like a PM)?

    Since my MVA I was reffered to PM by my NS. It has been a great thing for me. My PM said no SCS yet. My issues go from t4- L1 and I wont get adequate coverage. Is there any way for you to get a second opinion? My NS is primary for my spinal issues but my PM does the pain meds and did arrange for me to get a second opinion with another NS.

    My PM has me taking meds every 8 hrs (extended release Oxycontin CR & a muscle relaxer- zanaflex). Even though I am taking 40-50 mg of this med I still need break through pain medication (which I take daily usually later oxycodone 5 mg up to 4x).

    I assume you are like me. The longer you are up working the worse it gets. My PM said it is normal to get higher pain toward the later afternoon/evening hours. If I have a busy day it gets worse right away.

    Have you tried the lidoderm patches (lidocane). They help me a lot when I am going to have a tough day I use them. Also a good tens unit (I have a large EMPI). I use the ice to numb my back 2-3 times every evening but also use a heating pad a lot. A favorite for me is the bed buddie (microwave to heat neck wrap).

    Feel better >:D<

  • Hi paininback. I totally understand how hard it is when no one seems to understand your pain. It's especially hard when your doctor is the one not believing you. My son has been dealing with severe back pain for 3 years and we've run into so many people, including doctors, who questioned what he was feeling - as if anyone in his right mind would give up his entire life for the fun of it. We even had one emergency room doctor tell him that he just needed to "suck it up" and "decide" to go on with life even when the pain "hits". Well, he obviously didn't understand that the pain is CONSTANT no matter what and there are just times that it is worse. I would never wish back pain on anyone, but sometimes I wish there was a way to help people understand. I don't know why your pain is worse in the evening. My son's pain has always been the worst in the morning, but often so bad at night that he can't sleep - not sure why. I wish you the best and know that there are those of us out there that can relate to what you are going through.
  • I am so sorry to hear that your doctor is treating you so poorly. He is acting like a person that doesn't understand pain at all. Is there anyway you could go to a different doctor? Is this doctor a pain management doctor, a different specialist, or your regular MD? If he isn't a pain doctor, I would certainly try to go to one, and if you aren't able to, a neuro or ortho that specializes in spines.

    My pain doesn't seem to get worse each day at a certain time that I am aware of, it is caused more by my doing anything other than lying down and changing positions frequently. I do try to get up and walk around as often as I can to keep the circulation going and get a little exercise. I have had 5 major spinal surgeries and have different appliances on levels C2 thru C7, possibly T1, (I still never remember to ask if he had to do that level last surgery) and L2 through S1.

    I will pray for you if you'd like. I feel your pain. This group is very friendly and helpful. Sometimes you just need to unload, and everyone is willing to listen. Keep us updated, please!

  • It is pretty sad when your own doctor doesn't believe you. Makes it hard! I liked the comment above also - "who would give up everything they love for no apparant reason". One of my favorites. It is very frustrating, but you just have to keep plugging along. Maybe try and find a better doctor. Almost sounds like you might be seeing a primary care doctor - which in my opinion have no concept of what being in pain 24/7 is even like - nor do most people for that matter. I get the "well, when it flares do this or that" thing at work. When it flares? it flares non-stop you idiot. LOL! Best of luck to you - tis a sad state of affairs.
  • I found my pain to be bad at night, especially as I tried to get myself asleep. So what my doc did , was the night med, the one pain he doubled it. I do find this helps me, its an art , and maybe should be suggested.
  • Thanks to all that replied. I picked myself up and made some calls. I see my primary Dr and a new pain clinic this week. Next week I see the orthapedic who did the surgery. I do have a neurostimulator implant which has helped the lower back pain, but I'm still suffering with the middle and upper. I think I have another bulging disc. anyway...thank you. it is a nice feeling to know I'm not the only one dealing with this pain.
    God bless.
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