Actually, I'm newly diagnosed (the week before last). I had asked my boyfriend to come up and give me support. He had made plans, but cancelled and came up anyway, but he was acting resentful and distant the whole weekend and I ended up breaking it off. He had already mentioned the urge to break it off during that weekend anyway. I don't want to be with someone who is going to feel resentment toward me because of my pain and limitations and worse yet, abandon me eventually anyway.
The reason I had asked him is because I was devastated with the news and wanted some support. My social network has discentegrated over the last year or so as I've been suffering persistent, frequent and chronic pain and my ability to go out became much less often.
Now I'm wondering if I acted too hastily. He, of course, doesn't get it, but maybe with enough information sources, he would eventually get it. I know he is scared of being a bedside servant and he doesn't need to fear that. I'm VERY independent; I made dinner for my parents on Friday night and I do for myself as much as I can because I hate depending on others a whole lot.
Well, he wasn't very sensitive toward my situation, maybe he never would have been. I wanted to spare myself an even greater heartache than just breaking it off now has caused if he ends up being insensitive and leaves me anyway.
I know he wants a partner who likes being physically active and is physically fit. I like being physically active (I always have been) but that has been slowly taken away from me due to my condition.
I cut him loose and am sort of regretting it. I don't really have too many friends who commute and I live far away from the vast majority of them. Two friends live close by, but are busy a lot. My, now, ex-boyfriend used to at least talk on the phone once or twice a week and come up at least once a month (I used to go down to see him, but I l lost the ability to drive for more than fifteen or twenty minutes without feeling too much pain).
I'm very lonely and although there is online support, it still doesn't quite fill the void of loneliness from a lack of in person interaction.
I'm also afraid that I won't ever find someone who will be willing to get involved with me because of my condition. Plus, I can't have kids.
I have a lot of student loans and medical expenses and only make minimum wage, so I'm forced to live with my parents (rather than on my own) and I'm only 33 years old! I'm kind of stuck and I'm worried about what the future holds.
I've been really stressed out and depressed over this too.