I am a 35 yr. old mother of five. I have Ulcerative Colitis and Psoriasis. I have had back pain since my teens but within the last few years it has continually gotten worse, especially within the last 4-5 weeks. My low back/upper butt hurts all the time and can only sit if I roll to the side onto one cheek. The rest of my back and neck is stiff all the time, especially in the mornings to the point that I have great difficulty taking care of myself after I have a bowel movement. I have terrible joint pain throughout my entire body and shooting nerve pain everywhere including fingers and toes. I have aching pains that sporadically jump all over my body or can hurt for days on end in the same place. I have muscle cramps and weakness and permanent numbness in both big toes and in my left calf. It feels tingly in various parts of my body and also like things are crawling on my skin. I have lost bladder and bowel control a couple times. I have significant memory problems. Over the last several years I will very seldom (about twice a year) have this pulsing electric and debilitating pain that starts at my sacrum, goes up my back in into my brain. It feels as if someone hooked my lower back up to an electric pulse. It only lasts for 5-10 seconds or so but it is so painful I freeze and can’t move anything.
Last year and this year I had an MRI done on my lumbar and thoracic. It showed nothing significant beyond one disc degenerating but it still had good height. My primary sent me to a Neurosurgeon who diagnosed me with fibromyalgia. He spent all of three minutes with me and I don’t have the traditional trigger spots of fibromyalgia so I think he's wrong. I went to see a Rheumatologist that thinks it might be psoriatic arthritis. He did tests that showed severely low vitamin D and calcification in my sacroiliac joints. I have a bone scan scheduled for next week. The neurosurgeon put me on Lyrica which has only exaggerated the short term memory loss.
I am getting so bad so quickly that I am thinking of taking FMLA from work. Every day is a constant struggle and I am getting so frustrated. It’s getting almost impossible to care for my children after work. Has anyone lever had these symptoms before?