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6 1/2 Month Update

jay911jjay911 Posts: 540
edited 06/11/2012 - 8:56 AM in Spinal Cord Stimulation
Well it's been 6 1/2 months since my permanent SCS was implanted (2/22) and I'm even happier now than I was then. Initially, there was a marked difference in the stimulation I received because the trial used percutaneous leads (which were in the absolute perfect location!) and the permenant used a paddle lead which didn't feel like it was in the same area. As the lead has anchored over time I am finding that the stimulation is closer to what the trial was, how about that!

The big news is that I have committed to my plan for the SCS and have officially reached my goal: elimination of my ER pain meds. I took the advice of my family doctor (who has always had the lead in this long road) and waited a while for things to settle down before the big wean. I started in June and starting on the first of September I am no longer on the ER morphine. I was taking 60mg per day and weaned down by 15mg every month. The biggest challenges was when I went from 45mg to 30mg and now when I cut from 15mg to zero. After being on the MS for 2 1/2 years (!!!) I didn't think it was having that much effect, however I can say that I hurt now that I've cut it out. My hips, knees and ankles are constantly in pain and I'm having some of those withdrawal type symptoms. The biggest being my tolerance to temperature. One minute I'm warm and the next minute I'm shivering cold. No change inside the house though. I am really surprised that there was that much pain relief going on after so long taking the MS. My neuro said I should be feeling more pain after coming off that. I honestly thought that the dependency caused it to work much less effectively. There is some really good news in all of this: I am having real BM's again -- without any help. I call it "pottying like a rock-star!"

I'm now fighting liver and possibly RA problems, seeing specialists for those in the very near future.

My next appointment with the family doc is in October and we'll assess my pain levels then and decide on how we want to handle it at that time.

6 bells and all's well! (well kinda)


  • Thanks for that great update on the SCS helping! Sorry to hear there's other issues and more tests. I hope Everything will be treatable and you heal completely. Hugs. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Hi Jay!! It's great that the SCS is successful for you and congrats on weaning down off the meds.

    I've been thinking about you and was going to send a text, but now you've posted and I know you're doing ok.

    Is the liver issue due, even partially, to the meds you've been taking? I hope it's nothing serious. RA is always something to get taken care of, so I wish you the best on that.

    Take care and thanks for giving us an update, my friend.
  • I am having my SCS installed on Friday,Oct.14'11,
    my surgen said he will go in by separating the
    shoulder muscle,then he will put in the leads in.
    My doctor has already said this part(shoulder that is) the wrost part. Can you give me some ideas of what I should be looking for.
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